Mental Health Interventions for Parent Carers of Children with Autistic Spectrum Disorder: Practice Guidelines from a Critical Interpretive Synthesis (CIS) Systematic Review

Catalano, Denise; Holloway, Linda; Mpofu, Elias

doi:10.3390/ijerph15020341

Cited by 117 publications

(84 citation statements)

References 95 publications

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“…Moreover, this study is consistent with the meta-analyses (Catalano et al, 2018;Da Paz & Wallander, 2017) that have demonstrated the role and effectiveness of group CBT and stress management dealing with parents' perspectives and emerging problem-solving skills to improve maternal mental health.…”

Section: Discussionsupporting

confidence: 89%

“…The most promising interventions included cognitive behavioral therapy (CBT), stress management skills, relaxation techniques, expressive writing, mindfulness-based stress reduction, and acceptance and commitment therapy. And in a systematic review by Catalano et al (2018) evaluated 23 studies conducted in 13 countries, including Jordan, on the use of therapeutic programs to improve the mental health of parents of children with AD, with the specific aim of identifying the basic features common to all these interventions. They reported that therapeutic interventions should encompass parental self-perspective-taking and real-time problem-solving.…”

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confidence: 99%

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The Effect of Group Counseling in Reducing Parental Stress and Depression in Jordanian Mothers of Children with Autism

Alaedein

Al-Sharaa

2020

International Journal of Education and Practice

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This study aimed to investigate the impact of a group counseling program on reducing parental stress and depression among mothers of Jordanian children with autism. A purposive sample comprising 40 mothers of children with autism was selected from three autism centers in Zarqa and Rusaifa in Jordan; these participants were then randomly assigned to either an experimental group (N = 20) or control group (N = 20). Participants were asked to complete both the Parental Stress Index-Short Form (PSI-SF; including its three sub-scales) and an amended Arabic version of the Depression, Anxiety and Stress Scale (DASS): pre-and posttest by both groups, and a six-week follow-up test by the experimental group. A CBT-based group counseling program was designed and 14 sessions were held three times per week over a four-week period. The difference between the pre-and posttest scores for the two groups revealed that the experimental group was significantly more likely to have lower levels of parental stress and depression. Furthermore, there was a significant difference in scores between the experimental group's posttest and follow-up assessment: Total Stress (Total PSI), Parental Distress (PD), and depression had all decreased significantly; Parent-Child Dysfunctional Interaction (PCDI) had also decreased, but not significantly; however, although not significantly, stress levels associated with a Difficult Child (DC) had increased. Contribution/Originality: This study confirms the findings of previous studies that CBT-based group counseling is effective in improving the well-being of mothers caring for a child with autism. However, its primary contribution is revealing that alternative, more effective strategies need to be identified for addressing both the stress associated with a difficult child and parent-child dysfunctional interactions. 1. INTRODUCTION Caregivers, especially mothers, of children with autism disorder (AD) who have complex needs often face demands that go far beyond those children with typical development: stigma, physical stress, severe financial difficulties, and ongoing social isolation (Ghunaim & Al-Smadi, 2018; Seltzer et al., 2009). Many studies agree that there is an increased rate of mental disorders among caregivers, indicated by higher feelings of stress, anxiety, and depression reported by caregivers of children with AD. In addition, caregivers reporting more problems with child behavior also revealed increased feelings of stress, anxiety, and depression (Lecavalier, Leone, & Wiltz, 2006; Lovell, Moss, & Wetherell, 2015). There is a good deal of empirical evidence, in fact, that parenting a child with AD is associated with high levels of mental health problems and a low quality of life (Da Paz & Wallander,

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Section: Discussionsupporting

confidence: 89%

mentioning

confidence: 99%

The Effect of Group Counseling in Reducing Parental Stress and Depression in Jordanian Mothers of Children with Autism

Alaedein

Al-Sharaa

2020

International Journal of Education and Practice

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“…, Catalano et al . ) and that more directed parent support is needed (Siklos and Kerns ; Smith et al . ; Cadman et al .…”

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confidence: 99%

Perceptions of social support: comparisons between fathers of children with autism spectrum disorder and fathers of children without developmental disabilities

Seymour

Giallo

Wood

2019

J intellect Disabil Res

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Background Research highlights the need for ongoing social support of mothers of children with Autism spectrum disorders (ASD). Despite recognised differences between mothers and fathers, little is known about the particular social support needs of fathers of children with ASD. Broadly, this study aimed to explore the support needs of fathers of children with ASD compared with fathers of children without a disability (W/OD) and the relation between social support, psychological distress and sociodemographic factors. Method Drawing from a large, nationally representative community sample of children, 159 fathers of children with ASD were identified, where 6578 fathers of children W/OD were used as a comparison sample. Results Over 70% of fathers of children with ASD reported that support was inaccessible and were significantly more likely to report so compared with fathers of children W/OD. Emotional/informational social support was the strongest social support domain associated with fathers' experiences of psychological distress. Conclusions This study provided important insight into the social support needs of fathers of children with ASD.Complete case data presented, fathers of children with ASD n = 115 and fathers of children W/OD n = 4791.

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“…Similar to other research, levels of parental stress were elevated compared to population expectations for the United Kingdom. The mental well-being of parents of children with ASD has been highlighted as an important area of research [Catalano, Holloway, & Mpofu, 2018] and numerous interventions have been evaluated [Da Paz & Wallander, 2017]. The data from the current trial suggest that, in future studies, parental well-being outcomes should be assessed among the outcomes and/or examined as moderators of intervention effectiveness.…”

Section: Discussionmentioning

confidence: 94%

The Incredible Years Autism Spectrum and Language Delays Parent Program: A Pragmatic, Feasibility Randomized Controlled Trial

2020

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Behavior problems in children with autism spectrum disorders (ASD) are common and particularly stressful for parents. This study aimed to examine the feasibility of delivering a parenting program in existing services, and the feasibility of conducting a future large‐scale Randomized Controlled Trial evaluation of the effectiveness of the intervention. Parents of children aged 3–8 years with a diagnosis of ASD, or strongly suspected ASD were eligible to participate. A multicenter, pragmatic, feasibility randomized controlled trial was conducted in four specialist children's services in Wales. Families were randomly assigned to receive the Incredible Years® Autism Spectrum and Language Delays (IY‐ASLD) parent program immediately or to a wait‐list, treatment as usual control condition. IY‐ASLD sessions were delivered once a week for 12 weeks. The primary outcomes related to feasibility (recruitment, retention, fidelity, and acceptability). Preliminary outcome analyses were conducted using covariance models controlling for study site and baseline scores. From October 5 to December 19, 2016, 58 families were randomized, 29 to IY‐ASLD and 29 to control. Three parents did not attend any sessions while 19 (73%) completed the program. Fidelity of delivery was high (88%), as was satisfaction with the program. Fifty‐three (91%) completed the follow‐up measures. All 95% CIs for effect sizes included zero in exploratory outcome analyses. This study supports the feasibility of delivering the IY‐ASLD in existing services with good levels of acceptability and fidelity evident. A larger randomized controlled trial is required to examine the effectiveness of the program. Autism Res 2020, 13: 1011‐1022. © 2020 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary This study examined the feasibility and acceptability of delivering a parenting program for parents of children aged 3–8 years with Autism Spectrum Disorder in existing child services. Recruitment and retention in the study were good and parents rated all aspects of the program positively. Practitioners were able to deliver the program as intended and the measures used for program outcomes were appropriate. A larger study to examine program effectiveness would be feasible.

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Mental Health Interventions for Parent Carers of Children with Autistic Spectrum Disorder: Practice Guidelines from a Critical Interpretive Synthesis (CIS) Systematic Review

Cited by 117 publications

References 95 publications

The Effect of Group Counseling in Reducing Parental Stress and Depression in Jordanian Mothers of Children with Autism

The Effect of Group Counseling in Reducing Parental Stress and Depression in Jordanian Mothers of Children with Autism

Perceptions of social support: comparisons between fathers of children with autism spectrum disorder and fathers of children without developmental disabilities

The Incredible Years Autism Spectrum and Language Delays Parent Program: A Pragmatic, Feasibility Randomized Controlled Trial

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