Methodology Matters: Designing a Pilot Study Guided by Indigenous
                    Epistemologies

Juutilainen, Sandra; Jeffrey, Melanie; Stewart, Suzanne

doi:10.13110/humanbiology.91.3.06

Cited by 8 publications

(9 citation statements)

References 30 publications

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“…Indigenous models also avoid the term ‘disability’, adopt Indigenous terms in program names and position social care in ways that resonate with Indigenous participants. These approaches respond to the widely reported lack of resonance of Western concepts of ‘disability’ among Indigenous populations; and stigmatising experiences of diagnostic labels among Indigenous people (Avery, 2018 ; Bevan‐Brown, 2013 ; Juutilainen et al, 2019 ).…”

Section: Discussionmentioning

confidence: 99%

Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature

Puszka

Walsh

Markham

et al. 2022

Health Social Care Comm

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Disability is experienced and understood by Indigenous people internationally in distinct ways from other populations, requiring different approaches in disability services. Furthermore, Indigenous populations access disability services at low rates. In response, policymakers, service providers and Indigenous organisations have developed specific models of care for Indigenous people with disability. Social care services, comprising personal care, transport and social activities, can support Indigenous people with disability to live with their families and in their communities. However, little is known about the range of social care models for Indigenous people with disability. To inform policy and practice, we conducted a scoping review of community‐based models of social care designed to meet the needs of Indigenous peoples in Australia, Aotearoa New Zealand, Canada and the United States. Our methods were informed by best practice scoping review principles and a collaborative approach that centred Indigenous voices within research appraisal and project governance processes. Literature searches (conducted March–April 2021) yielded 25 results reporting on 10 models of care. We identified two over‐arching themes (funding and governance arrangements; service delivery design) that encompass nine key characteristics of the included models. Our analysis shows promising practice in contextually relevant place‐based social activity programs, support and remuneration for family carers and workforce strategies that integrate Indigenous staff roles with kinship relationships and social roles. While more research and evaluation are needed, disability funding bodies and service systems that facilitate these areas of promising practice may improve the accessibility of social care for Indigenous peoples.

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Section: Discussionmentioning

confidence: 99%

Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature

Puszka

Walsh

Markham

et al. 2022

Health Social Care Comm

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“…For this reason, clarifying positionality is critically important when articulating a research paradigm. Further, introducing and locating oneself is a key aspect of relationality as it identifies who a researcher is, where they come from, who their relations are, and what their roles and responsibilities are (Juutilainen et al, 2020). Positioning oneself in the research facilitates transparent communication of a researcher's background and intentions, and helps establish trust and respect in research relationships (Chiblow, 2021).…”

Section: Positionalitymentioning

confidence: 99%

“…(p. 26) More recently, Indigenous scholars have articulated their Indigenous research paradigms in the literature as a means of decolonization and Indigenization and to bring Indigenous worldviews out of the academic margins (Hart, 2010;Strega & Brown, 2015). Since the 1990s, several Indigenous scholars have published work detailing research with Indigenous research paradigms distinct to their specific cultures (Absolon, 2011;Bell, 2018;Bishop, 1998;Chiblow, 2021;Chilisa, 2012Chilisa, , 2020Gehl, 2014Gehl, , 2017Hart, 2010;Held, 2019;Juutilainen et al, 2020;Kovach, 2009Kovach, , 2015McGregor, 2018;Rigney, 1999;Smith, 1999;Wilson, 2008). Prioritizing Indigenous paradigms has worked to address privilege and power imbalances in colonial-Indigenous relationships in the academy and within the global context (Hart et al, 2017).…”

Section: Introductionmentioning

confidence: 99%

Stitching Together My Anishinaabe Research Paradigm: An Approach to Storytelling With Algonquin Ikwewag (Women) and Gender-Diverse People in Mattawa and North Bay, Ontario

Patterson,

Labreche,

Morcom

et al. 2023

International Journal of Qualitative Methods

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This article reviews an Anishinaabe research paradigm that structures a storytelling project with Algonquin Anishinaabekwewag and gender-diverse people from the Mattawa and North Bay area in Ontario, Canada. This Anishinaabe research paradigm contains an ontology, epistemology, methodology, and axiology that are informed by Anishinaabe worldviews and values, participants’ stories, as well as the knowledges and experiences the first author brings to the project as a mixed-ancestry Algonquin Anishinaabekwe. With a ribbon skirt framework of data analysis, analytical approaches from multiple knowledge systems are stitched together to form complex and cohesive stories. The methodology is guided by principles of ownership, control, access, and possession, the Tri-Council Policy Statement: Ethical Conduct of Research Involving Humans (Chapter 9), as well as Anishinaabe relational accountability which honours relationships with all of Creation. Axiology is further informed by Mino-Bimaadiziwin and Anishinaabe Original Instructions, and is expressed through Anishinaabe jiimaan (canoe) teachings and values of respect, relevance, reciprocity, responsibility, and reverence. Making space for Anishinaabe research paradigms that prioritize Anishinaabe ways of knowing and living is a powerful way to decolonize the research process and affirm the continuity of Anishinaabe lifeways.

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“…My research centers Anishinaabek knowledges and ways of seeing, relating, knowing, and being from within Anishinaabek philosophical contexts rather than assimilating the knowledge systems into a Eurocentric worldview. Juutilainen et al (2019) states, “[R]esearchers need to understand that Indigenous knowledge systems must be valued and respected, not subsumed into Eurocentric academic constructs” (p. 149). I engage in a wholistic paradigm drawing on the emotional, spiritual, physical, and mental participating in relationship with what I am learning.…”

Section: Introductionmentioning

confidence: 99%

“…Standing with the participants addresses power imbalance in research relationships. It is a known fact that imbalanced power relationships between researchers and Indigenous Peoples have been extractive, unethical, and often build academic careers without benefits to the Indigenous Peoples or communities (Juutilainen et al, 2019). I therefore employ an Indigenous Research Paradigm (IRP) that furthers relationship building to relationship-maintenance.…”

Section: Introductionmentioning

confidence: 99%

An Anishinaabe Research Methodology that Utilizes Indigenous Intelligence as a Conceptual Framework Exploring Humanity’s Relationship to N’bi (Water)

Chiblow

2021

International Journal of Qualitative Methods

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This article presents the utilization of an Anishinaabek Research Paradigm (ARP) that employs Indigenous Intelligence as a conceptual framework for qualitative Anishinaabek analysis of data. The main objective of the research project examines critical insights into Anishinaabek’s relationships to N’bi (water), N’bi governance, reconciliation, Anishinaabek law, and Nokomis Giizis with predominately Anishinaabek kweok, grassroots peoples, mishoomsinaanik (grandfathers), gookmisnaanik (grandmothers), and traditional knowledge holders. Drawing on Anishinaabek protocols, the enlistment of participants moved beyond the University requirements for ethics. This also includes “standing with” the participants in the act of inquiry, in knowledge, and continued relationships. The ARP for research emerged from Indigenous ways of seeing, relating, thinking, and being. This approach did not call for an integration of two knowledge systems but rather recognizes there are multiple ways of gathering knowledge. The article explains how “meaning-making” involves Indigenous Intelligence through Anishinaabek protocols holding the researcher accountable to the participants, the lands, the ancestors, and to those yet to come.

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Methodology Matters: Designing a Pilot Study Guided by Indigenous Epistemologies

Cited by 8 publications

References 30 publications

Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature

Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature

Stitching Together My Anishinaabe Research Paradigm: An Approach to Storytelling With Algonquin Ikwewag (Women) and Gender-Diverse People in Mattawa and North Bay, Ontario

An Anishinaabe Research Methodology that Utilizes Indigenous Intelligence as a Conceptual Framework Exploring Humanity’s Relationship to N’bi (Water)

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