Midwives and information on prenatal testing with focus on Down syndrome

Ternby, Ellen; Ingvoldstad, Charlotta; Annerén, Göran; Axelssön, Ove

doi:10.1002/pd.4676

Cited by 8 publications

(8 citation statements)

References 19 publications

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“…In our study, years of counselling experience was not associated with knowledge. These findings are consistent with a study by Ternby et al 18 showing no significant difference in knowledge about Down syndrome between midwife counsellors who had worked >10 years in the field compared to midwife counsellors who had worked ≤10 years 18 . However, in their study, midwives with more experience in practice did feel more secure about their knowledge compared to less Research paper experienced midwives.…”

Section: Discussionsupporting

confidence: 92%

“…Before the course, just over half of the participants had ≥75% correct answers. The literature indicates that counsellors' knowledge of Down syndrome needs to be improved to ensure that they can provide women with information to make informed decisions [18][19][20] . Overall, knowledge of first trimester screening was better than knowledge on the second trimester anomaly scan, mainly due to the lack of knowledge about congenital heart diseases in the second trimester.…”

Section: Discussionmentioning

confidence: 99%

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Effect of education and attitude on health professionals’ knowledge on prenatal screening

Jansen¹,

Vries²,

Engels³

et al. 2020

Eur J Midwifery

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INTRODUCTION Ongoing developments in prenatal anomaly screening necessitate continuous updating of counsellors' knowledge. We explored the effect of a refresher counselling course on participants' knowledge of prenatal screening. METHODS We investigated the association between knowledge and counsellors' working experience. Also, the association between knowledge and counsellors' attitude towards prenatal screening was determined. All counsellors in the NorthWest region of the Netherlands were invited to attend a refresher counselling course and fill in both a pre-course and a post-course questionnaire. The participants consisted of midwifes, sonographers and gynaecologists. A 55-item questionnaire assessed pre-course (T0) and post-course (T1) knowledge. At T0, counsellors' attitude towards the prenatal screening program was assessed and its association with knowledge analysed. RESULTS Of 387 counsellors, 68 (18%) attended the course and completed both questionnaires. Knowledge increased significantly from 77.7% to 84.6% (p<0.01). Scores were lowest regarding congenital heart diseases. Participants with ultrasound experience scored higher on T0, but improvement was seen in participants with and without ultrasound experience. Participants with a positive attitude towards a free-of-charge first trimester combined test had higher knowledge scores than participants with a negative attitude (62% vs 46%; p=0.002). CONCLUSIONS A refresher course improved counsellors' knowledge on prenatal screening. Ultrasound experience and a positive attitude towards free screening may be associated with higher knowledge levels. Participating in a mandatory refresher counselling course is useful for the continuous improvement of healthcare practitioners' knowledge. More research on the effect of knowledge and attitude on the quality of prenatal screening is necessary.

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Section: Discussionsupporting

confidence: 92%

Section: Discussionmentioning

confidence: 99%

Effect of education and attitude on health professionals’ knowledge on prenatal screening

Jansen¹,

Vries²,

Engels³

et al. 2020

Eur J Midwifery

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“…They were especially critical of the quality of the information about Down syndrome given at different stages of the screening trajectory. Studies in other countries suggest that knowledge of Down syndrome among healthcare professionals could be improved (Ternby et al 2015a), and that some parents perceive the information about what it may mean to live with this condition, both for the individual and for the parents, as insufficient (Carroll et al 2012; Ternby et al 2015b) or overly negative (Kellogg et al 2014). It was also noted that the information leaflets for those considering screening for Down syndrome should provide more accurate information about this (Saiklang and Skirton 2015).…”

Section: Discussionmentioning

confidence: 99%

What Do Parents of Children with Down Syndrome Think about Non‐Invasive Prenatal Testing (NIPT)?

Schendel

Kater-Kuipers

Vliet-Lachotzki³

et al. 2016

Journal of Genetic Counseling

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This study explores the attitudes of parents of children with Down syndrome towards non-invasive prenatal testing (NIPT) and widening the scope of prenatal screening. Three focus groups (n = 16) and eleven individual interviews with Dutch parents (and two relatives) of children with Down syndrome were conducted. Safety, accuracy and earlier testing were seen as the advantages of NIPT. Some participants were critical about the practice of screening for Down syndrome, but acknowledged that NIPT enables people to know whether the fetus is affected and to prepare without risking miscarriage. Many feared uncritical use of NIPT and more abortions for Down syndrome. Concerns included the consequences for the acceptance of and facilities for children with Down syndrome, resulting in more people deciding to screen. Participants stressed the importance of good counseling and balanced, accurate information about Down syndrome. Testing for more disorders might divert the focus away from Down syndrome, but participants worried about “where to draw the line”. They also feared a loss of diversity in society. Findings show that, while parents acknowledge that NIPT offers a better and safer option to know whether the fetus is affected, they also have concerns about NIPT’s impact on the acceptance and care of children with Down syndrome.

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“…There were no association between popularity or search rank and the investigated quality criteria. According to previous studies, health professionals report insufficient training about prenatal tests [7], devote little time or effort to inform about prenatal tests [3,8] and do not provide expectant parents with enough information about the option to terminate the pregnancy when a fetal anomaly is discovered [8]. Indeed, research illustrates that those who receive a prenatal diagnosis of fetal anomaly experience an overwhelming amount of information following the diagnosis [32,33], and at the same time a lack of information about induced abortion [33,34].…”

Section: Discussionmentioning

confidence: 99%

“…Providing information about prenatal tests is a clinical challenge for health professionals who work in maternity care. These health professionals express a lack of training about prenatal diagnostics [7] and often devote insufficient time to inform expectant parents about the examinations [8], indicating that they are unable to provide sufficient information about the different alternatives.…”

Section: Introductionmentioning

confidence: 99%

Quality of consumer-oriented websites containing information about the second trimester ultrasound examination during pregnancy

Georgsson

Carlsson

2020

BMC Pregnancy Childbirth

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Background: Providing information about prenatal tests is a clinical challenge and the public frequently accesses the Web to read pregnancy-related information. The overarching aim of this study was to investigate the quality of consumer-oriented websites addressing obstetric ultrasound examination in the second trimester of pregnancy. Methods: Swedish websites were identified with Google, using 20 search strings and screening 400 hits (n = 71 included websites). Reliability and information about the examination were assessed with the DISCERN instrument, completeness was assessed according to national guidelines, and readability analyzed with the Readability Index. Popularity was determined with the ALEXA tool and search rank was determined according to Google hit lists. Results: The mean total DISCERN score was 29.7/80 (SD 11.4), with > 50% having low quality for 15 of the 16 questions. The mean completeness score was 6.8/24 (SD 4.5). The Readability Index ranged between 22 and 63, with a mean of 42.7 (SD 6.8), indicating difficult readability. Weak and non-significant correlations were observed between ALEXA/search rank and the investigated quality variables, except for search rank and reliability.Conclusions: The quality of consumer-oriented websites addressing the second trimester ultrasound examination is low. Health professionals need to discuss this with expectant parents considering undergoing the examination. There is a need for efforts that aim to improve the poor quality of online sources in the field of prenatal examinations.

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Midwives and information on prenatal testing with focus on Down syndrome

Cited by 8 publications

References 19 publications

Effect of education and attitude on health professionals’ knowledge on prenatal screening

Effect of education and attitude on health professionals’ knowledge on prenatal screening

What Do Parents of Children with Down Syndrome Think about Non‐Invasive Prenatal Testing (NIPT)?

Quality of consumer-oriented websites containing information about the second trimester ultrasound examination during pregnancy

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