Men on the margin: A Bourdieusian examination of living into adulthood with muscular dystrophy

Gibson, Barbara E.; Young, Nancy L.; Upshur, Ross; McKeever, Patricia

doi:10.1016/j.socscimed.2007.03.043

Cited by 69 publications

(74 citation statements)

References 16 publications

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“…At stake in a field is the accumulation of capitals: they are both the process within, and product of a field (Gibson et al, 2007). Generally, the term "capital" is associated with financial and economic interactions.…”

Section: Capitalmentioning

confidence: 99%

“…Epidemiologists and researchers in the health science field have long studied these relationships, which were brought to the foreground by Bourdieu, as they attempt to make links between disease and social circumstances (Frohlich et al 2001). More recently, work by Gibson et al (2007) has drawn on Bourdieu's theory to explore the identities and social positioning of men with Duchenne muscular dystrophy. The team highlighted that study participants have been marginalized through the inaccessibility of their built environment, various arrangements that make it difficult for them to socialize, and reactions of other people based on their visible difference.…”

Section: Current Uses Of Habitus Field and Capital In Health Sciencesmentioning

confidence: 99%

“…Fields are fairly independent structures such as the healthcare system, the education system or families that have their own rules of understanding (Gibson et al, 2007). Fields are composed by the juxtaposition of social positions, that is, the mutual exclusion or distinction of persons or groups from each other (Gibson et al, 2007).…”

Section: Chapter Summarymentioning

confidence: 99%

“…Fields are composed by the juxtaposition of social positions, that is, the mutual exclusion or distinction of persons or groups from each other (Gibson et al, 2007). Fields are competitive, with various social agents, using differing strategies to maintain or improve their position.…”

Section: Chapter Summarymentioning

confidence: 99%

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The New Normal: A Bourdieusian Examination of Living Into Young Adulthood Being a Paediatric Heart Transplant Recipient

Mauthner

Angus

Gastaldo

et al. 2014

The Journal of Heart and Lung Transplantation

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Improved success of paediatric cardiac transplantation has resulted in increased survival of recipients into young adulthood (19 to 29 years of age). Young adults who received a heart transplant during childhood have experienced multiple life sustaining procedures. As survival and longevity increase, it is clear that transplant recipients experience negative physiological, psychological and social sequelae. With heart transplant offering individuals a chance to extend life into young adulthood, recipients need lifelong care and at age 18 they will transition from paediatric to adult healthcare facilities. The study addressed young adults circumstances of existence and their competing interests within various social environments. This research project applied Pierre Bourdieu's theoretical concepts of habitus, field and capital, to conceptualize and engage with empirical knowledge production about young adults who have received a heart transplant during childhood. Using visual methodology, focused open-ended interviews were conducted with 12 young adults who had a heart transplant during childhood. Bourdieu's work iii provided a theoretical framework to investigate transplant recipients' identities and social repositioning in relation to dominant discourses of organ transplant and shifting relationships with health services providers. This study involved an iterative process to identify recipients' encounters and new compositions in relation with others, in order to answer the research objective. These findings highlight that young adult transplant recipients struggle with relational dispositions that excludes them from various fields of social engagement; their struggle and exclusion from various fields is symbolic and is embedded in the structure of the dominant social order of the field from where they become excluded; the social order is taken up and embodied, leading young transplant recipients to practices of accommodation and "normalization". Changes

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Section: Capitalmentioning

confidence: 99%

Section: Current Uses Of Habitus Field and Capital In Health Sciencesmentioning

confidence: 99%

Section: Chapter Summarymentioning

confidence: 99%

Section: Chapter Summarymentioning

confidence: 99%

See 2 more Smart Citations

The New Normal: A Bourdieusian Examination of Living Into Young Adulthood Being a Paediatric Heart Transplant Recipient

Mauthner

Angus

Gastaldo

et al. 2014

The Journal of Heart and Lung Transplantation

View full text Add to dashboard Cite

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“…In trying to address this and do more to integrate social determinants into research on men and health, some gender masculinities and health researchers have begun to turn to Bourdieu to help bridge the gap between culturally determined, individualistic approaches and structural, socioeconomic-focused explanations and to help identify possible ways forward for improving the health of men (Robertson, 2007, Lohan, 2007, Gibson, 2007. At the moment such work has been tentative.…”

Section: Introductionmentioning

confidence: 99%

Challenging the field: Bourdieu and men’s health

Robinson

Robertson

2014

Soc Theory Health

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This paper considers how understandings of health promotion with men may be assisted by engagement with Bourdieu's theoretical work. The paper outlines leading concepts within Bourdieu's work on 'field' 'habitus' and 'capital', considers subsequent critical debates among gender, feminist and sociological theorists around structure and agency, and links these to discussions within men's health. A particular focus concerns structural disruption of, and movement of social actors between, 'fields' such as family, work and leisure settings. The paper examines, through Bourdieu's critical legacy, whether such disruption establishes conditions for transformative reflexivity among men in relation to previously held dispositions (habitus), including those inflected by masculinities, that affect men's health practices. Recent work within Bourdieu's heritage potentially facilitates a re-framing of understandings of men's health practices. The paper specifically explores masculine ambivalence within accounts of reflexivity, identities, and practice, and considers how social and symbolic ('masculine') capital are in play. Implications of Bourdieu's leading concepts for theorising settings-focused approaches to men's health promotion are exemplified with reference to a men's health project in a football stadium leisure setting. The paper considers benefits and challenges of applying gendered critical insights drawing on Bourdieu's work to men's health promotion, and discusses emerging theoretical dilemmas. words

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Therapeutic Misconception: Hope, Trust and Misconception in Paediatric Research

2012

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Although the therapeutic misconception (TM) has been well described over a period of approximately 20 years, there has been disagreement about its implications for informed consent to research. In this paper we review some of the history and debate over the ethical implications of TM but also bring a new perspective to those debates. Drawing upon our experience of working in the context of translational research for rare childhood diseases such as Duchenne muscular dystrophy, we consider the ethical and legal implications of the TM for parental consent to research. In this situation, it is potentially the parent who is vulnerable to TM. In our analysis we not only consider the context of informed consent for research but also the wider environment in which the value of research is promoted, more broadly through the media but also more specifically through the communication strategies of patient organizations. All dissemination about developments in research for health runs the risk of portraying an overly optimistic view of the promise of biotechnological solutions and has the potential to encourage a 'collective' TM. In this paper we consider the challenge that TM presents to parents as well as explore the ethical and legal responsibilities of researchers to ensure an appropriately informed consent: compatible with a hopeful disposition of parents who consent for the their children whilst avoiding a blind and misleading optimism.

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Men on the margin: A Bourdieusian examination of living into adulthood with muscular dystrophy

Cited by 69 publications

References 16 publications

The New Normal: A Bourdieusian Examination of Living Into Young Adulthood Being a Paediatric Heart Transplant Recipient

The New Normal: A Bourdieusian Examination of Living Into Young Adulthood Being a Paediatric Heart Transplant Recipient

Challenging the field: Bourdieu and men’s health

Therapeutic Misconception: Hope, Trust and Misconception in Paediatric Research

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