Mexican registry of pediatric cardiac surgery. First report

Abstract

This analysis provides a representative view of the surgical practices in cardiovascular diseases in the pediatric population at the national non-insured population level. However, incorporating other health institutions to the national registry database will render a more accurate panorama of the national reality in surgical practices in the population <18 years of age.

Indications, Challenges, and Characteristics of Successful Implementation of Perioperative Registries in Low Resource Settings: A Systematic Review

“…The indications for setting up a perioperative registry in LIC/LMICs included limited data for determining and evaluating patient outcomes ( n = 7) [ 16 – 18 , 20 , 23 – 25 ], understanding the volume of surgeries ( n = 2) [ 16 , 23 ], recognising the burden of diseases ( n = 3) [ 18 , 22 ], evaluating economic impact ( n = 2) [ 24 , 25 ], conducting quality improvement initiatives and research ( n = 6) [ 17 , 20 , 21 , 23 – 25 ], auditing and validation of national statistics [ 26 ], and informing national/ global surgical indicators and practice ( n = 3) [ 17 , 20 , 24 ] (Table 2 ). The lack of context-specific data for linking institutions and developing national, regional, and global networks for research and shared learning, as well as identifying short- and long-term training needs for medical and allied professionals, were described ( n = 2) [ 17 , 20 ].…”

“…Additionally, the use of international nomenclature for collecting surgical conditions is also recommended to help and conduct multicentre studies across hospitals that use the same codes [ 26 ].…”

“…Personnel requires the building of local research capacity and establishing a local technical team. Engaging different stakeholders (including the Ministry of Health), creating a sense of ownership and responsibility, following local policies, and obtaining appropriate ethical approval from the hosting country's responsible institution, and appropriate recruitment of data collectors in terms of skill-mix and academic background/ability are all associated with the successful implementation of perioperative registries (n = 5) [16][17][18][19][24][25][26]. Additionally, the use of international nomenclature for collecting surgical conditions is also recommended to help and conduct multicentre studies across hospitals that use the same codes [26].…”

“…Engaging different stakeholders (including the Ministry of Health), creating a sense of ownership and responsibility, following local policies, and obtaining appropriate ethical approval from the hosting country's responsible institution, and appropriate recruitment of data collectors in terms of skill-mix and academic background/ability are all associated with the successful implementation of perioperative registries (n = 5) [16][17][18][19][24][25][26]. Additionally, the use of international nomenclature for collecting surgical conditions is also recommended to help and conduct multicentre studies across hospitals that use the same codes [26]. Successful software (applications) associated with highquality data collection was simple to use, had offline compatibility (n = 3) [17,19,20], limited bandwidth (needs nominal data or Wi-Fi connection) (n = 1) [18], were easily adaptable, and locally made.…”

“…Unless these principles are achieved, it will be impossible to maintain data quality. As described in this review, most of the registries arose from investigators with specific outcome interests (n = 10) [15][16][17][18][19][22][23][24][25][26], which may be helpful in determining and minimising the dataset. The question then arises: what is the most efficient method of data collection?…”