“…If dying should be "patient-focused and family-centered" (Teno, Byock, & Field, 1999), then it is critical to understand the experience and the effects of intervention from this perspective. I found it somewhat surprising that there are fewer qualitative studies of patients and families than there are of clinicians (Asai et al, 1997;Calam, Far, & Andrew, 2000;Ekblad, Marttila, & Emilsson, 2000;Fetters, Churchill, & Danis, 2001;Matzo & Schwarz, 2001;Oberle & Hughes, 2001).…”