Medical and Rehabilitation Issues in the Care of Children with Spinal Cord Injury

Massagli, Teresa L.

doi:10.1016/s1047-9651(18)30153-0

Cited by 25 publications

(27 citation statements)

References 27 publications

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“…Physical and psychosocial well-being is challenged, creating a range of needs for intervention from rehabilitation services. Because these needs are dynamic, resulting from the interaction of the SCI with growth and development (1), the rehabilitation and habilitation of children and adolescents with SCI must be developmentally based and respond to these individuals' changing needs as they grow (2). This involves a process of anticipatory guidance, in which rehabilitation programs equip young people with the skills and resources needed to manage not just their current situation but also their future adolescent and adult roles (1).…”

Section: Introductionmentioning

confidence: 99%

Addressing Children’s Needs and Evaluating Rehabilitation Outcome After Spinal Cord Injury: The Child Needs Assessment Checklist and Goal–Planning Program

Webster

Kennedy

2007

The Journal of Spinal Cord Medicine

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Background/Objective: Spinal cord injury (SCI) is a devastating event with lasting implications for children and families. The rehabilitation of children and adolescents with SCI must be developmentally based, and goal-planning programs must respond to their changing needs as they grow. The Child Needs Assessment Checklist (ChNAC) and goal-planning program provides a developmentally sensitive way to assess and address young people's needs within the context of their family and community. This preliminary study investigated the utility of the ChNAC in planning rehabilitation goals and evaluating outcomes for young people.Methods: A retrospective review of scores on the ChNAC was conducted to assess the effectiveness of the goal-planning program in addressing pediatric patients' rehabilitation needs. The sample comprised 33 young people for whom both baseline and outcome ChNACs had been completed. Results:Comparison of goals achieved on baseline and outcome ChNACs by median percentage score showed improvements in 9 of 10 areas. Differences in scores were compared across demographic groups. Conclusions:The ChNAC is a practical tool for planning young people's rehabilitation after SCI and assessing rehabilitation outcome. This study is a preliminary demonstration of the pediatric goal-planning program's effectiveness in achieving positive rehabilitation outcomes. Future research should replicate these results with larger samples and include detailed studies of the ChNAC's reliability and validity.J Spinal Cord Med. 2007;30:S140-S145

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Section: Introductionmentioning

confidence: 99%

Addressing Children’s Needs and Evaluating Rehabilitation Outcome After Spinal Cord Injury: The Child Needs Assessment Checklist and Goal–Planning Program

Webster

Kennedy

2007

The Journal of Spinal Cord Medicine

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“…Although SCI-related physical disability is high, even minimal improvement in functionality is beneficial to disabled patients and worth the cost of rehabilitation, 35 and children may continue to regain additional motor function months to years after SCI. 33,36 In addition, SCI patients have more medical comorbidities than non-SCI patients, including ventilator dependence, pulmonary complications, autonomic hyperreflexia, deep vein thrombosis, and orthopedic complications. 36,37 It is important to consider that pediatric rehabilitation serves a wide range of purposes in addition to improving functionality, including postacute care of medical comorbidities, patient and caregiver adaptation to current state, and maximizing remaining potential for reintegration into the school, family, and community to return to lives that are meaningful and fulfilling.…”

Section: Discussionmentioning

confidence: 99%

“…33,36 In addition, SCI patients have more medical comorbidities than non-SCI patients, including ventilator dependence, pulmonary complications, autonomic hyperreflexia, deep vein thrombosis, and orthopedic complications. 36,37 It is important to consider that pediatric rehabilitation serves a wide range of purposes in addition to improving functionality, including postacute care of medical comorbidities, patient and caregiver adaptation to current state, and maximizing remaining potential for reintegration into the school, family, and community to return to lives that are meaningful and fulfilling. 36,[38][39][40][41] Low functionality at discharge was correlated with a number of comorbid medical conditions, with mental disorders as the most common system-specific comorbidity.…”

Section: Discussionmentioning

confidence: 99%

“…36,37 It is important to consider that pediatric rehabilitation serves a wide range of purposes in addition to improving functionality, including postacute care of medical comorbidities, patient and caregiver adaptation to current state, and maximizing remaining potential for reintegration into the school, family, and community to return to lives that are meaningful and fulfilling. 36,[38][39][40][41] Low functionality at discharge was correlated with a number of comorbid medical conditions, with mental disorders as the most common system-specific comorbidity. This finding is consistent with existing literature demonstrating increased rates of and impairment from posttraumatic stress, anxiety, depression, and substance use in children who have severe trauma.…”

Section: Discussionmentioning

confidence: 99%

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Physical Disability After Injury-Related Inpatient Rehabilitation in Children

2012

PEDIATRICS

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“…Neurologic improvements may continue for a period of time while these children keep growing and developing; periodic re-evaluation and the re-establishment of new goals are very important in these patients. 8 …”

Section: Discussionmentioning

confidence: 99%

Spinal cord arteriovenous malformation presenting as chest pain in a child

Chu

et al. 2007

Spinal Cord

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Study design: A case report of spinal arteriovenous malformation presented as chest pain in a child. Objectives: To illustrate the atypical clinical presentation as right chest pain in a child with spinal cord arteriovenous malformation. Setting: Chang Gung Memorial Hospital and Chang Gung University, Taiwan. Case report: An 8-year-old boy was diagnosed with spinal cord arteriovenous malformation after paraplegia. However, early diagnosis was delayed for the atypical initial clinical presentation as chest pain. After surgery and rehabilitation for 6 months, the patient could walk without assistance. Conclusions: Correct diagnosis of spinal cord arteriovenous malformations is sometimes difficult in children with atypical presentations. Early diagnosis relies on detailed examination and high index of suspicion.

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Medical and Rehabilitation Issues in the Care of Children with Spinal Cord Injury

Cited by 25 publications

References 27 publications

Addressing Children’s Needs and Evaluating Rehabilitation Outcome After Spinal Cord Injury: The Child Needs Assessment Checklist and Goal–Planning Program

Addressing Children’s Needs and Evaluating Rehabilitation Outcome After Spinal Cord Injury: The Child Needs Assessment Checklist and Goal–Planning Program

Physical Disability After Injury-Related Inpatient Rehabilitation in Children

Spinal cord arteriovenous malformation presenting as chest pain in a child

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