Meeting stroke survivors’ perceived needs: a qualitative study of a community-based exercise and education scheme

Reed, Mary; Harrington, R.; Duggan, Áine; Wood, V A

doi:10.1177/0269215509347433

Cited by 92 publications

(110 citation statements)

References 23 publications

(35 reference statements)

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“…Psychological services and support system topped the list of needed yet unavailable services which was consistent with findings from previous studies in other countries [34,35]. Since this finding was reported by an overwhelming percentage of the patients to be hindering, the claimed "client-centered" approach by Jordanian rehabilitation therapists have to be reevaluated.…”

Section: Discussionsupporting

confidence: 87%

Environment and the Daily Functioning of Jordanian Patients with Stroke: An Exploratory Study

R¹

2015

Int J Phys Med Rehabil

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Purpose: Environment as described in the ICF can significantly affect the daily functioning of patients with longterm disabilities such as stroke. The purpose of this study is to explore barriers in the environment surrounding Jordanian patients with stroke. Methods:A sample of 116 patients with stroke was recruited. A questionnaire listing the environmental factors as described in the ICF was used to explore patients' perception on the level of hinderness each factor imposes on their daily functioning. Patients were also asked to report the availability of necessary services they need in rehabilitation. Additionally, correlations were explored between patients' demographic and illness-related characteristics. Results:External environmental factors such as sidewalks, other drivers, and noise in public places were perceived by the patients as hindering to daily functioning. Psychological services were reported to be provided the least in rehabilitation. Moderate but significant correlations were found between patients' perceived level of independence and patient's level of participation(r=0.56, p<0.000), as well as use of assistive devices (r=0.51, p<0.000). Conclusions:Exploring the effect of environmental factors on the daily functioning of patients with stroke is important when planning intervention. Special attention must be given to the effect of external environmental factors where patients have minimal control over the surroundings.

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Section: Discussionsupporting

confidence: 87%

Environment and the Daily Functioning of Jordanian Patients with Stroke: An Exploratory Study

R¹

2015

Int J Phys Med Rehabil

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“…It is important to note that many of the psychological and social benefits known to result from other support groups-including general stroke support groups (e.g., receiving information, building coping skills and strategies (Shadden, 1988), feeling understood, receiving practical advice (Ch'Ng, French, & Mclean, 2008), developing a sense of purpose, and improved confidence (Reed, Harrington, Duggan, & Wood, 2010))-mirror benefits associated with groups that are aphasia-specific. However, aphasia brings with it additional and unique needs.…”

Section: Applications To Practice: Creating Potent Cagsmentioning

confidence: 99%

Consumer perspectives on community aphasia groups: a narrative literature review in the context of psychological well-being

et al. 2015

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Background: Community aphasia groups (CAGs) for people living with chronic aphasia are known to be efficacious for improving various aspects of communication and psychological functioning based on empirical quantitative evidence. However, the specific mechanisms and processes involved are not well understood and only a small number of groups exist. Further, there is a paucity of evidence on this topic from consumers, potentially limiting the development and uptake of these services. In order to proliferate and maintain groups of high quality, a deeper understanding of the potential mechanisms of positive outcomes is required. Aims: The aim of this study was to investigate consumer (people with aphasia (PWA) and family member) experiences of CAGs within the qualitative literature in relation to the theoretical construct of psychological well-being. Methods & Procedures: An extensive review of qualitative research relating to consumer views of CAGs was conducted in a systematic fashion. Study quality was evaluated using the Critical Appraisal Skills Programme, and content was interpreted in the context of a theoretical model for psychological well-being. Outcomes & Results:Eleven key studies and 35 secondary studies were found to include consumer perspectives of CAGs. The findings of the 11 key studies are presented as a narrative literature review. Overall, evidence suggests CAGs contribute positively to the psychological well-being of PWA and their caregivers. Outcomes relate to forming positive relations with others, purpose in life, environmental mastery, autonomy, personal growth, and self-acceptance. CAG characteristics and mechanisms proposed to mediate psychological well-being are discussed. However, the review is limited by a range of methodological issues in the literature. Conclusions: In order to optimise CAGs in practice, clinicians should consider group characteristics and aim to manipulate the possible mechanisms underlying positive outcomes. Further research is needed to understand the long-term lived experience of CAGs members, including those currently under-represented in the literature.

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“…Established NGOs can play a positive role in the provision of support. In a phenomenological study with 12 stroke survivors, conducted by Reed et al 28 in England, it was found that support groups provide stroke survivors with exercise, peer interaction, a social support network and information.…”

Section: Discussionmentioning

confidence: 99%

Stroke management and functional outcomes of stroke survivors in an urban Western Cape Province setting

Cawood¹,

Visagie

2016

S. Afr. j. occup. ther

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Meeting stroke survivors’ perceived needs: a qualitative study of a community-based exercise and education scheme

Cited by 92 publications

References 23 publications

Environment and the Daily Functioning of Jordanian Patients with Stroke: An Exploratory Study

Environment and the Daily Functioning of Jordanian Patients with Stroke: An Exploratory Study

Consumer perspectives on community aphasia groups: a narrative literature review in the context of psychological well-being

Stroke management and functional outcomes of stroke survivors in an urban Western Cape Province setting

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