Mental Capacity Act (Northern Ireland) 2016

Lynch, Gerard; Taggart, Catherine; Campbell, Philip

doi:10.1192/pb.bp.117.056945

Cited by 21 publications

(7 citation statements)

References 4 publications

(4 reference statements)

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“…Involving people with dementia in research evokes concern around consent and capacity. Following the lead of the Bamford review on mental health and the Mental Capacity Act (2005) in England and Wales, the Mental Capacity (Northern Ireland) Act 2016 advocates for capacity to be presumed, including in research practices, unless otherwise directed (Harper, Davidson, & McClelland, ; Lynch, Taggart, & Campbell, ). Participants’ capability to take part in the study was observed in a number of ways.…”

Section: Methodsmentioning

confidence: 99%

“…Second, group members demonstrated capacity in terms of independently travelling to and from the group and involving themselves in the group's decision making processes. Finally, following guidance from the functional test for capacity, group members were able to understand the research task, could retain this information and were able to weigh up the importance of this before making a decision (Lynch et al, ). In this study, all those taking part gave written consent.…”

Section: Methodsmentioning

confidence: 99%

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What next? Experiences of social support and signposting after a diagnosis of dementia

Hagan

2020

Health Soc Care Community

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The experience of being diagnosed with dementia can be shocking. This may be compounded if individuals feel that there is a lack of signposting onto further avenues of support following diagnosis. This study, then, examines how social support is promoted in the diagnostic process. Using purposive sampling and a grounded theory approach, semi‐structured interviews were conducted with 13 members of a dementia empowerment group in Northern Ireland, discussing both their experience of diagnosis and also their subsequent group membership. Respondents reported both positive and negative experiences of diagnosis. Feelings of shock and bewilderment accompanied this process. Only one was able to identify a direct link between a medical professional and referral to the empowerment group, others being referred by other health professionals or dementia navigators. The study indicates that, due to disorienting feelings, one diagnostic consultation is insufficient to explain both the diagnosis and offer follow‐up support. Therefore, more explicit links to navigators or other services need to be made at the point of diagnosis to prioritise information regarding opportunities for social engagement for those being diagnosed.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

What next? Experiences of social support and signposting after a diagnosis of dementia

Hagan

2020

Health Soc Care Community

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“…Consequently, fusion legislation reduces the stigmatization of mental health conditions and discourages the overuse of substitute decision-making for people with health limitations. However, a person’s best interests may still be determined by a substitute 29 …”

Section: A Rights-based Approach To Decision-makingmentioning

confidence: 99%

An end to coercion: rights and decision-making in mental health care

Sugiura

Mahomed

Saxena

et al. 2019

Bull. World Health Organ.

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The United Nations Convention on the Rights of Persons with Disabilities requires a paradigm shift from a medical model of disability to a social model that emphasizes overcoming the barriers to equality created by attitudes, laws, government policies and the social, economic and political environment. The approach adopted by the social model recognizes that people with psychosocial disabilities have the same right to take decisions and make choices as other people, particularly regarding treatment, and have the right to equal recognition before the law. Consequently, direct or supported decision-making should be the norm and there should be no substitute decision-making. Although recent mental health laws in some countries have attempted to realize a rights-based approach to decision-making by reducing coercion, implementing the Convention on the Rights of Persons with Disabilities can be challenging because it requires continuous refinement and the development of alternatives to coercion. This article reviews the impact historical trends and current mental health frameworks have had on the rights affected by the practice of involuntary treatment and describes some legal and organizational initiatives that have been undertaken to promote noncoercive services and supported decision-making. The evidence and examples presented could provide the foundation for developing a context-appropriate approach to implementing supported decision-making in mental health care.

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“…After many years of development, the Mental Capacity Act (Northern Ireland) gained Royal Assent in May 2016 (Lynch, Taggart, & Campbell, ). It will encourage a less paternalistic and more person‐centered approach to decision making so that everyone's wishes are respected, as far as possible.…”

Section: Resultsmentioning

confidence: 99%

International reflections on caring for people with advanced dementia

Yumoto

Kernohan

Morioka

et al. 2018

Public Health Nursing

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Dementia is causing global concern with its massive impacts on affected individuals, families, society, and national economies. As the disease progresses, patients' needs increase in number, depth, and breadth, covering physical, psychological, social, and spiritual domains. Care varies from place to place, from country to country and from east to west. To learn from some of these variations, we explored advanced dementia care in United Kingdom and Japan. Informed by an overview of literature on care of people with advanced dementia, we reflected on direct nonparticipant observations of care in urban areas of Northern Ireland and Japan. While we identified a common purpose to address the complex needs of people living with dementia, there were differences in the approach to care. Broadly, dementia care in United Kingdom tends toward person-centered care with a strong interest in Advance Care Planning as part of a palliative care approach. In Japan, we found less evidence of early stage palliative care and more of family-based decision making to inform care of older people. In both countries, dementia care varies regionally, being more available in some areas than others. International knowledge exchange and further comparative studies will help to improve care for people with advanced dementia, everywhere. K E Y W O R D Scross-cultural comparison, dementia, Japan, northern Ireland, palliative care

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Mental Capacity Act (Northern Ireland) 2016

Cited by 21 publications

References 4 publications

What next? Experiences of social support and signposting after a diagnosis of dementia

What next? Experiences of social support and signposting after a diagnosis of dementia

An end to coercion: rights and decision-making in mental health care

International reflections on caring for people with advanced dementia

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