Mindfulness for people with long-term conditions and their family caregivers: A systematic review

Parkinson, Ben; Lawrence, Maggie; McElhinney, Evelyn; Booth, Jo

doi:10.1016/j.ctcp.2018.10.019

Cited by 12 publications

(16 citation statements)

References 61 publications

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“… 67 69–71 Three reviews focused on caregivers of persons with dementia, 67 69 70 while one review took interest in caregivers of people with various illnesses. 71 Health-related outcomes varied and included: depression (n = 3), anxiety (n = 3), and cognition and biomarkers for stress (n = 1). Two reviews included meta-analysis.…”

Section: Resultsmentioning

confidence: 99%

“… 69 70 Cheng et al 67 reported a significant positive effect on depression in grouped meta-analysis. Parkinson et al 71 reported mixed results, with interventions showing some positive changes in anxiety and depression scores, but with small and waning effects. While some authors acknowledged the importance of potential moderating factors and heterogeneity among caregivers, 70 71 there were no findings to report regarding this question.…”

Section: Resultsmentioning

confidence: 99%

“… 38 44 69–71 Qualitative reviews provided only limited insight: although informal caregivers mentioned social and practical benefits, 52 66 73–77 they rarely spoke about how support interventions impacted their own health. 71 73 …”

Section: Discussionmentioning

confidence: 99%

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Effectiveness of interventions designed to mitigate the negative health outcomes of informal caregiving to older adults: an umbrella review of systematic reviews and meta-analyses

et al. 2023

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ObjectivesThis umbrella review aimed to evaluate whether certain interventions can mitigate the negative health consequences of caregiving, which interventions are more effective than others depending on the circumstances, and how these interventions are experienced by caregivers themselves.DesignAn umbrella review of systematic reviews was conducted.Data sourcesQuantitative (with or without meta-analyses), qualitative and mixed-methods systematic reviews were included.Eligibility criteriaReviews were considered eligible if they met the following criteria: included primary studies targeting informal (ie, unpaid) caregivers of older people or persons presenting with ageing-related diseases; focused on support interventions and assessed their effectiveness (quantitative reviews) or their implementation and/or lived experience of the target population (qualitative reviews); included physical or mental health-related outcomes of informal caregivers.Data extraction and synthesisA total of 47 reviews were included, covering 619 distinct primary studies. Each potentially eligible review underwent critical appraisal and citation overlap assessment. Data were extracted independently by two reviewers and cross-checked. Quantitative review results were synthesised narratively and presented in tabular format, while qualitative findings were compiled using the mega-aggregation framework synthesis method.ResultsThe evidence regarding the effectiveness of interventions on physical and mental health outcomes was inconclusive. Quantitative reviews were highly discordant, whereas qualitative reviews only reported practical, emotional and relational benefits. Multicomponent and person-centred interventions seemed to yield highest effectiveness and acceptability. Heterogeneity among caregivers, care receivers and care contexts was often overlooked. Important issues related to the low quality of evidence and futile overproduction of similar reviews were identified.ConclusionsLack of robust evidence calls for better intervention research and evaluation practices. It may be warranted to avoid one-size-fits-all approaches to intervention design. Primary care and other existing resources should be leveraged to support interventions, possibly with increasing contributions from the non-profit sector.PROSPERO registration numberCRD42021252841; BMJ Open: doi:10.1136/bmjopen-2021-053117.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Effectiveness of interventions designed to mitigate the negative health outcomes of informal caregiving to older adults: an umbrella review of systematic reviews and meta-analyses

et al. 2023

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“…This is the first study to investigate online MBI with care partnerships experiencing anxiety and depression following stroke (Parkinson et al, 2019;Parkinson, 2021). The study uses mixed methods case study research and combines an initial quasi-experimental stage followed by IPA (Creswell & Plano Clark, 2017;Smith et al, 2009).…”

Section: Discussionmentioning

confidence: 99%

“…Recent developments with MBIs include using online technology, involving different clinical populations, and/or delivering MBI in care partnerships (Fish et al, 2016). This study is the first study to examine online MBI with care partnerships experiencing anxiety and depression symptoms following stroke (Parkinson et al, 2019;Parkinson, 2021).…”

Section: Mindfulness-based Interventions (Mbis)mentioning

confidence: 99%

Online Mindfulness with Care Partnerships Experiencing Anxiety and Depression Symptoms after Stroke: Mixed Methods Case Study Research

et al. 2022

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Purpose: To investigate the experience and outcomes for care partnerships (e.g., spouses, caregivers) who have post-stroke anxiety and/or depression symptoms and used an online mindfulness-based intervention (MBI) together. Design: Explanatory sequential mixed methods case study research. Methods: 5 care partnerships (10 participants) received online MBI, and data was collected in weeks 0, 4, and 8. Data collection involved the Hospital Anxiety Depression Scale, the Mutuality Scale, the Mindful Attention Awareness Scale, and post-intervention interviews. Clinical effectiveness was evaluated using minimal clinically important difference (MCID). Findings: Participants improved mindfulness (80%) and mutuality (30%). MCID was achieved for anxiety symptoms (50%) and depression symptoms (20%). IPA found evidence of conflicting and contradictory experiences so dialectical tension was used to articulate the continuum of perspectives and themes produced in the analysis. Conclusion: Care partnerships using online MBIs can experience improvements in mindfulness, mutuality, anxiety symptoms, and depression symptoms. The findings are complex but show the potential value of online MBI for some care partnerships living with stroke.

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Enablers and Barriers of Online Mindfulness-Based Interventions for Informal Carers: A Mixed-Methods Systematic Review

Abeysinghe Mudiyanselage,

Ewens,

Smyth

et al. 2024

Mindfulness

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Objectives Informal carers are an integral part of any health care system. However, provision of informal care is associated with caregiver burden and decreased wellbeing. Mindfulness programs can reduce caregiving burden and improve wellbeing among informal carers, but they face challenges when participating in face-to-face programs. Studies have explored the effects of online delivery of mindfulness programs for informal carers. However, the enablers and barriers for participation are not well understood. This review aimed to synthesise the evidence and provide a comprehensive understanding of the enablers and barriers to participation in online mindfulness programs among this population. Methods A mixed-methods systematic review was conducted following the Joanna Briggs Institute mixed-methods systematic review approach and using eight databases. All empirical studies published in English and involving informal carers aged over 18 years were included. Critical appraisal was conducted using the Mixed Methods Appraisal Tool. Thematic analysis was conducted to integrate the data. Results Nine studies were included: three quantitative, two qualitative, and four mixed methods. Three subthemes for enablers and barriers were developed. Three subthemes for enablers included self-motivation, positive experience of mindfulness, and program structure and delivery. Three subthemes for barriers included lack of self-motivation, external factors preventing participation, and program structure and delivery. The enablers and barriers were interrelated within and across the identified themes. Conclusions A comprehensive synthesis of current evidence was provided for consideration when developing online mindfulness-based interventions for informal carers. Further investigation is recommended, particularly in relation to the enablers and barriers to engagement by informal carers. Preregistration The review protocol was registered with PROSPERO (CRD42023409311).

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Mindfulness for people with long-term conditions and their family caregivers: A systematic review

Cited by 12 publications

References 61 publications

Effectiveness of interventions designed to mitigate the negative health outcomes of informal caregiving to older adults: an umbrella review of systematic reviews and meta-analyses

Effectiveness of interventions designed to mitigate the negative health outcomes of informal caregiving to older adults: an umbrella review of systematic reviews and meta-analyses

Online Mindfulness with Care Partnerships Experiencing Anxiety and Depression Symptoms after Stroke: Mixed Methods Case Study Research

Enablers and Barriers of Online Mindfulness-Based Interventions for Informal Carers: A Mixed-Methods Systematic Review

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