2020
DOI: 10.1177/2333393620960059
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Medical Care-Related Decisions among Patients Diagnosed with Early Stage Malignant Brain Tumor: A Qualitative Study

Abstract: Medical care-related decision-making among patients with malignant brain tumors has not been sufficiently discussed. This study aimed to develop a framework for understanding patients’ experiences in the decision-making process. Semi-structured interviews with 14 patients were analyzed using a grounded theory approach, focusing on their 48 decision-making points. Additionally, interviews with two family members and seven healthcare providers, and participant observations were used to gain contextual insight in… Show more

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Cited by 2 publications
(2 citation statements)
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References 44 publications
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“…Our review identified cancer anxiety as a strong barrier 22,30 . Numata et al showed in their research on early stage malignant brain tumour that patients experiencing anxiety during treatment decision-making are often driven by the fear of uncertainty of prognosis, their future QoL, and loss of the self 63 .…”
Section: Patient-related Criteriamentioning
confidence: 99%
“…Our review identified cancer anxiety as a strong barrier 22,30 . Numata et al showed in their research on early stage malignant brain tumour that patients experiencing anxiety during treatment decision-making are often driven by the fear of uncertainty of prognosis, their future QoL, and loss of the self 63 .…”
Section: Patient-related Criteriamentioning
confidence: 99%
“…The simplified disease progression scale (FOP-Q-SF) [ 6 ] score, quality of life (QLQ-C30) score, social support scale (SSRS) [ 7 , 8 ], hospital anxiety and depression scale (HADS) [ 9 ] score, and patient dignity inventory (PDI) [ 10 ] scores were compared between the two groups before and after the intervention.…”
Section: Methodsmentioning
confidence: 99%