Medical records: practicalities and principles of patient possession.

Gilhooly, Mary; McGhee, SM

doi:10.1136/jme.17.3.138

Cited by 35 publications

(36 citation statements)

References 13 publications

(17 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…All the doctors at the Beatson Oncology Centre were willing collaborators in this study, and few clinicians now object to controlled patient access to medical records. Other reasons for combining patient information with electronic patient records include patients' audit of records14 and easier maintenance of integrated health service systems 19. Routine use by patients should be built into electronic patient records as they are implemented over the next few years.…”

Section: Discussionmentioning

confidence: 99%

“…Although many information booklets are produced, in practice these are not freely available in hospitals; therefore, computer based information may provide a cost effective alternative. Too much technical information 12 13 and, some argue, access to medical records14 may increase anxiety, whereas appropriate information may reduce it 15. We therefore measured these effects.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Randomised trial of personalised computer based information for cancer patients

Jones

Pearson

McGregor

et al. 1999

BMJ

146

142

View full text Add to dashboard Cite

Objective To compare the use and effect of a computer based information system for cancer patients that is personalised using each patient's medical record with a system providing only general information and with information provided in booklets. Design Randomised trial with three groups. Data collected at start of radiotherapy, one week later (when information provided), three weeks later, and three months later. Participants 525 patients started radical radiotherapy; 438 completed follow up. Interventions Two groups were offered information via computer (personalised or general information, or both) with open access to computer thereafter; the third group was offered a selection of information booklets. Outcomes Patients' views and preferences, use of computer and information, and psychological status; doctors' perceptions; cost of interventions. Results More patients offered the personalised information said that they had learnt something new, thought the information was relevant, used the computer again, and showed their computer printouts to others. There were no major differences in doctors' perceptions of patients. More of the general computer group were anxious at three months. With an electronic patient record system, in the long run the personalised information system would cost no more than the general system. Full access to booklets cost twice as much as the general system. Conclusions Patients preferred computer systems that provided information from their medical records to systems that just provided general information. This has implications for the design and implementation of electronic patient record systems and reliance on general sources of patient information.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Randomised trial of personalised computer based information for cancer patients

Jones

Pearson

McGregor

et al. 1999

BMJ

146

142

View full text Add to dashboard Cite

show abstract

“…Work has been undertaken to evaluate the use of patient-held records, which suggests that there are few drawbacks and substantial potential benefits to their use. 137,138 However, there is evidence to suggest that Traveller-held records by are underutilised by GPs. 139 We also found no data on the costs of interventions in this category.…”

Section: Lay (Traveller Community) Outreachmentioning

confidence: 99%

Outreach programmes for health improvement of Traveller Communities: a synthesis of evidence

Carr

Lhussier

Forster

et al. 2014

Public Health Research

View full text Add to dashboard Cite

“…20 Baldry et al conducted an early experiment in giving patients in the waiting room their medical records to read, 21 and patient held records seem to have ethical and practical benefits. 22 One way of facilitating patients' access to their medical records may be through the internet or the adoption of smart cards, or both. The adoption of smart cards was recently announced by the European Union in an initiative which aims to ensure that "all European citizens should have the possibility to have a health smart card to enable secure and confidential access to networked patient information" by 2003.…”

Section: Electronic Health Records Accessible To Patientsmentioning

confidence: 99%

Consumer Health Informatics

2005

Health Informatics

View full text Add to dashboard Cite

Medical informatics has expanded rapidly over the past couple of years. After decades of development of information systems designed primarily for physicians and other healthcare managers and professionals, there is an increasing interest in reaching consumers and patients directly through computers and telecommunications systems. Consumer health informatics is the branch of medical informatics that analyses consumers' needs for information; studies and implements methods of making information accessible to consumers; and models and integrates consumers' preferences into medical information systems. Consumer informatics stands at the crossroads of other disciplines, such as nursing informatics, public health, health promotion, health education, library science, and communication science, and is perhaps the most challenging and rapidly expanding field in medical informatics; it is paving the way for health care in the information age. MethodsThis non-exhaustive review focuses on topics from the field of consumer health informatics because there has been a markedly increased interest in this field (additional information is available on the BMJ's website). Medline was searched using the terms "consumer" and "informatics." The proceedings of the American Medical Informatics Association's symposiums (1998 and 1999) and the proceedings of the ninth World Congress on Medical Informatics (Medinfo 1998) were hand searched. The AltaVista search engine was used to retrieve information from the internet, using the search string " + definition + consumer health informatics" to find unpublished reports. [1][2][3] Health care in the information age Medical informatics is "the field that concerns itself with the cognitive, information processing, and communication tasks of medical practice, education, and research." 4 Until recently medical informatics focused on developing applications for health professionals: medical informaticians looked at medical practice mainly through the eyes of health professionals rather than through the eyes of patients. Ten years ago Greenes and Shortliffe wrote: "After many years of development of information systems to support the infrastructure of medicine, greater focus on the needs of physicians and other health care managers and professionals is occurring-to support education, decision making, communication, and many other aspects of professional activity." 4 This earlier orientation towards providers can also be found in classic medical informatics textbooks, which rarely contain chapters on the information needs of consumers. 5 6 This focus is changing. Driving factors in this change are the emergence of evidence based medicine and the growing awareness of the need to equalise relationships between health professionals and lay people. 7 These trends can be seen in all developed countries and are partly the result of an effort to cut healthcare costs by improving patients' abilities to help themselves and make informed choices. The increasing availability of interactive information that ...

show abstract

Medical records: practicalities and principles of patient possession.

Cited by 35 publications

References 13 publications

Randomised trial of personalised computer based information for cancer patients

Randomised trial of personalised computer based information for cancer patients

Outreach programmes for health improvement of Traveller Communities: a synthesis of evidence

Consumer Health Informatics

Contact Info

Product

Resources

About