MINDSET: Clinical feasibility of utilizing the revised epilepsy self-management tool for Spanish speaking patients

Barriers and facilitators to implementation of epilepsy self-management programs: a systematic review using qualitative evidence synthesis methods

“…We identified 13 studies addressing facilitators and barriers to implementing self-management interventions for persons with epilepsy ( Fig. 1) [22,[40][41][42][43][47][48][49][50][51][52][53][54]. Study designs in this analysis included semi-structured interview (n = 5) [22,[40][41][42][43]; cross-sectional survey (n = 5) [47,48,50,53,54]; longitudinal survey (n = 1) [52], mixed-methods including group semi-structured interview, cross-sectional survey, and records review (n = 1) [49], and a discrete choice experiment (n = 1) [51].…”

“…1) [22,[40][41][42][43][47][48][49][50][51][52][53][54]. Study designs in this analysis included semi-structured interview (n = 5) [22,[40][41][42][43]; cross-sectional survey (n = 5) [47,48,50,53,54]; longitudinal survey (n = 1) [52], mixed-methods including group semi-structured interview, cross-sectional survey, and records review (n = 1) [49], and a discrete choice experiment (n = 1) [51]. Study respondents included patients with epilepsy, caregivers, and health care clinicians together [42,49,[52][53][54], patients and caregivers only [22,40,41,43,47,48,51], and health care clinicians [50].…”

“…At the person level, facilitators included desire of the patient with epilepsy to acquire self-management skills [40,54] and the desire to have content that was highly applicable to living with epilepsy (e.g., through eliciting concerns about self-managing and daily living from the Table 2 Definitions and examples of the ecological levels…”

“…• Uniform program standards [42] • Provider characteristics such as job role within the organization [50] Fig [41,42,48,54]. No relevance facilitators were identified at the site/system level.…”

“…At the person level, facilitators included identifying whether the patient owned the necessary technology for the intervention (e.g., computer, mobile telephone) [47], had an identified source of social support (e.g., parents, significant others, friends) [43], and whether the intervention was congruent with the patient's preference for individual peer-support or group interaction [41,42]. At the program level, facilitators included developing the intervention and tailoring its components to build on the current self-management practices of the patient [47,54]. No personalization facilitators were identified at the site/system level.…”