Measuring Outcomes in People Who Have Had a Stroke and Their Carers: Can the Telephone Be Used?

Hoffmann, Tammy; Worrall, Linda; Eames, Sally; Ryan, Aisling

doi:10.1310/tsr1702-119

Cited by 24 publications

(33 citation statements)

References 47 publications

(68 reference statements)

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“…A comparison of telephone and face-to-face administration of these measures found no significant differences between the two methods. 23 Demographic and clinical characteristics were collected at baseline from participant interviews and from the patient's medical chart. The Rapid Estimate of Adult Literacy in Medicine (REALM) 24 was also administered at baseline as an estimate of the participant's reading ability.…”

Section: Methodsmentioning

confidence: 99%

Randomised controlled trial of an education and support package for stroke patients and their carers

Eames¹,

et al. 2013

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ObjectiveTailoring stroke information and providing reinforcement opportunities are two strategies proposed to enhance the effectiveness of education. This study aimed to evaluate the effects of an education package which utilised both strategies on the knowledge, health and psychosocial outcomes of stroke patients and carers.DesignMultisite, randomised trial comparing usual care with an education and support package.SettingTwo acute stroke units.ParticipantsPatients and their carers (N=138) were randomised (control n=67, intervention n=71) of which data for 119 participants (control n=59, intervention n=60) were analysed.InterventionThe package consisted of a computer-generated, tailored written information booklet and verbal reinforcement provided prior to, and for 3 months following, discharge.Outcome measuresOutcome measures were administered prior to hospital discharge and at 3-month follow-up by blinded assessors. The primary outcome was stroke knowledge (score range: 0–25). Secondary outcomes were: self-efficacy (1–10), anxiety and depression (0–21), ratings of importance of information (1–10), feelings of being informed (1–10), satisfaction with information (1–10), caregiver burden (carers) (0–13) and quality of life (patients) (1–5).ResultsIntervention group participants reported better: self-efficacy for accessing stroke information (adjusted mean difference (MD) of 1.0, 95% CI 0.3 to 1.7, p=0.004); feeling informed (MD 0.9, 95% CI 0.2 to 1.6, p=0.008); and satisfaction with medical (MD 2.0, 95% CI 1.1 to 2.8, p<0.001); practical (MD 1.1, 95% CI 0.3 to 1.9, p=0.008), services and benefits (MD 0.9, 95% CI 0.1 to 1.8, p=0.036) and secondary prevention information (MD 1.7, 95% CI 0.9 to 2.5, p<0.001). There was no significant effect on other outcomes.ConclusionsIntervention group participants had improved self-efficacy for accessing stroke information and satisfaction with information, but other outcomes were not significantly affected. Evaluation of a more intensive intervention in a trial with a larger sample size is required to establish the value of an educational intervention that uses tailoring and reinforcement strategies.ACTRN12608000469314

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Section: Methodsmentioning

confidence: 99%

Randomised controlled trial of an education and support package for stroke patients and their carers

Eames¹,

et al. 2013

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“…It helps to increase the productivity and efficiency in delivering healthcare management. It is interesting to note that few evidences show that there is no significant difference and good agreement between telephone and face-to-face assessment in obtaining stroke outcomes [27,28]. Moreover, the patient-proxy reliability was verified [29,30].…”

Section: Discussionmentioning

confidence: 88%

Reliability of Telephone Interview for Assessment of Long-Term Stroke Outcomes: Evidence from Interrater Analysis

et al. 2019

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Background: A comprehensive evaluation of interrater reliability is crucial when it comes to multiple coders assessing the stroke outcomes using telephone interview. The reliability between telephone raters is important, as it could affect the accuracy of the findings published. Objective: This study aimed to establish the interrater reliability between multiple telephone interviewers when assessing long-term stroke outcomes. Methods: Patients alive at discharge selected in a retrospective cohort stroke project were recruited in this study. Their contact numbers were obtained from the medical record unit. The patients and/or proxies were interviewed based on a standardized script in Malay or English. Stroke outcomes assessed were modified Rankin Scale (mRS) and Barthel Index (BI) at 1-year post discharge. Fully crossed design was applied and 3 assessors collected the data simultaneously. Data was analysed using the software R version 3.4.4. Results: Out of 207 subjects recruited, 132 stroke survivors at the time of interview were analysed. We found a significant excellent interrater reliability between telephone interviewers assessing BI, with intraclass correlation coefficient at 0.996 (95% CI 0.995–0.997). Whereas substantial agreement between the telephone interviewers was revealed in assessing mRS, with Fleiss’, Conger’s and Light’s Kappa statistics reporting 0.719 and the Nelson’s model-based κ_m kappa statistic reporting 0.689 (95% CI 0.667–0.711). Conclusion: It is reliable to get multiple raters in assessing mRS and BI using the telephone system. It is worthwhile to make use of a telephone interview to update clinicians on their acute clinical management towards long-term stroke prognosis.

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“…Strategies that can act as facilitators could also be investigated, e.g. providing a written copy of the tool for telephone interviews or using internet video conferencing technology (such as Skype or Abobe Connect) to allow the clinician to facilitate (Hoffmann et al, 2010). This would provide guidance for clinicians when deciding which mode of administration and facilitation strategies would be most suitable for particular clients.…”

Section: Discussionmentioning

confidence: 99%

“…Non-respondents were more likely to be widowed or divorced and to have a prior history of stroke. There was also missing data in the postal survey but not in the telephone interviews and test-retest reliability was better in the Some of these issues were addressed in a more recent study which investigated whether face-to-face and telephone interviews produced significantly different results on a range of 8 stroke measures in stroke survivors (n=11) and their carers (n=8) (Hoffmann, Worrall, Eames & Ryan, 2010). The measures included the SAQOL-39, the Caregiver Strain Index (Robinson, 1983) and the Hospital Anxiety and Depression Scale (Zigmond & Snaith, 1983).…”

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Does mode of administration affect health-related quality-of-life outcomes after stroke?

Caute

Northcott

Clarkson

et al. 2012

International Journal of Speech-Language Pathology

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This is the unspecified version of the paper.This version of the publication may differ from the final published version. Telephone interviews and postal surveys may be a resource-efficient way of assessing health-related quality of life post-stroke, if they produce data equivalent to face-to-face interviews. We explored whether telephone interviews and postal surveys of the Stroke and Aphasia Quality of Life Scale (SAQOL-39g) yielded similar results to face-to-face interviews. Permanent repository linkParticipants included people with aphasia and comprised two groups: group one (n=22)were 3-6 months post-stroke; group two (n= 26) were ≥ one year post-stroke. They completed either a face-to-face and a telephone interview or a face-to-face interview and a postal survey of the SAQOL-39g. Response rates were higher for group two (87%) than for group one (72%-77%). There were no significant differences between respondents and nonrespondents on demographics, co-morbidities, stroke severity or communication

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Measuring Outcomes in People Who Have Had a Stroke and Their Carers: Can the Telephone Be Used?

Cited by 24 publications

References 47 publications

Randomised controlled trial of an education and support package for stroke patients and their carers

Randomised controlled trial of an education and support package for stroke patients and their carers

Reliability of Telephone Interview for Assessment of Long-Term Stroke Outcomes: Evidence from Interrater Analysis

Does mode of administration affect health-related quality-of-life outcomes after stroke?

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