Measuring the quality of life of people at the end of life: The McGill Quality of Life Questionnaire–Revised

Cohen, S. Robin; Sawatzky, Richard; Russell, Lara B.; Shahidi, Javad; Heyland, Daren K.; Gadermann, Anne M.

doi:10.1177/0269216316659603

Cited by 103 publications

(122 citation statements)

References 29 publications

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“…By contrast, the Missoula-VITAS Quality of Life Index was not used in any of the studies, suggesting that this instrument may need more attention. Instead, other instruments measuring aspects of quality of life were identified in this review, for example, the McGill Quality of Life Questionnaire S22 (Cohen et al, 2017) which has shown strong psychometric properties and has previously been recommended (Selman et al, 2011). (Chochinov, 2002) with permisson from the developer.…”

Section: Discussionmentioning

confidence: 99%

Dignity-conserving care for persons with palliative care needs — identifying outcomes studied in research: An integrative review

et al. 2020

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Objectives. With people living longer, palliative care may be required for lengthier periods of time. This puts demands on healthcare organizations to provide optimal palliative care. Maintaining dignity is central for any person's health and quality of life, but especially for a person with palliative care needs. Dignity-conserving care needs to be evaluated to increase knowledge about outcomes and how to assess these. The purpose of this integrative review was to identify outcomes studied within dignity-conserving care and how these have been operationalized.Methods. An integrative review was conducted in 26 quantitative or mixed-method studies and study protocols. Thematic synthesis with an abductive approach was used for analysis. Results. Seven themes of studied outcomes were identified, as well as four cluster themes: themes related to Illness-Related Concerns, themes related to the Dignity-Conserving Repertoire, themes related to the Social Dignity Inventory, and themes regarding Overarching Dignity Issues. Most outcomes studied dealt with Illness-Related Concerns within the themes of "Performance, symptoms and emotional concerns" and "End-of-life and existential aspects". Themes linked to the Social Dignity Inventory had the lowest number of outcomes studied. Outcomes regarding overarching dignity issues such as "Dignity-related distress" and "Quality of life" were common. However, the results lacked concrete communication outcomes. Significance of results. The results will underpin future research in which dignity-conserving care is implemented and evaluated, and contribute to the provision of evidence-based palliative care. A greater focus on outcomes within cluster themes related to the Dignity-Conserving Repertoire and the Social Dignity Inventory is needed, as is more focus on communication outcomes.

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Section: Discussionmentioning

confidence: 99%

Dignity-conserving care for persons with palliative care needs — identifying outcomes studied in research: An integrative review

et al. 2020

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“…The attending physician in charge of the patient collected socio-demographic and medical data: age, sex, nationality, mother tongue, marital status, education, profession, primary diagnosis, and co-morbidities. (22). The MQoL-R was developed for the setting of end of life.…”

Section: Socio-demographic and Medical Assessmentsmentioning

confidence: 99%

Gratitude at the End of Life: A Promising Lead for Palliative Care

Althaus

Borasio

Bernard

2018

Journal of Palliative Medicine

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“…Although many studies have measured quality of life in LTC settings [38–44], fewer measured quality of care provided. Most studies that did measure quality of care used nonvalidated assessment tools [4].…”

Section: Introductionmentioning

confidence: 99%

Measuring Family Members’ Satisfaction with End-of-Life Care in Long-Term Care: Adaptation of the CANHELP Lite Questionnaire

Nadin

Miandad

Kelley

et al. 2017

BioMed Research International

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Rationale Improving end-of-life care (EOLC) in long-term care (LTC) homes requires quality measurement tools that assess families' satisfaction with care. This research adapted and pilot-tested an EOLC satisfaction measure (Canadian Health Care Evaluation Project (CANHELP) Lite Questionnaire) for use in LTC to measure families' perceptions of the EOLC experience and to be self-administered. Methods and Results Phase 1. A literature review identified key domains of satisfaction with EOLC in LTC, and original survey items were assessed for inclusiveness and relevance. Items were modified, and one item was added. Phase 2 The revised questionnaire was administered to 118 LTC family members and cognitive interviews were conducted. Further modifications were made including reformatting to be self-administered. Phase 3 The new instrument was pilot-tested with 134 family members. Importance ratings indicated good content and face validity. Cronbach's alpha coefficients (range: .88–.94) indicated internal consistency. Conclusion This research adapted and pilot-tested the CANHELP for use in LTC. This paper introduces the new, valid, internally consistent, self-administered tool (CANHELP Lite Family Caregiver LTC) that can be used to measure families' perceptions of and satisfaction with EOLC. Future research should further validate the instrument and test its usefulness for quality improvement and care planning.

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Measuring the quality of life of people at the end of life: The McGill Quality of Life Questionnaire–Revised

Cited by 103 publications

References 29 publications

Dignity-conserving care for persons with palliative care needs — identifying outcomes studied in research: An integrative review

Dignity-conserving care for persons with palliative care needs — identifying outcomes studied in research: An integrative review

Gratitude at the End of Life: A Promising Lead for Palliative Care

Measuring Family Members’ Satisfaction with End-of-Life Care in Long-Term Care: Adaptation of the CANHELP Lite Questionnaire

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