Measuring knowledge of patients with congenital heart disease and their parents: validity of the ‘Leuven Knowledge Questionnaire for Congenital Heart Disease’

Abstract

The Chinese version of the LKQCHD is valid to assess the level of knowledge in patients with CHD and their parents.

An Evaluation of Disease Knowledge in Dyads of Parents and Their Adolescent Children With Congenital Heart Disease

“…This is the total number of correct answers divided by the number of questions that should be answered by that respondent (31 questions for male participants; 34 questions for female participants). 32 This correct rate represents the over all disease knowledge of the respondents and ranges from 0% to 100%, with a higher score representing better disease knowledge. Hence, a continuous score was available to compare the knowledge level of CGHD between adolescent patients and their parents and to explore related factors.…”

“…The assessment of correct answers was based on current leading guidelines, such as the ''ACC/AHA 2008 Guidelines for the Management of Adults With 30,31 We used the Chinese (Mandarin) version of the LKQCHD, which is valid for its purpose. 32 For the purpose of this study, we adapted the LKQCHD for use with parents by revising the questions stated in the second person of speech (ie, you) into the third person (ie, he/she). 32 Furthermore, we calculated the proportion of correct answers.…”

“…32 For the purpose of this study, we adapted the LKQCHD for use with parents by revising the questions stated in the second person of speech (ie, you) into the third person (ie, he/she). 32 Furthermore, we calculated the proportion of correct answers. This is the total number of correct answers divided by the number of questions that should be answered by that respondent (31 questions for male participants; 34 questions for female participants).…”

Contributors to disease-specific health knowledge in adults with congenital heart disease: A correlational study

“…Participants were asked to complete a series of 12 validated psychometric questionnaires. The primary outcome of interest, HK, was assessed using the Leuven Knowledge Questionnaire for Congenital Heart Diseases (LKQCHD)—Version 2 English translation . In addition, we included the following questionnaires: (1) an assessment of psychologically relevant demographic information; (2) The Perceived Stress Scale (PSS); (3) The Cardiac Denial of Impact Scale (CDI); (4) The Beck Depression Inventory‐Version II (BDI‐II); (5) The Barriers to Care Questionnaire; (6) The Anxiety Sensitivity Index (ASI‐R); (7) The Multidimensional Scale of Perceived Support Scale (MSPSS); (8) The Beck Anxiety Inventory; (9) The Early Life Stress Score; (10) The Rand 36‐Item Short Form Health Survey (SF‐36); and (11) The Shipley‐2 assessment for overall cognitive ability .…”

Disease knowledge, perceived risk, and health behavior engagement among adolescents and adults with congenital heart disease

“…With the transition from adolescence to adulthood, individuals with CHD must assume responsibility for their healthcare, but many may lack knowledge about their condition which would help them accomplish this goal. Adults, as well as adolescents, often have difficulty recalling the name of their diagnosis, 3–5 and do not understand important general medical management issues, such as endocarditis prevention, the negative effects of smoking and alcohol, and contraception choices. 3–8 Despite these documented gaps, the relationship between disease knowledge and health behaviors has not been investigated among survivors of CHD.…”