Measuring emotional support in family networks: Adapting the Family Network Method for individuals with a mild intellectual disability

Giesbers, Sanne A. H.; Tournier, Tess; Hendriks, Lex; Hastings, Richard P.; Jahoda, Andrew; Embregts, P.J.C.M.

doi:10.1111/jar.12512

Cited by 14 publications

(26 citation statements)

References 54 publications

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“…Furthermore, the only information available about the FNM‐ID currently is the face validity of the findings in previous studies and that participants are able to meaningfully complete the process (Giesbers et al . 2019; Giesbers et al . 2020).…”

Section: Discussionmentioning

confidence: 99%

“…Also, when adapting the FNM for use with people with mild intellectual disability (Giesbers et al . 2019), the explanation used in the original FNM (Widmer et al . 2013) about ‘significant family members’ turned out to be too complicated and confusing for people with mild intellectual disability.…”

Section: Discussionmentioning

confidence: 99%

“…Participants were questioned about their family networks using the Family Network Method – Intellectual Disability (FNM‐ID; Giesbers et al . 2019). To ensure that the data collected with participants with mild intellectual disability and students would be comparable, both groups were interviewed using the FNM‐ID.…”

Section: Methodsmentioning

confidence: 99%

“…Several social network measures, of interest within a social capital theoretical perspective, were computed (Giesbers et al . 2019) (see Table 1). Also, the type of family relationship was measured for the significant and supportive/supported family members.…”

Section: Methodsmentioning

confidence: 99%

“…Therefore, the current study focuses on the way a group of randomly sampled emerging adults with mild intellectual disability who live apart from family define their significant family group, and how they describe their family networks in terms of emotional support compared with students of the same sex and age who live apart from family, using family network methodology that has been adapted for people with mild intellectual disability within the theoretical framework of social capital (Giesbers et al . 2019). More specifically, our main research question was how are the self‐reported family network characteristics and family support experiences (i.e.…”

Section: Introductionmentioning

confidence: 99%

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Family‐based social capital of emerging adults with and without mild intellectual disability

Giesbers

Hendriks

Hastings

et al. 2020

J intellect Disabil Res

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Background Family is recognised as an important context for the self‐development of young adults in emerging adulthood, although very little research has addressed the perspective of young people with intellectual disability about their families by using self‐report. This study examined how emerging adults with mild intellectual disability define their family support networks, compared with definitions of students without intellectual disability, within a social capital theoretical framework. Methods Fifty‐three participants with mild intellectual disability and 53 students without intellectual disability were interviewed individually using the Family Network Method – Intellectual Disability (FNM‐ID). Data from the FNM‐ID relate to key social network measures on how individuals define their family groups, and how they perceive existing supportive relationships within their families. Participants with mild intellectual disability and students were compared on the FNM‐ID social network measures. Results Participants with mild intellectual disability reported fewer family members who they considered significant to them than students without intellectual disability. They were less likely to include peers (i.e. friends and partners) and siblings in their significant family networks, had fewer relationships with family members in which they received or gave support, had fewer reciprocal support relationships and had a less central position in their family network. Discussion The family‐based social capital of emerging adults with mild intellectual disability differed from that of students without intellectual disability. They may remain more dependent on their natural family for emotional support as their supportive networks have not necessarily made the transition to networks with emotionally close peer relationships.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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