Methodology and study population of the second Swiss national community survey of functioning after spinal cord injury

Gross-Hemmi, Mirja; Gemperli, Armin; Fekete, Christine; Brach, Mirjam; Schwegler, Urban; Stucki, Gerold

doi:10.1038/s41393-020-00584-3

Cited by 26 publications

(31 citation statements)

References 25 publications

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“…We used data from the first and second Swiss Spinal Cord Injury (SwiSCI) community survey (subsequently referred to as Survey 2012 and Survey 2017). The design, recruitment, and eligibility criteria of Survey 2012 and 2017 are detailed elsewhere [12,13]. In brief, Survey 2012 was conducted between 9/2011 and 3/2013 and Survey 2017 between 3/2017 and 3/2018.…”

Section: Methodsmentioning

confidence: 99%

“…Participants were recruited through all four Swiss specialized SCI rehabilitation centers, the Swiss Paraplegic Association and ParaHelp, the specialized home care institution for individuals with SCI in Switzerland. In Survey 2012, the sampling frame covered 50% of the total Swiss adult SCI population and 49.3% of this sample responded to the survey [12], and in Survey 2017 the sampling frame covered~65% of the total Swiss adult SCI population and 38.6% of this sample responded to the survey [13]. The questionnaires of Survey 2012 and 2017 included items on body functions and structures, activities and participation, environmental and personal factors, lesion characteristics as well as participants' appraisal of health and well-being and are available online.…”

Section: Methodsmentioning

confidence: 99%

“…No more recent prevalence estimates are available. Taking into account all eligible persons on the sampling frame for the Survey 2012 (n = 3144) and 2017 (n = 3959),~50 and 65% coverage rates can be estimated for response to USER-Participation in Survey 2012 and 2017, representing at least 25% of the Swiss SCI population [13]. Thus, generalizability of our findings is limited.…”

Section: Strengths and Limitationsmentioning

confidence: 95%

“…SwiSCI included Swiss residents 16 or older years who had a chronic traumatic or nontraumatic SCI. Excluded were persons with SCI due to congenital conditions, neurodegenerative disorders, or Guillain-Barré syndrome [12,13].…”

Section: Participantsmentioning

confidence: 99%

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Detecting subgroups in social participation among individuals living with spinal cord injury: a longitudinal analysis of community survey data

et al. 2021

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Strengths and Limitationsmentioning

confidence: 95%

Section: Participantsmentioning

confidence: 99%

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Detecting subgroups in social participation among individuals living with spinal cord injury: a longitudinal analysis of community survey data

et al. 2021

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“…30-44 years 204 (19) 45-59 years 376 (34) 60-74 years 358 (33) ≥75 years 109 (10) Married 1 , n (%) 590 (54) 2 Informal caregiver is a family member or friend who provides unpaid care. 3 SSS is the subjective social status based on MacArthur Scale classi cation.…”

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confidence: 99%

First Contact of Care for Persons With Spinal Cord Injury: A General Practitioner or a Spinal Cord Injury Specialist?

Touhami

Brach

Essig

et al. 2021

Preprint

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Background. Inter-professional collaboration between general practitioners (GPs) and spinal cord injury (SCI) specialists is needed to improve the health outcomes of persons with SCI. The objective of this study is to understand the differences in long-term care provision by GPs and SCI-specialists, by examining (1) the first contact of care for SCI health problems, (2) the morbidity profile and use of health-care services in relation to first contact, and (3) the factors associated with the choice of first contact.Methods. In this cross-sectional study based on data derived from the Swiss Spinal Cord Injury Cohort Study Community Survey 2017, the main outcome measure was the reported first contact for SCI-specific care. This information was analysed using the chi-square test and logistic regression analysis of groups based on patient characteristics, use of health-care services and secondary health conditions assessed using the Spinal Cord Injury Secondary Conditions Scale (SCI-SCS). Results. Out of 1294 respondents, 1095 reported their first contact for SCI-specific care; 56% indicated SCI-specialists and 44% specified GPs. The mean ± standard deviation of the total SCI-SCS was significantly lower in persons who initially consulted GPs (13.1±7.7) than SCI-specialists (14.6±7.3). On average, participants who first contacted a GP reported higher number of GP consultations (5.1±5.2 vs. 3.9±7.2), planned visits to ambulatory clinics (3.7±7.3 vs. 3.6±6.7) and hospital admissions (GP, 1.9±1.7 vs. 1.5±1.3), but lower number of hospital days (22.8±43.2 vs. 31.0±42.8). The likelihood to contact a GP first was significantly higher in persons ≥75 years old (OR= 4.78, 95%-CI= 1.99–11.50), Italian speakers (OR= 5.11, 95%-CI= 2.47–10.54), had incomplete lesions (OR 2.51, 95%-CI 1.78–3.54) or diabetes mellitus (OR= 1.81, 95%-CI= 1.03–3.18), but lower for those situated closer to SCI centers (OR= 0.69, 95%-CI= 0.51–0.93) or experiencing bowel dysfunction (OR= 0.71, 95%-CI= 0.52–0.98).Conclusion. The choice of first contact for SCI-specific care may be partly explained by the complementary roles of GPs and SCI specialists, but the reasons for variation are still unclear. Developing a transparent shared-care model between GPs and SCI specialists, with defined roles and responsibilities, may improve the management of secondary health conditions.

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Who is at Risk of Loneliness? A Cross-sectional Recursive Partitioning Approach in a Population-based Cohort of Persons With Spinal Cord Injury

Tough

Gross-Hemmi

Stringhini

et al. 2022

Archives of Physical Medicine and Rehabilitation

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Methodology and study population of the second Swiss national community survey of functioning after spinal cord injury

Cited by 26 publications

References 25 publications

Detecting subgroups in social participation among individuals living with spinal cord injury: a longitudinal analysis of community survey data

Detecting subgroups in social participation among individuals living with spinal cord injury: a longitudinal analysis of community survey data

First Contact of Care for Persons With Spinal Cord Injury: A General Practitioner or a Spinal Cord Injury Specialist?

Who is at Risk of Loneliness? A Cross-sectional Recursive Partitioning Approach in a Population-based Cohort of Persons With Spinal Cord Injury

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