Measuring Patients' Experience of Rehabilitation Services Across the Care Continuum. Part I: A Systematic Review of the Literature

McMurray, Josephine; McNeil, Heather; Lafortune, Claire; Black, Samantha; Prorok, Jeanette C.; Stolee, Paul

doi:10.1016/j.apmr.2015.08.407

Cited by 24 publications

(14 citation statements)

References 58 publications

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“…Study transferability to community contexts is unclear [23]. Inpatient and outpatient needs and resources vary, impacting communication [34,35]. More research is required to better understand the barriers and facilitators to SDM in a rehabilitation context, particularly because rehabilitation supports both acute and chronic care.…”

Section: Introductionmentioning

confidence: 99%

Experiences of shared decision-making in community rehabilitation: a focused ethnography

Manhas

Olson

Churchill

et al. 2020

BMC Health Serv Res

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Background: Shared decision-making (SDM) can advance patient satisfaction, understanding, goal fulfilment, and patient-reported outcomes. We lack clarity on whether this physician-focused literature applies to community rehabilitation, and on the integration of SDM policies in healthcare settings. We aimed to understand patient and provider perceptions of shared decision-making (SDM) in community rehabilitation, particularly the barriers and facilitators to SDM. Methods: We used a focused ethnography involving 14 community rehabilitation sites across Alberta, including rural, regional-urban and metropolitan-urban sites. We conducted semi-structured interviews that asked participants about their positive and negative communication experiences (n = 23 patients; n = 26 providers). Results: We found SDM experiences fluctuated between extremes: Getting Patient Buy-In and Aligning Expectations. The former is provider-driven, prescriptive and less flexible; the latter is collaborative, inquisitive and empowering. In Aligning Expectations, patients and providers express humility and openness, communicate in the language of ask and listen, and view education as empowering. Patients and providers described barriers and facilitators to SDM in community rehabilitation. Facilitators included geography influencing context and connections; consistent, patientspecific messaging; patient lifestyle, capacity and perceived outlook; provider confidence, experience and perceived independence; provider training; and perceptions of more time (and control over time) for appointments. SDM barriers included lack of privacy; waitlists and financial barriers to access; provider approach; how choices are framed; and, patient's perceived assertiveness, lack of capacity, and level of deference. Conclusions: We have found both excellent experiences and areas for improvement for applying SDM in community rehabilitation. We proffer recommendations to advance high-quality SDM in community rehabilitation based on promoting facilitators and overcoming barriers. This research will support the spread, scale and evaluation of a new Model of Care in rehabilitation by the provincial health system, which aimed to promote patient-centred care.

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Section: Introductionmentioning

confidence: 99%

Experiences of shared decision-making in community rehabilitation: a focused ethnography

Manhas

Olson

Churchill

et al. 2020

BMC Health Serv Res

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“…These findings echo the views of experts who argue that inclusion of PREM in future review and assessments in neglected clinical areas (e.g., long term care, mental health) is essential because they reflect directly the voice of people with chronic conditions and carry, therefore, considerable potential to support improvements in patient centred care and enhance the quality of interactions between patients and providers [103]. Resonating previous findings from systematic reviews on PREM [104,105], this study also showed that the collection of local and national PREM data in rehabilitation settings with valid and reliable scientific instruments remains an issue of particular concern among experts and suggests a need for further research in this area.…”

Section: Discussionmentioning

confidence: 37%

Using Concept Mapping to Develop a Human Rights Based Indicator Framework to Assess Country Efforts to Strengthen Rehabilitation Provision and Policy: The Rehabilitation System Diagnosis and Dialogue (RESYST) Framework

Skempes¹,

Melvin²,

Groote³

et al. 2018

Preprint

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“…Recently, there have been several initiatives to identify consumer priorities; however, they did not identify priority Domains for Quality Improvement and related indicators. 9,10 In other rehabilitation jurisdictions, pay for performance strategies have been shown to promote patient-centered care and impact the quality of care. 11 The quality of SCI-Care is not solely driven by patient priorities, and should reflect advances in care at the health system (macro) level, organizational (meso) level, and individual patient (micro) level.…”

Section: Introductionmentioning

confidence: 99%

Prioritization of rehabilitation Domains for establishing spinal cord injury high performance indicators using a modification of the Hanlon method: SCI-High Project

Alavinia

Hitzig

Farahani

et al. 2019

The Journal of Spinal Cord Medicine

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Objectives: To prioritize Domains of SCI Rehabilitation Care (SCI-Care) based on clinical importance and feasibility to inform the development of indicators of quality SCI-Care for adults with SCI/D in Canada. Methods: A 17-member external advisory committee, comprised of key stakeholders, ranked 15/37 Domains of rehabilitation previously flagged by the E-scan project team for gaps between knowledge generation and clinical implementation. Priority scores (D) were calculated using the Hanlon formula: D = [A + (2 × B)] × C, where A is prevalence, B is seriousness, and C is the effectiveness of available interventions. A modified "EAARS" (Economic, Acceptability, Accessibility, Resources, and Simplicity) criterion was used to rank feasibility on a scale of 0-4 (4 is high). The product of these two scores determined the initial Domain ranking. Following the consensus process, further changes were made to the Domain rankings. Results: Despite a low feasibility score, Sexual Health was ranked as high priority; and, the Community Participation and Employment Domains were merged. The 11 final prioritized Domains in alphabetic order were:

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Measuring Patients' Experience of Rehabilitation Services Across the Care Continuum. Part I: A Systematic Review of the Literature

Cited by 24 publications

References 58 publications

Experiences of shared decision-making in community rehabilitation: a focused ethnography

Experiences of shared decision-making in community rehabilitation: a focused ethnography

Using Concept Mapping to Develop a Human Rights Based Indicator Framework to Assess Country Efforts to Strengthen Rehabilitation Provision and Policy: The Rehabilitation System Diagnosis and Dialogue (RESYST) Framework

Prioritization of rehabilitation Domains for establishing spinal cord injury high performance indicators using a modification of the Hanlon method: SCI-High Project

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