Measuring participation as defined by the World Health Organization in the International Classification of Functioning, Disability and Health. Psychometric properties of the Ghent Participation Scale

Velde, Dominique Van de; Coorevits, Pascal; Sabbe, Lode; Baets, Stijn De; Bracke, Piet; Hove, Geert Van; Josephsson, Staffan; Ilsbroukx, Stephan; Vanderstraeten, Guy

doi:10.1177/0269215516644310

Cited by 25 publications

(16 citation statements)

References 26 publications

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“…autism) to a focus on consequences for 'participation' e.g. difficulty with making friends [3][4][5][6][7][8]. According to the WHO [2], participation is defined as "involvement in a life situation".…”

Section: Introductionmentioning

confidence: 99%

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A Qualitative Photo Elicitation Research Study to elicit the perception of young children with Developmental Disabilities such as ADHD and/or DCD and/or ASD on their participation

et al. 2020

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Participation, defined as 'involvement in life situations' according to the World Health Organisation, is a well-recognized concept and critical indicator of quality of life. In addition it has become an important outcome measure in child rehabilitation. However, little is known about the level of participation of young children with Developmental Disabilities. The aim of this study was to capture their subjective experiences of participation. An adapted informed consent based on a comic strip was used to get the children's assent. A Photo Elicitation study was used, in which photographs were taken by the children when they were involved in meaningful activities. The photographs were then used to facilitate communication with the children and to initiate in depth-interviews. Forty-seven interviews with 16 children between five and nine years were conducted based on their photographs. This method generated rich data, confirming that young children with Developmental Disabilities were able to inform us accurately on their experiences of participation. Data was analysed by means of an inductive thematic analysis. Results showed that children perceived their participation as satisfying when they can play, learn and join in family gatherings resulting in feelings of inclusion, recognition and belonging. When there are-on occasions-moments that their participation was obstructed, the children used two strategies to resolve it. Or they walked away from it and choose not to participate, or when autonomously motivated for the activity, they relied primarily on their context (i.e. mothers) as enabling their participation. Related to the data, children discussed themes related to their person, activities, connections and mediators between those themes. These themes fit well within earlier and current research on the subject of participation.

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Section: Introductionmentioning

confidence: 99%

“…Despite this emphasis on participation [5,8,14,15] there seems to be no consensuses on how participation should be interpreted. Differences in the way participation is operationalized; (1) in objective variables (e.g.…”

Section: Introductionmentioning

confidence: 99%

A Qualitative Photo Elicitation Research Study to elicit the perception of young children with Developmental Disabilities such as ADHD and/or DCD and/or ASD on their participation

et al. 2020

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“…They reported the first empirical evidence of separate activity and participation dimensions (28), but in a follow-up study they concluded that a distinction between activity and participation could not be identified (27). Van de Velde and colleagues empirically proved that every activity ranging from [d1] to [d9] can be the trigger to experience participation (71). On the one hand, they provided evidence that both concepts belong to the same chapter in the ICF; on the other hand, there is a fundamental difference between them.…”

Section: How To Differentiate Between Activity and Participationmentioning

confidence: 99%

“…On the one hand, they provided evidence that both concepts belong to the same chapter in the ICF; on the other hand, there is a fundamental difference between them. The difference seems to depend on the individual's subjective appraisal of the activity (71,72). No further empirical evidence is yet available, but a lot of opinions and discussions from experts on the topic add to this body of knowledge and fit the above-described view that participation refers to the subjective aspects such as the level of engagement (69,71,73).…”

Section: How To Differentiate Between Activity and Participationmentioning

confidence: 99%

“…The Participation Measure -3 domains, 4 dimensions (PM-3D4D) (124) also includes, in addition to the frequency and the diversity of activities, the desire for change and the perceived difficulty. Finally, the Ghent Participation Scale (GPS) (71,72) is a multidimensional scale that includes 15 different subjective and 2 objective variables and combines them into a single overall score.…”

Section: Further Researchmentioning

confidence: 99%

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Application of participation in clinical practice: Key issues

Velde¹,

Coussens²,

Baets³

et al. 2018

J Rehabil Med

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LAY ABSTRACTParticipation is defined by the International Classification of Functioning, Disability and Health (ICF) as "involvement in a life situation"'. For this concept to be used in rehabilitation, some issues require clarification. When aiming to use this concept and to measure participation it is necessary: (i) to define the context (home, school, work, community, etc.) in which the patient (child, adult or older person) wants to participate; (ii) to make clear in what dimension exactly one wants to measure participation: the frequency, the limitations, the subjective appraisal of activities, or combinations of these; and (iii) to be aware of the level of power and autonomy the patient aims for in performing activities: from being informed about the activity to being involved in decisionmaking. Based on the results of this study, a more informed choice could be made about which measurement instrument to use. However, a clear single agreement on the concept of participation will foster clinical practice and action is required to reach consensus.

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Measuring Activity of Daily Living in Spinal Cord Injury

Panuccio¹,

Grieco²,

D’Angelo³

et al. 2021

Measuring Spinal Cord Injury

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Measuring participation as defined by the World Health Organization in the International Classification of Functioning, Disability and Health. Psychometric properties of the Ghent Participation Scale

Abstract: The Ghent Participation Scale appears to be a valid and reliable method of assessing participation irrespective of the respondent's health condition. The Ghent Participation Scale is responsive and is able to detect changes over time.

Cited by 25 publications

References 26 publications

A Qualitative Photo Elicitation Research Study to elicit the perception of young children with Developmental Disabilities such as ADHD and/or DCD and/or ASD on their participation

A Qualitative Photo Elicitation Research Study to elicit the perception of young children with Developmental Disabilities such as ADHD and/or DCD and/or ASD on their participation

Application of participation in clinical practice: Key issues

Measuring Activity of Daily Living in Spinal Cord Injury

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