Medical traumatic stress in cystic fibrosis: A qualitative analysis

Cuneo, Addison A.; Outram, Simon; Marsac, Meghan L.; Vendlinski, Siena S; Heyman, Melvin B.; Ly, Ngoc P.; Scheven, Emily von; Perito, Emily R.

doi:10.1016/j.jcf.2022.12.008

Cited by 4 publications

(5 citation statements)

References 21 publications

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“…While highly effective modulator therapies may decrease the frequency and severity of medical care, PwCF have identified these therapies as an additional source of potentially traumatic experiences [4]. New potentially traumatic medical experiences in modulator-eligible PwCF can include lost sense of purpose as their identity shifts from a "sick" person to a "well" person; survivor guilt from benefiting from therapies not available to others; and financial distress as they face planning for a longer than anticipated life expectancy [4]. The challenge of navigating the healthcare system, such as advocating with care teams and insurance companies, has been identified as potentially traumatic by PwCF, particularly those who are modulatorineligible [4].…”

mentioning

confidence: 99%

“…New potentially traumatic medical experiences in modulator-eligible PwCF can include lost sense of purpose as their identity shifts from a "sick" person to a "well" person; survivor guilt from benefiting from therapies not available to others; and financial distress as they face planning for a longer than anticipated life expectancy [4]. The challenge of navigating the healthcare system, such as advocating with care teams and insurance companies, has been identified as potentially traumatic by PwCF, particularly those who are modulatorineligible [4].…”

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confidence: 99%

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Opportunities for Trauma-Informed Medical Care in Cystic Fibrosis

Cuneo,

Smith-Thomas,

Marsac

2024

Preprint

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Opportunities for Trauma-Informed Medical Care in Cystic FibrosisTo the Editor:People living with Cystic Fibrosis (PwCF) face a lifetime of potentially traumatic medical experiences. These experiences can range from invasive medical treatments (e.g. venipuncture, nasogastric tube placement) to daily illness-related events (e.g. illness related bullying). These experiences place PwCF at high risk for a type of posttraumatic stress called Medical Traumatic Stress (MTS) [1]. With the growing recognition of the high prevalence and impact of MTS, we anticipate that cystic fibrosis care teams may soon be tasked with integrating trauma-informed medical care into their clinical practices. CF care teams are well poised to prevent and screen for MTS because they 1) create the environment for many illness-related experiences; 2) have established workflows for mental health screening; and, in many cases, 3) have trusting relationships with PwCF and their families. Here, we seek to highlight the opportunities for implementing trauma-informed medical care within the cystic fibrosis-specific context.

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confidence: 99%

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confidence: 99%

Opportunities for Trauma-Informed Medical Care in Cystic Fibrosis

Cuneo,

Smith-Thomas,

Marsac

2024

Preprint

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“…3 While highly effective modulator therapies may decrease the frequency and severity of medical care, PwCF have identified these therapies as an additional source of potentially traumatic experiences. 4 New potentially traumatic medical experiences in modulator-eligible PwCF can include lost sense of purpose as their identity shifts from a "sick" person to a "well" person; survivor guilt from benefiting from therapies not available to others; and financial distress as they face planning for a longer than anticipated life expectancy. 4 The challenge of navigating the healthcare system, such as advocating with care teams and insurance companies, has been identified as potentially traumatic by PwCF, particularly those who are modulator-ineligible.…”

mentioning

confidence: 99%

“…4 New potentially traumatic medical experiences in modulator-eligible PwCF can include lost sense of purpose as their identity shifts from a "sick" person to a "well" person; survivor guilt from benefiting from therapies not available to others; and financial distress as they face planning for a longer than anticipated life expectancy. 4 The challenge of navigating the healthcare system, such as advocating with care teams and insurance companies, has been identified as potentially traumatic by PwCF, particularly those who are modulator-ineligible. 4 A trauma-informed approach to medical care may be helpful for cystic fibrosis care teams to mitigate MTS.…”

mentioning

confidence: 99%

“…4 The challenge of navigating the healthcare system, such as advocating with care teams and insurance companies, has been identified as potentially traumatic by PwCF, particularly those who are modulator-ineligible. 4 A trauma-informed approach to medical care may be helpful for cystic fibrosis care teams to mitigate MTS. The Pediatric Psychosocial Preventive Health Model (PPPHM) provides a framework for tiered implementation of trauma-informed medical care.…”

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confidence: 99%

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Opportunities for trauma‐informed medical care in cystic fibrosis

Cuneo,

Smith‐Thomas,

Marsac

2024

Pediatric Pulmonology

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People living with cystic fibrosis (PwCF) face a lifetime of potentially traumatic medical experiences. These experiences can range from invasive medical treatments (e.g., venipuncture and nasogastric tube placement) to daily illness-related events (e.g., illness-related bullying). These experiences place PwCF at high risk for a type of posttraumatic stress called medical traumatic stress (MTS). 1 With the growing recognition of the high prevalence and impact of MTS, we anticipate that cystic fibrosis care teams may soon be tasked with integrating trauma-informed medical care into their clinical practices.CF care teams are well poised to prevent and screen for MTS because they (1) create the environment for many illness-related experiences; (2) have established workflows for mental health screening; and, in many cases, (3) have trusting relationships with

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Medical traumatic stress: Integrating evidence‐based clinical applications from health and trauma psychology

McBain,

Cordova

2024

Journal of Traumatic Stress

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Medical events in both childhood and adulthood, including components of the illness or injury and subsequent medical intervention, recovery, and disability, are increasingly being recognized as potentially traumatic. There has been an increased focus on scholarly work related to medical trauma and medically induced posttraumatic stress disorder (PTSD). Existing evidence suggests that trauma‐focused treatment can promote both physical and psychological recovery. However, there continues to be a dearth of clinical guidance on how to (a) best identify and treat prior trauma exposure that complicates adjustment to illness and increases the risk for medically induced PTSD and (b) address medically induced PTSD while concurrently targeting health‐related concerns (e.g., pain, adjustment to illness, acquired disability) that may negatively impact recovery. Originally presented as a premeeting institute at the 2023 Annual Meeting of the International Society for Traumatic Stress Studies, this paper describes the biopsychosocial impacts of medical trauma on adults and considerations for assessment and intervention in both traditional trauma and integrated care settings. This includes clinical applications, including assessment, case conceptualization, and health and rehabilitation interventions, that can promote health‐related adjustment and coping within the context of trauma‐focused treatment.

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Medical traumatic stress in cystic fibrosis: A qualitative analysis

Cited by 4 publications

References 21 publications

Opportunities for Trauma-Informed Medical Care in Cystic Fibrosis

Opportunities for Trauma-Informed Medical Care in Cystic Fibrosis

Opportunities for trauma‐informed medical care in cystic fibrosis

Medical traumatic stress: Integrating evidence‐based clinical applications from health and trauma psychology

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