Meeting the needs of people with cancer for support and self-management

Turton, P; Cooke, Helen

doi:10.1054/ctnm.2000.0487

Cited by 34 publications

(23 citation statements)

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“…the tendency to attribute event outcomes to one's own control 25 ) and a desire to be an active participant in treatment decisions 18,[26][27][28][29] . In addition, for some patients, CAM therapies may also provide the hope and optimism required to cope with the cancer journey 18,30 .…”

Section: S26mentioning

confidence: 99%

Patient Decision-Making about Complementary and Alternative Medicine in Cancer Management: Context and Process

2008

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ObjectiveIn this paper, we set out to describe the personal and social contexts of treatment decisions made by cancer patients concerning complementary and alternative medicine (CAM) and also the process through which cancer patients reach CAM decisions throughout the cancer trajectory. MethodsWe selected and reviewed a variety of CAM decisionmaking models published in the past 10 years within the Canadian health literature. ResultsThe CAM decision-making process is influenced by a variety of sociodemographic, disease-related, psychological, and social factors. We reviewed four main phases of the CAM decision-making process:• Taking stock of treatment options • Gathering and evaluating CAM information • Making CAM decisions • Revisiting the CAM decision Immediately following diagnosis, cancer patients become interested in taking stock of the full spectrum of conventional and CAM treatment options that may enhance the effectiveness of their treatment and mediate potential side effects. Information about CAM is then gathered from numerous information sources that vary in terms of credibility and scientific legitimacy, and is evaluated. When making a decision regarding CAM options, patients attempt to make sense of the diverse information obtained, while acknowledging their beliefs and values. The CAM decision is often revisited at key milestones, such as the end of conventional treatment and when additional information about disease, prognosis, and treatment is obtained. ConclusionsThe CAM decision-making process is a dynamic and iterative process that is influenced by a complex array of personal and social factors. Oncology health professionals need to be prepared to offer decision support related to CAM throughout the cancer trajectory.

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Section: S26mentioning

confidence: 99%

Patient Decision-Making about Complementary and Alternative Medicine in Cancer Management: Context and Process

2008

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“…Undoubtedly, informed by patients' expressed desire for a more holistic and patient-centred approach (Fitch, 2005;Kendall et al, 2006;Liu et al, 2006, Turton & Cooke, 2000, the Institute of Medicine (IOM) (2007) issued a report designed to address the needs of the "whole" person with cancer. According to the report, all cancer care should enable the provision of appropriate psychosocial support by facilitating effective communication between patients and health professionals and by identifying each patient's psychosocial health needs.…”

Section: Discussionmentioning

confidence: 99%

The Role of CAM (Complementary and Alternative Medicine): The Different Perspectives of Patients, Oncology Professionals and CAM Practitioners

Fox¹,

Butler²,

Coughl³

2012

A Compendium of Essays on Alternative Therapy

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“…However, it can be described and analyzed at individual, organizational, or community levels (Tveiten and Knutsen, 2011). Patient empowerment is often discussed in relation to chronic or long-term diseases, such as diabetes (Anderson et al, 1995;Funnell et al, 1991) or cancer (Bulsara et al, 2004;Davison, 1997;Turton and Cooke, 2000). It is also described in relation to other areas, such as weight loss (Fox et al, 2005b;Leske et al, 2012).…”

Section: Patient-centered Carementioning

confidence: 99%

Patient Involvement : A Service Perspective

Snyder¹

2014

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For a long time, patients were seen as weak and passive recipients of care, whose only role was to provide information and comply with doctors' orders. This is beginning to change, and patients are more seen as autonomous, active, and involved collaborators in care, co-creating value with service providers and others. In parallel, the healthcare sector is changing due to an aging population, advances in technology, medical knowhow, and the prevalence of chronic diseases, which all call for a more involved patient. During the last decade, patient involvement in healthcare has been recognized as important to provide more efficient, integrated, patient-focused healthcare. Despite this recent gain in attention, there is a gap between rhetoric's and practice, since the meaning and benefits of patient involvement are unclear both in theory and practice. This thesis takes an alternate perspective on patient involvement, departing from service theory on value creation and customer involvement. It aims to understand and explore patient involvement and how patients can be involved in both the use, and development, of healthcare services.This thesis is based on three different studies using both qualitative and quantitative research methods. The first study is a systematic literature review of healthcare research, addressing the topic of patient involvement and related concepts. Based on a total of 125 reviewed empirical articles, this study serves as an introduction and orientation to the diverse field. It aims to contribute to the knowledge base in the growing research field of patient involvement. The second study addresses and explores lead-user theory as a method to identify highly innovative patients who can be suitable for involvement in healthcare development. The third study explores how patients, depending on disease, care process and context, can take different roles in healthcare development.The results indicate that patient involvement is not an isolated activity but influences the whole healthcare system. This extends the view of patient involvement from just decision-making and isolated encounters to patients potentially being substantially involved in all aspects of healthcare. This is also important in involvement in use. The patient's individual experiences, context, and type of illness play an important role in development initiatives. Patients should be selected carefully, for involvement in healthcare development, depending on the goal of the initiative. The type of illness and the patient's context are key factors to the kind of contributions patients can make. Depending on the type of illness, and if it shows up mostly at home or at the care provider's, patients develop different contributions.This thesis contributes to understanding patient involvement by taking a service perspective on co-creation and customer involvement. This approach to patient involvement extends the traditional view by proposing that patients should be involved in all stages of healthcare. Understanding how individuals...

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Meeting the needs of people with cancer for support and self-management

Cited by 34 publications

References 5 publications

Patient Decision-Making about Complementary and Alternative Medicine in Cancer Management: Context and Process

Patient Decision-Making about Complementary and Alternative Medicine in Cancer Management: Context and Process

The Role of CAM (Complementary and Alternative Medicine): The Different Perspectives of Patients, Oncology Professionals and CAM Practitioners

Patient Involvement : A Service Perspective

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