Meeting the mental and physical healthcare needs of carers

Cormac, Irene; Tihanyi, P.

doi:10.1192/apt.12.3.162

Cited by 27 publications

(42 citation statements)

References 30 publications

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“…Confirming findings of other researchers (Cormac & Tihanyi 2006), problematic patient behaviors triggered stress reactions in family care-givers who felt a greater need for services to relieve the situation.…”

Section: Discussionsupporting

confidence: 84%

“…Under such conditions, caring for a loved one can have detrimental effects on the family care-givers’ physical and mental well-being (Schulz & Sherwood 2008). Multiple studies from North America, Europe and Asia have shown that their duties may increase their physical and psychological morbidity (Cormac & Tihanyi 2006, Pinquart & Sörensen 2003, Schulz & Sherwood 2008). While living with a family member with urgent health needs, family care-givers in privatized health care systems like the one in the United States are at a high risk of not being able to access the services they need (Chaix et al 2006).…”

Section: Introductionmentioning

confidence: 99%

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Resource need and use of multiethnic caregivers of elders in their homes

Friedemann

Newman

Buckwalter

et al. 2013

Journal of Advanced Nursing

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Aims To predict South Florida family care-givers’ need for and use of informal help or formal services; specifically, to explore the predictive power of variables suggested by the Caregiver Identity Theory and the literature and develop and test a structural model 0. Background In the USA, most of the care to older adults is given by family members. Care-givers make economic and social sacrifices that endanger their health. They feel burdened, if they receive no assistance with their tasks; however, services available are not sufficiently used. Design This cross-sectional correlational study was a survey of family care-givers in their home, using standardized and/or pre-tested scales and a cognitive status test of their patients. Methods A random sample of 613 multiethnic care-givers of frail elders was recruited in home care and community agencies. The interviews occurred between 2006–2009. Analyses involved correlation and regression analyses and structural equation modeling. Outcome measures were need and use of family help and formal services. Results/Findings The model yielded excellent fit indices replicated on three random samples of 370. The patients’ functional limitations yielded the strongest predictive coefficients followed by care-giver stress. Cultural indicators played a minor role. Conclusion The lack of a link between resource need and use suggested access barriers. Important for policy makers and service providers are the delivery of high-quality services and the use of a personal and individualized approach with all ethnicities. Quality service includes understanding the care-giving situations and requires a trusting relationship with family care-givers.

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Section: Discussionsupporting

confidence: 84%

Section: Introductionmentioning

confidence: 99%

Resource need and use of multiethnic caregivers of elders in their homes

Friedemann

Newman

Buckwalter

et al. 2013

Journal of Advanced Nursing

View full text Add to dashboard Cite

show abstract

“…The distressing nature of caring for people with severe mental illness will likely produce elevated levels of anguish in family carers. Previous studies have consistently found that family carers experience higher levels of stress and illness than the general population (Cormac & Tihanyi, ; Hayes et al., ; Oyebode, ). As the findings of this study indicate, family carers will probably experience continual distress as medication typically did not entirely reduce illness symptoms.…”

Section: Discussionmentioning

confidence: 94%

Experiences of Family Carers for Persons Using Antipsychotic Medication

Morrison

Stomski

2017

ANZ J of Family Therapy

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Given the emphasis on the use of antipsychotic medication for severe mental illness, it is important to understand family carers’ perspectives on these medications and their effects on consumers’ lives. Such information may enable providers of family interventions to better understand families’ circumstances and more effectively support them in caring for mental health service users. Snowball sampling was used to recruit 29 family carers. Family carers acknowledged the calming effect of antipsychotic medication on service users, but also noted that there were few other therapeutic benefits. Moreover, the positive influence of antipsychotic medication was in most cases largely offset by the detrimental impact of antipsychotic medication on service users’ quality of life. The family carers in rationalising the trade‐off between beneficial and adverse antipsychotic medication effects typically experienced resignation, which was often accompanied by a sense of frustration that resulted from the reliance on medication.

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“…Participants respected the need for confidentiality; however, they felt more could be done to share information, respect their views, and to foster a collaborative partnership between the family and the professionals. However, the lack of perceived progress in this area despite UK government guidance (Department of Health, ; Health Offender Partnerships ) and previous research (Cormac & Tihanyi ; Drapalski et al . ; McCann et al .…”

Section: Discussionmentioning

confidence: 99%

Taking parents seriously: The experiences of parents with a son or daughter in adult medium secure forensic mental health care

Finlay-Carruthers

Davies

Ferguson³

et al. 2018

Int J Mental Health Nurs

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Adult forensic mental health services provide care and treatment to individuals with complex offending and mental health histories. However, little attention has been paid to the parents of those receiving care within them. This research explored the experiences of parents with an adult son or daughter with mental illness in a medium secure mental health unit. Transcripts from semi-structured interviews were analysed using interpretative phenomenological analysis. This led to the identification of three superordinate themes: 'Something's not right'-onset of mental distress; 'It's a terrible battle'-relating with professionals; and 'A very sad fact of life'-caring with no end in sight were identified which together contained nine subordinate themes. The onset of the mental distress was narrated as overwhelming, frightening, and confusing with experiences of violence. Services were seen as invalidating, and interactions with them characterized as a battle. Poor information and involvement were a common experience. Whilst diagnosis was a relief to some, the ongoing sense of loss and burden were clear. Staying connected and hopes for the future were also described. It is clear from this study that mental health services need to do more to engage and foster trust with parents from the outset and to offer support for this group. If secure services were to view parents as 'forensic carers', this may help improve respect and engagement between services and carers. Services and policymakers should strive to foster high-quality family involvement as part of developing social inclusion.

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Meeting the mental and physical healthcare needs of carers

Cited by 27 publications

References 30 publications

Resource need and use of multiethnic caregivers of elders in their homes

Resource need and use of multiethnic caregivers of elders in their homes

Experiences of Family Carers for Persons Using Antipsychotic Medication

Taking parents seriously: The experiences of parents with a son or daughter in adult medium secure forensic mental health care

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