Measuring the knowledge of juvenile idiopathic arthritis among Israeli paediatricians and paediatric orthopaedic surgeons: what needs to be improved?

Schujovitzky, Dana; Ziv, Amit; Bekenstein, Merav Heshin; Eylon, Sharon; Grossman, Zachi; Hashkes, Philip J.; Uziel, Yosef; Haviv, Ruby

doi:10.55563/clinexprheumatol/7j9es3

Cited by 1 publication

(1 citation statement)

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“…Consequently, this has had an impact on recruitment into the PR workforce, and a lack of trained staff to teach, and conduct research [52,60,62,63]. This lack of knowledge then transcends across the disciplines, for example in orthopaedics and by general paediatricians [60,64,65]. It is not then surprising that those healthcare practitioners who are at the first point of contact with the healthcare system: general practitioners, emergency room physicians and school nurses, often overlook a child's joint swelling and restriction [65,66].…”

Section: Global Challenges Hindering Paediatric Rheumatologymentioning

confidence: 99%

Paediatric Rheumatology Fails to Meet Current Benchmarks, a Call for Health Equity for Children Living with Juvenile Idiopathic Arthritis, Using Digital Health Technologies

Butler,

Sculley,

Santos

et al. 2024

Curr Rheumatol Rep

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Purpose of Review This critical review begins by presenting the history of Juvenile Idiopathic Arthritis (JIA) management. To move the conversation forward in addressing the current shortcomings that exist in the clinical management of children living with JIA, we argue that to date, the advancement of successful treatments for JIA has been historically slow. Factors implicated in this situation include a lack of rigorous research, JIA being considered a rare disease, and JIA’s idiopathic and complex pathophysiology. Recent Findings Despite the well-intended legislative changes to increase paediatric research, and the major advancements seen in molecular medicine over the last 30 years, globally, paediatric rheumatology services are still failing to meet the current benchmarks of best practice. Provoking questions on how the longstanding health care disparities of poor access and delayed treatment for children living with JIA can be improved, to improve healthcare outcomes. Summary Globally, paediatric rheumatology services are failing to meet the current benchmarks of best practice. Raising awareness of the barriers hindering JIA management is the first step in reducing the current health inequalities experienced by children living with JIA. Action must be taken now, to train and well-equip the paediatric rheumatology interdisciplinary workforce. We propose, a resource-efficient way to improve the quality of care provided could be achieved by embedding digital health into clinical practice, to create an integrative care model between the children, general practice and the paediatric rheumatology team. To improve fragmented service delivery and the coordination of interdisciplinary care, across the healthcare system.

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