Mental Models of Cause and Inheritance for Type 2 Diabetes Among Unaffected Individuals Who Have a Positive Family History

Daack‐Hirsch, Sandra; Shah, Lisa; Cady, Alyssa D

doi:10.1177/1049732317745052

Cited by 12 publications

(38 citation statements)

References 32 publications

(60 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Those interested in participating contacted the research team, who then took them through the process of screening, consenting, and enrolling. Recruitment of individuals from the community‐based organization was completed through case workers, who passed on contact information to the research team (Daack‐Hirsch et al, ).…”

Section: Methodsmentioning

confidence: 99%

“…We calculated age from birthdate and assigned values into one of two categories (a) under 35 years of age and (b) 35 years of age and older. We used a cutoff of 35 years old because participants indicated that risk for T2D is more of concern after the age of 35 (Daack‐Hirsch et al, ). Education was measured by asking for the highest level of education completed.…”

Section: Methodsmentioning

confidence: 99%

“…In our previous work we refined the FRP model specifically for T2D (Daack‐Hirsch, Shah, & Cady, ; Daack‐Hirsch et al, 2018b). The model is comprised four major constructs: Salience, mental models, vulnerability, and coping/control.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Type 2 diabetes familial risk personalization process profiles: Implications for patient–provider communication

Daack‐Hirsch

Schumacher

Shah

et al. 2019

Research in Nursing & Health

View full text Add to dashboard Cite

People who have a single first‐degree relative with type 2 diabetes (T2D) are at increased risk for developing T2D over their lifetime. A positive family history of T2D is also associated with developing risk awareness and engaging in risk‐reducing behaviors among the unaffected relatives. Yet, little is known about how people with a positive family history for disease personalize and process their familial risk to form perceptions about their own risk. In this mixed method study, we explored risk personalization among a diverse group of people between the ages of 18 and 60, with a positive family history of T2D, who were themselves unaffected (n = 109). We collected interview and survey data with respect to the familial risk perception personalization model. Using cluster analysis, qualitative and quantitative data were combined to inductively derive three distinct clusters representing three different familial risk perception personalization processes. These results can serve as a basis for tailored interventions aimed at reducing risk for T2D among people with increased risk due to familial history.

show abstract

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Type 2 diabetes familial risk personalization process profiles: Implications for patient–provider communication

Daack‐Hirsch

Schumacher

Shah

et al. 2019

Research in Nursing & Health

View full text Add to dashboard Cite

show abstract

“…Thus, we planned a mixed methods study to further develop the FRP model for people with a positive family history of T2D and are, themselves, unaffected. Previously, we described beliefs about cause, genetics and inheritance for T2D among participants in this study . In this article, we characterize salience and vulnerability.…”

Section: Introductionmentioning

confidence: 91%

“…To achieve diversity and ability to conduct the cluster analysis, our goal was to enrol 30 participants in each non‐Hispanic White, non‐Hispanic Black and Hispanic groups. Although individuals from other ethnic groups were not excluded, very few people from other ethnicities lived in the study's catchment area …”

Section: Qualitative Arm: the Frp Personalization Processmentioning

confidence: 99%

All things considered, my risk for diabetes is medium: A risk personalization process of familial risk for type 2 diabetes

Daack‐Hirsch

Shah

Jones

et al. 2019

Health Expectations

Self Cite

View full text Add to dashboard Cite

Doctoral Fellow 1 | Kaitlyn Jones BSN, RN, Doctorate of Nursing Practice Student 1 | Brenda Rocha BSN, RN, CCRN, Doctorate of Nursing Practice Student 1 | Megan Doerr MS, LGC, Principal Scientist, Governance 2 | Emily Gabitzsch MS, LGC, Genetic Counselor 2 | Thad Meese BBA, MBA, Innovation Manager 2This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. AbstractBackground: A positive family history of type 2 diabetes (T2D) has been associated with risk awareness and risk-reducing behaviours among the unaffected relatives.Yet, little is known about how people with a positive family history for diabetes develop and manage their personal sense of risk.Objective: To characterize two key concepts, salience and vulnerability, within the familial risk perception (FRP) model among unaffected individuals, at increased familial risk for T2D. Design:We conducted a mixed method study. Descriptions of salience and vulnerability were collected through semi-structured interviews. Participant's perception of self-reported risk factors (family history, age, race/ethnicity, medical history, weight and exercise) was measured using the Perceived Risk Factors for T2D Tool and was compared to a clinical evaluation of the same risk factors. Results:We identified two components of salience: (a) concern for developing T2D and (b) risk awareness triggers, and two features of vulnerability: (a) statement of risk and (b) risk assessment devices. Although few participants (26%) were concordant between their perceived and clinical overall T2D risk, concordance for individual risk factors was higher, ranging from 42% (medical history) to 90% (family history). Discussion and conclusion:Both familial and non-familial events lead people to contemplate their T2D risk, even among people who have a positive family history.Participants often downplayed their overall risk and underestimated their overall risk compared to a clinical risk assessment of the same self-reported risk factors.Clinicians could leverage key components of the FRP process as way to engage patients in risk reduction strategies earlier. K E Y W O R D Smixed methods, risk perception, risk personalization process, salience, type 2 diabetes, vulnerability

show abstract

Mental models about heredity among immigrant Latinx adults with limited education from Mexico and Central America

Sandberg

Trejo

Howard

et al. 2022

Journal of Genetic Counseling

View full text Add to dashboard Cite

An understanding of genetics is becoming increasingly relevant to receiving medical care. It is important for health care providers and educators, including genetic counselors, to understand patients’ perceptions about trait transmission and their interpretation of terms used in biomedicine. Knowledge about the patient perspective about trait transmission is important when health care providers are not fluent in the patient's language. Sixty Latinx immigrant adults (30 men and 30 women) who were born in Mexico or Central America (MCA) and living in North Carolina were interviewed about their heredity beliefs. By design, most participants had limited education. Eight percent had a least a high school education; 45% had less than a seventh grade education. Semi‐structured, in‐depth interviews were conducted to examine how participants think and discuss trait transmission. The translated transcripts were systematically analyzed using a case‐based approach, supplemented by theme‐based coding. Five lay mental models of heredity were identified that varied in terms of involvement of genes. Four of the five heredity mental models encompass genes; four out of five mental models do not link DNA to heredity. The centrality of blood, whether used metaphorically or literally, varies widely across the models. One model references God and depicts that heredity involves blood and/or genes, but not DNA. The mental models of heredity for most adult immigrants with limited education do not include DNA. Trait transmission by blood appears to have a more prominent role in lay mental models held by Mexicans than Central Americans. Increased patient knowledge about genetics can facilitate shared decision‐making as genetics becomes increasingly relevant to medical care. Efforts to educate people can be most effective when we first understand the layperson's conceptions or mental models. Health care providers and educators should be aware that MCA adults with limited formal education hold diverse mental models about heredity.

show abstract

Mental Models of Cause and Inheritance for Type 2 Diabetes Among Unaffected Individuals Who Have a Positive Family History

Cited by 12 publications

References 32 publications

Type 2 diabetes familial risk personalization process profiles: Implications for patient–provider communication

Type 2 diabetes familial risk personalization process profiles: Implications for patient–provider communication

All things considered, my risk for diabetes is medium: A risk personalization process of familial risk for type 2 diabetes

Mental models about heredity among immigrant Latinx adults with limited education from Mexico and Central America

Contact Info

Product

Resources

About