Metasynthesis of the Hope Experience of Family Caregivers of Persons With Chronic Illness

Duggleby, Wendy; Holtslander, Lorraine; Kylmä, Jari; Duncan, Vicky; Hammond, Chad; Williams, Allison

doi:10.1177/1049732309358329

Cited by 139 publications

(150 citation statements)

References 35 publications

(73 reference statements)

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“…The Critical Appraisal Skills Programme [CASP] (2013) was utilised, comprising of 10 questions to assess the credibility, rigour and relevance of the research. However, as well as referring to qualitative comments from the CASP (2013), comments were quantified to obtain an overall quality score (Duggleby et al, 2010). A strong score of '3' denoted extensive justification and meeting of criteria, a moderate score of '2' denoted addressing, but not elaborating on the issue, and a weak score of '1' denoted a substantial lack in meeting 7 criteria or presenting justification.…”

Section: Quality Appraisalmentioning

confidence: 99%

The experience of caring for patients with dementia within a general hospital setting: a meta-synthesis of the qualitative literature

Turner

Eccles

Elvish

et al. 2015

Aging & Mental Health

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Objectives: The optimal care of people with dementia in general hospitals has become a policy and practice imperative over recent years. However, despite this emphasis, the everyday experiences of staff caring for this patient group is poorly understood. This review aimed to synthesise the findings from recent qualitative studies in this topic published prior to January 2014 to develop knowledge and provide a framework to help inform future training needs.Method: A systematic search of the literature was conducted across five academic databases and inclusion/exclusion criteria applied to the retrieved papers. A meta-ethnographic approach was utilised to synthesise the resulting 14 qualitative papers.Results: Five key themes were constructed from the findings: overcoming uncertainty in care; constraints of the environmental and wider organisational context; inequality of care; recognising the benefits of person-centred care; and identifying the need for training. These themes explore the opportunities and challenges associated with caring for this group of patients, as well as suggestions to improve staff experiences and patient care. Conclusion:The synthesis highlighted a lack of knowledge and understanding of dementia within general hospital staff, particularly with regard to communication with patients and managing behaviours that are considered challenging. This limited understanding, coupled with organisational constraints on a busy hospital ward, contributed to low staff confidence, negative attitudes towards patients with dementia and an inability to provide person-centred care. The benefits of dementia training for both ward staff and hospital management and peer discussion/support for ward staff are discussed.

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Section: Quality Appraisalmentioning

confidence: 99%

The experience of caring for patients with dementia within a general hospital setting: a meta-synthesis of the qualitative literature

Turner

Eccles

Elvish

et al. 2015

Aging & Mental Health

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“…10 Hope is a multidimensional and dynamic construct which has been defined as the possibility of a better future from an uncertain present. 11 Literature revealed that hope is an important factor in the recovery of cancer patients 12 Cancer patients appears to be more influenced by the level of hope than other diseases. 13 For example as hopelessness is a risk factor for suicide 14 thus, identifying factors that affects the hope of cancer patients specially newly diagnosed patents is of great importance.…”

confidence: 99%

The Relationship between Hope and Self-Esteem in Patients with Leukemia

Parvan¹,

Tabrizi²,

Rahmani³

et al. 2015

J Caring Sci

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Article Type: Original Article Introduction: Patients with hematologic malignancies often experience many emotional reactions which are different based on patient's culture. Indeed culture determines the different ways that patients understand cancer. Accordingly, the aim of this study was to determine the relationship of self-esteem and hope among Iranian cancer patients. Methods: This descriptive-correlational study was undertaken among 85 leukemic patients admitted to Shahid Ghazi hospital in East-Azerbaijan province, Iran. They were selected using consecutive sampling method. Persian form of Hearth Hope Index and Coppersmith Self-Esteem Inventory were used to identify patients' hope and selfesteem. The data were analyzed using SPSS version 13.0. Results: The overall scores of hope and self-esteem were 33.05 (5.24) and 94.61 (11.51), respectively. There was a positive correlation between hope and self-esteem (rs = 0.73, n = 85, P < 0.001). Conclusion: Although culture determines the different ways that patients understand cancer, but it seems that the self-esteem and hope relationship could be similar in different cultures. The findings of this study indicate that nurses could be helpful through designing and implementing appropriate educational programs in order to enhance hope and self-esteem of leukemia patients.

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“…The reviewers used a three-point 23 system to rate each paper on how it explained each of the eight areas (weak = 1, moderate = 2, strong = 3) [22].…”

mentioning

confidence: 99%

“…Scores were then summed for each paper, giving a possible score of [8][9][10][11][12][13][14][15][16][17][18][19][20][21][22][23][24]. This quality review was 26 conducted to aid readers' critical consideration of the credibility of the included papers' findings, and as such 27 papers were not excluded on the basis of their scores, Furthermore, as ratings on CASP criteria tend to reflect the 28 quality of reporting rather than that of the research undertaken, and do not necessarily indicate the robustness, 7 *** Table 1 about here ***…”

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confidence: 99%

Cancer survivors’ perspectives on adjustment-focused self-management interventions: a qualitative meta-synthesis

et al. 2016

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General rightsThis document is made available in accordance with publisher policies. Please cite only the published version using the reference above. Full terms of use are available: http://www.bristol.ac.uk/pure/about/ebr-terms AbstractPurpose Self-management interventions improve patient outcomes across a range of long-term conditions, but are often limited by low uptake and completion rates. The aim of this paper was to conduct a meta-synthesis of qualitative studies exploring cancer survivors' views and experiences of engaging with adjustment-focused selfmanagement interventions in order to inform the development of future interventions targeting this population.Methods Four electronic databases were systematically searched. Studies that used qualitative methods to explore cancer survivors' views and experiences of engaging with adjustment-focused self-management interventions were included. A meta-ethnographic approach was used to synthesize the findings.Results Thirteen studies met the inclusion criteria. Engaging with adjustment-focused self-management interventions enabled cancer survivors to gain emotional and informational support from peers and/or facilitators in an open, non-judgemental environment, become empowered through enhancing knowledge and skills and regaining confidence and control, and move beyond cancer by accepting illness experiences, reprioritising goals and adopting a positive outlook. However, the extent to which they engaged with, and benefited from, such interventions was mitigated by diverse preferences regarding intervention design, content and delivery. Personal obstacles to engagement included low perceived need, reticence to discuss cancer-related experiences and various practical issues.Conclusions Cancer survivors derive a range of benefits from participating in adjustment-focused selfmanagement interventions; potential barriers to engagement should be addressed more comprehensively in intervention marketing, design and delivery.Implications for cancer survivors The findings suggest some key considerations for the development and implementation of future adjustment-focused self-management interventions that may help to optimize their appeal and effectiveness among cancer survivors.

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Metasynthesis of the Hope Experience of Family Caregivers of Persons With Chronic Illness

Cited by 139 publications

References 35 publications

The experience of caring for patients with dementia within a general hospital setting: a meta-synthesis of the qualitative literature

The experience of caring for patients with dementia within a general hospital setting: a meta-synthesis of the qualitative literature

The Relationship between Hope and Self-Esteem in Patients with Leukemia

Cancer survivors’ perspectives on adjustment-focused self-management interventions: a qualitative meta-synthesis

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