Measuring Continuity and Discontinuity Following Stroke

Secrest, Janet; Zeller, Richard A.

doi:10.1111/j.1547-5069.2003.00243.x

Cited by 13 publications

(22 citation statements)

References 16 publications

(14 reference statements)

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“…In the aftermath of ABI anxiety is of particular significance because anxiety has been identified as a significant predictor of functional outcome in brain injury survivors (Ponsford et al, 2008). In this context an individual’s perceptions of ‘Continuity of self,’ a concept originating in the nursing literature (Secrest and Zeller, 2003) is crucial to well-being (Haslam et al, 2008). Continuity of self can be understood as the experience of oneself in terms of one’s connection with others, and one’s wholeness or integrity of being.…”

Section: Introductionmentioning

confidence: 99%

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A Longitudinal Study of Relationships between Identity Continuity and Anxiety Following Brain Injury

et al. 2017

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Objective: Anxiety is of particular importance following acquired brain injury (ABI), because anxiety has been identified as a significant predictor of functional outcomes. Continuity of self has been linked to post ABI adjustment and research has linked self-discrepancy to anxiety. This longitudinal study investigates the impact of affiliative and ‘self as doer’ self-categorisations anxiety.Materials and Methods: Data was collected at two time points. Fifty-three adult ABI survivors participating in post-acute community neuro-rehabilitation participated at time one and 32 of these participated at time two. Participants completed a 28-item identity questionnaire based on Leach et al.’s (2008) multicomponent model of ingroup identification which measured the strength of affiliative and self as doer identities. Anxiety was measured using the Hospital Anxiety and Depression Scale.Results: Analysis indicates a significant mediated relationship between affiliative identification and anxiety via self as doer identification. Contrary to initial prediction, this relationship was significant for those with consistency in affiliative self-categorisation and inconsistency in ‘self as doer’ self-categorisation.Conclusion: These findings can be interpreted as evidencing the importance of identity continuity and multiplicity following ABI and contribute to the understanding of these through the use of a social identity approach.

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Section: Introductionmentioning

confidence: 99%

“…Continuity of self can be understood as the experience of oneself in terms of one’s connection with others, and one’s wholeness or integrity of being. On the other hand, discontinuity of self can be thought of in terms of dependence, disconnection, and threatened integrity (Secrest and Zeller, 2003). …”

Section: Introductionmentioning

confidence: 99%

A Longitudinal Study of Relationships between Identity Continuity and Anxiety Following Brain Injury

et al. 2017

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“…Therefore, only the discriminant validity could be assessed. The relative sparing of this dimension in stroke patients may result from internal adaptation and 'disability paradox' [14,17,35] . This phenomenon of disability disparity is not detected by the SF-36 in this sample and it may not be suitable for assessing internal adaptation and coping strategies in stroke patients.…”

Section: Face and Content Validitymentioning

confidence: 99%

Which Is More Valid for Stroke Patients: Generic or Stroke-Specific Quality of Life Measures?

Owolabi

2009

Neuroepidemiology

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Background: It remains unclear whether a generic or specific health-related quality of life (HRQOL) measure is more valid for stroke. Aim: The aim of this study is to compare the validity of SF-36, a generic measure, and HRQOL in stroke patients (HRQOLISP), a stroke-specific measure, for assessing post-stroke HRQOL. Methods: The validity of HRQOLISP and SF-36 was compared in a cross-sectional study of 100 stroke survivors. The Stroke Levity Scale and modified Rankin Scale were applied to measure stroke severity and disability, respectively. Results: Both measures exhibited adequate ‘known-groups’ and construct validity. However, the SF-36 lacked content validity for the cognitive domain and personal constructs including spiritual functioning. Most SF-36 subscales had substantial floor or ceiling effects. The HRQOLISP demonstrated better content and internal consistency validity and no significant floor or ceiling effect. Conclusions: Like other stroke-specific measures, HRQOLISP was better than SF-36 in most parameters of validity considered. The SF-36 is designed for comparison among different diseases and may not be suitable for clinical trials or studies of internal adaptation, cognitive or spiritual functioning in stroke. This is because it lacks content validity for these domains and may underestimate health changes in most subscales.

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“…Furthermore, the HRQOLISP-40 demonstrated good discriminant validity between stroke and control participants and good known-groups validity among different strata of stroke severity in both cities. As predicted, this was pronounced in the physical sphere in contradistinction to the relatively spared spiritual sphere, thereby illustrating disability disparity 13,41 and validating the a priori hypothesis. Such disparity has been reported in 339 Canadian stroke survivors and by Secrest, Clarke, and others.…”

Section: Construct Validity In Comparison To Controls and Other Measuresmentioning

confidence: 73%

“…Such disparity has been reported in 339 Canadian stroke survivors and by Secrest, Clarke, and others. 11,41,42 This could also be related to the previously described "onion theory of happiness" 12 concerning the preservation of core life satisfaction in stroke patients. 12 The stability of the spiritual sphere in stroke patients may be advantageous if it could be modulated therapeutically to provide support, healing, and initiation of positive adjustments for the other aspects of life in order to maintain purposeful and meaningful life despite the strokeinduced physical impairment.…”

Section: Construct Validity In Comparison To Controls and Other Measuresmentioning

confidence: 89%

Psychometric Properties of the HRQOLISP-40: A Novel, Shortened Multiculturally Valid Holistic Stroke Measure

Owolabi

2010

Neurorehabil Neural Repair

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Despite item reduction, the HRQOLISP-40 demonstrated excellent psychometric properties and is valid for routine use and clinical trials in stroke. The relative preservation of the spiritual sphere demonstrated the concept of disability disparity. Its ability to simultaneously assess the physical and spiritual spheres may be beneficial in studies aimed at potentiating internal adaptation in stroke patients.

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Measuring Continuity and Discontinuity Following Stroke

Cited by 13 publications

References 16 publications

A Longitudinal Study of Relationships between Identity Continuity and Anxiety Following Brain Injury

A Longitudinal Study of Relationships between Identity Continuity and Anxiety Following Brain Injury

Which Is More Valid for Stroke Patients: Generic or Stroke-Specific Quality of Life Measures?

Psychometric Properties of the HRQOLISP-40: A Novel, Shortened Multiculturally Valid Holistic Stroke Measure

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