Medical Specialty Camps for Youth with Diabetes

McAuliffe-Fogarty, Alicia H.; Ramsing, Ron; Hill, Eddie

doi:10.1016/j.chc.2007.05.006

Cited by 13 publications

(17 citation statements)

References 57 publications

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“…Twelve papers were rejected for the following reasons: (1) four were review articles regarding physical activity and camp (McAullife‐Fogarty et al . ; Parsons & Kendall ; Conrad & Altmaier ; Walker & Pearman ); (2) five studies examined psychosocial factors among children with chronic illnesses in the absence of a camp intervention (Hill & Sibthorp ; Dahlbeck & Lightsey ; Moola et al . ; Wong et al .…”

Section: Resultsmentioning

confidence: 99%

“…Full text copies of the remaining 33 papers were screened in detail based on the inclusion criteria by GF, LW and FM. Twelve papers were rejected for the following reasons: (1) four were review articles regarding physical activity and camp (McAullife-Fogarty et al 2007;Parsons & Kendall 2007;Conrad & Altmaier 2009;Walker & Pearman 2009); (2) five studies examined psychosocial factors among children with chronic illnesses in the absence of a camp intervention (Hill & Sibthorp 2006;Dahlbeck & Lightsey 2008;Moola et al 2008;Wong et al 2009;Ray & Henry 2011); (3) one study was not a residential camp (Lin et al 2008); (4) one study examined camp as a source of respite for caregivers (Meltzer & Johnson 2004); and (5) one article investigated the impact of camp for children with severe burns (Gaskell et al 2010).…”

Section: Resultsmentioning

confidence: 99%

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The psychological and social impact of camp for children with chronic illnesses: a systematic review update

Moola

Faulkner

White

et al. 2013

Child

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Advances in medicine have reduced mortality among children with complex medical conditions, resulting in a growing number of young patients living with chronic illnesses. Despite an improved prognosis, these children experience significant psychosocial morbidity, such as depression and anxiety. Therapeutic summer recreation camps have been proposed as an intervention to enhance quality of life among these children. The purpose of this systematic review was to assess the psychosocial impact of camp for children with chronic illnesses. A systematic review of central databases was undertaken using key words, and a rating tool – the Effective Public Health Practice Project (EPHPP) Quality Assessment Tool for Quantitative Studies – was employed to rate methodological quality. 21 studies were included in this systematic review. Although overall methodological quality was weak, camp participation appeared to offer short-term psychosocial benefits on some parameters in children with a variety of chronic illnesses. There was some consistency in improved social outcomes, such as social interaction and acceptance. Based on the available evidence, it is premature to make robust claims regarding the psychosocial impact of camp as a therapeutic intervention. Theoretically informed camp programs, long-term follow-up, and incorporating camp-based messaging into routine hospital care,may enhance the utility of camp as a potential psychosocial intervention in paediatrics.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

The psychological and social impact of camp for children with chronic illnesses: a systematic review update

Moola

Faulkner

White

et al. 2013

Child

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“…The medical professionals and advocates who founded these camps implemented intuitive programming based on common practice with the broad goal of improving the lives of children with COCI (McAuliffe-Fogarty, Ramsing, & Hill, 2007).…”

Section: History Of Campsmentioning

confidence: 99%

Positive Youth Development at Camps for Youth with Chronic Illness: A Systematic Review of the Literature

Sendak

Schilstra

Tye

et al. 2018

JYD

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This study aimed to systematically review all the literature on camps for youth with childhood onset chronic illness (COCI) utilizing the Positive Youth Development (PYD) framework to assess camp processes and psychosocial outcomes. This paper describes a unique dataset of 425 included studies published over the last 70 years and gives a broad overview of camp demographics, processes that align with PYD's Big 3 (sustained adult-youth relationships, skill-building, and youth leadership) and measured outcomes that align with the PYD's 5 Cs (Competence, Confidence, Character, Social Connectedness, and Compassion). Among the included studies, 36% included diabetes camps, 15% included camps accepting multiple illnesses, 12% included cancer camps, and 11% included asthma camps. The majority of participants were under the age of 16. While no study explicitly used the PYD approach, over 90% of studies described camps that deployed both active leadership and sustained positive relationships, while only 59% of studies described camps providing the opportunity to learn life skills. Although no study utilized the PYD 5 Cs framework for outcome measurement, 47% addressed outcomes related to Competence, 44% addressed Confidence, 33% addressed Connection, 4% addressed Compassion, and 2% addressed Character. This review highlights opportunities for camp leadership to align their programming with the PYD framework, to incorporate older adolescents and young adults and, Journal of Youth Development | http://jyd.pitt.edu/ | Vol. 13 Issue 1-2 DOI 10.5195/jyd.2018.551 PYD at Camps for Youth with Chronic Illness 202 ultimately, to improve positive adult outcomes for youth with COCI. It provides a starting point for future research evaluating illness-specific camps using a PYD approach.

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“…The primary focus of the camp was the development of sport skills, with a secondary goal of teaching diabetes self-management while being physically active. This approach is unique to this particular diabetes-focused camp, given most camps place precedence on diabetes self-management over other camp-related activities (McAuliffe-Fogarty, Ramsing & Hill, 2007).…”

Section: Camp Contextmentioning

confidence: 99%

More Than Self-Management: Positive Youth Development at an Inclusive Type 1 Diabetic Camp

Beesley

Riddell

Fraser‐Thomas

2018

JYD

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Diabetes-focused camps emerged as a way to provide ongoing diabetes self-management education to youth and their families in a physically active context. Past research suggests participation at camp can enhance youths’ glycemic control and glucose monitoring abilities; however, recent studies claim camps can also offer psychological and social benefits. Drawing upon a positive youth development (PYD) approach, the current study examined an inclusive diabetic-focused youth sport camp to (a) identify life skills developed, and (b) explain processes and factors involved in youths’ development of life skills. Focus groups were conducted with 54 youth living with type 1 diabetes mellitus (T1DM) attending an inclusive T1DM sport camp. The model of PYD through sport (Holt et al., 2017) guided the analysis. PYD outcomes (i.e., life skills developed through the camp) were (a) enhanced self-efficacy for self-monitoring of blood glucose, (b) enhanced self-efficacy for sport while living with T1DM, and (c) development of positive relationships. These outcomes were facilitated through the camp’s inclusive approach (i.e., including youth living with and without T1DM), and a PYD climate (implicitly), which included supportive relationships with counsellors and peers, and interestingly, the lack of parental involvement at the camp. The camp’s explicit life skills program focus (i.e., on diabetes self-care skills) also facilitated these outcomes. This study gives camp professionals insight into how an inclusive T1DM sport camp can facilitate life skills, and optimize PYD.

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Medical Specialty Camps for Youth with Diabetes

Cited by 13 publications

References 57 publications

The psychological and social impact of camp for children with chronic illnesses: a systematic review update

The psychological and social impact of camp for children with chronic illnesses: a systematic review update

Positive Youth Development at Camps for Youth with Chronic Illness: A Systematic Review of the Literature

More Than Self-Management: Positive Youth Development at an Inclusive Type 1 Diabetic Camp

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