Measuring health-related quality of life in patients with advanced cancer: a systematic review of self-administered measurement instruments

Roij, Janneke van; Fransen, Heidi P.; Poll-Franse, Lonneke van de; Zijlstra, Myrte; Raijmakers, Natasja

doi:10.1007/s11136-018-1809-4

Cited by 40 publications

(43 citation statements)

References 105 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The COSMIN methodology provides a rigorous and structured guide to perform high‐quality psychometric reviews of measurement instruments. As a result, this methodology is used in several psychometric reviews (Kleif, Waage, Christensen, & Gögenur, ; Van Roij, Fransen, van de Poll‐Franse, Zijlstra, & Raijmakers, ). However, some COSMIN guidelines are currently under review and development.…”

Section: Discussionmentioning

confidence: 99%

Instruments to assess mental health‐related stigma among health professionals and students in health sciences: A systematic psychometric review

Sastre-Rus

García-Lorenzo

Lluch‐Canut

et al. 2019

Journal of Advanced Nursing

View full text Add to dashboard Cite

Aim:To evaluate the psychometric properties of the instruments to assess the mental health-related stigma among health professionals and students in health sciences.Background: Evidence on the stigmatization by health professionals of people with mental health illness is increasingly compelling. Valid and reliable instruments are needed for the assessment of mental health-related stigma and effectiveness of anti-stigma interventions.Design: Systematic psychometric review. Review methods:We included studies on the development of a measurement instrument or on the evaluation of one or more of its measurement properties. The methodological quality of the included studies and quality of the measurement instruments identified were assessed using the COnsensus-based Standards for the selection of health status Measurement INstruments (COSMIN) checklist. Results:We included 25 studies involving 15 measurement instruments. The "Atributtion Questionnaire" (five studies) and the "Opening Minds Scale for Health Care providers (OMS-HC)" (four studies) were the most investigated instruments.Internal consistency, content validity, structural validity, and hypothesis testing were the measurement properties most commonly evaluated. Measurement error and responsiveness were investigated in only two studies. Eight psychometric properties of OMS-HC were evaluated, three of which have a positive strong level of evidence. Conclusions:A substantial number of instruments have been developed to assess mental health-related stigma among health professionals. There is a lack of any assessment of certain measurement properties. The OMS-HC is the instrument that had the strongest evidence.

show abstract

Section: Discussionmentioning

confidence: 99%

Instruments to assess mental health‐related stigma among health professionals and students in health sciences: A systematic psychometric review

Sastre-Rus

García-Lorenzo

Lluch‐Canut

et al. 2019

Journal of Advanced Nursing

View full text Add to dashboard Cite

show abstract

“…Several cancer-specific health-related quality-of-life (QoL) measures were developed to assess the short- and long-term effects of cancer on quality-of-life. 10 In breast cancer patients, treatment consequences represent a great source of anxiety and depression that is accompanied with a decrease in the quality-of-life during cancer therapy. 11 In the present study, we aim to assess the prevalence of depression symptoms and the QoL among patients with breast cancer diagnosis and how they associate with demographic and disease- related factors.…”

Section: Introductionmentioning

confidence: 99%

<p>Prevalence of Depression and the Quality-of-Life of Breast Cancer Patients in Jordan</p>

Alquraan¹,

Alzoubi²,

Rababa’h³

et al. 2020

JMDH

View full text Add to dashboard Cite

Objective The objectives of the current study are to evaluate the prevalence of depression symptoms among breast cancer patients in Jordan and impact of the disease on patient’s quality-of-life. Methods A cross-sectional survey-based study was conducted over a 6-month period among breast cancer patients attending two major hospitals in Jordan. A validated questionnaire was used to evaluate the prevalence of depression symptoms and quality-of-life aspects among those patients utilizing Beck’s Depression Inventory-II score and 36-Item Survey Form (SF-36) score, respectively. Results The mean age±SD of patients (n=169) was 49.12±6.48 years. Depression symptoms were reported in 30.2% of patients. As for quality-of-life, the physical functioning (PF) subscale was significantly associated with the patient’s age ( P =0.03). The role-physical (RP) subscale was associated with number of sleeping hours ( P =0.038). Marital status of breast cancer patients was significantly associated with role-emotional (RE) ( P =0.015) and mental health (MH) ( P =0.009) subscales. The number of patient’s siblings was significantly associated with daily habits such as PF ( P =0.031) and RP ( P =0.005) subscales. Moreover, the occupation of patients was associated with the PF ( P =0.041) and MH ( P =0.049). Conclusion About one-third of breast cancer patients reported depression symptoms. Quality-of-life subscales among those patients were associated with multiple social and health determinants, such as age, marital status, number of siblings, occupation, and number of sleeping hours. There is urgent need to support this group of patients to help them to cope with depression symptoms and to improve their quality-of-life.

show abstract

“…Therefore, the questionnaires involve many topics related to QoC and QoL that were raised by patients with advanced cancer and relatives themselves. Additionally, a systematic literature review was conducted to identify suitable and valid measurement instruments to use in our study [16]. Furthermore, the approved Dutch Quality framework regarding palliative care [17] has also been taken into account while selecting relevant measurement instruments for the eQuiPe study to maximize the comparability of our results.…”

Section: Data Collectionmentioning

confidence: 99%

Prospective cohort study of patients with advanced cancer and their relatives on the experienced quality of care and life (eQuiPe study): a study protocol

et al. 2020

Self Cite

View full text Add to dashboard Cite

Background Palliative care is becoming increasingly important because the number of patients with an incurable disease is growing and their survival is improving. Previous research tells us that early palliative care has the potential to improve quality of life (QoL) in patients with advanced cancer and their relatives. According to limited research on palliative care in the Netherlands, patients with advanced cancer and their relatives find current palliative care suboptimal. The aim of the eQuiPe study is to understand the experienced quality of care (QoC) and QoL of patients with advanced cancer and their relatives to further improve palliative care. Methods A prospective longitudinal observational cohort study is conducted among patients with advanced cancer and their relatives. Patients and relatives receive a questionnaire every 3 months regarding experienced QoC and QoL during the palliative trajectory. Bereaved relatives receive a final questionnaire 3 to 6 months after the patients’ death. Data from questionnaires are linked with detailed clinical data from the Netherlands Cancer Registry (NCR). By means of descriptive statistics we will examine the experienced QoC and QoL in our study population. Differences between subgroups and changes over time will be assessed while adjusting for confounding factors. Discussion This study will be the first to prospectively and longitudinally explore experienced QoC and QoL in patients with advanced cancer and their relatives simultaneously. This study will provide us with population-based information in patients with advanced cancer and their relatives including changes over time. Results from the study will inform us on how to further improve palliative care. Trial registration Trial NL6408 (NTR6584). Registered in Netherlands Trial Register on June 30, 2017.

show abstract

Measuring health-related quality of life in patients with advanced cancer: a systematic review of self-administered measurement instruments

Cited by 40 publications

References 105 publications

Instruments to assess mental health‐related stigma among health professionals and students in health sciences: A systematic psychometric review

Instruments to assess mental health‐related stigma among health professionals and students in health sciences: A systematic psychometric review

<p>Prevalence of Depression and the Quality-of-Life of Breast Cancer Patients in Jordan</p>

Prospective cohort study of patients with advanced cancer and their relatives on the experienced quality of care and life (eQuiPe study): a study protocol

Contact Info

Product

Resources

About