Measuring Coercion to Participate in Research within a Doubly Vulnerable Population: Initial Development of the Coercion Assessment Scale

Dugosh, Karen L.; Festinger, David S.; Croft, Jason R.; Marlowe, Douglas B.

doi:10.1525/jer.2010.5.1.93

Cited by 33 publications

(46 citation statements)

References 25 publications

(23 reference statements)

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“…It may be that criminally-referred adolescents, like their counterparts in adult studies, are prone to consent errors due to perceived coercion to participate in studies (Dugosh, Festinger, Croft, & Marlowe, 2010; Festinger et al, 2011; Moser et al, 2004). That is, those involved with the criminal justice system may not feel entirely autonomous in their decision making when approached by research personnel, whom they may equate with authorities.…”

Section: Discussionmentioning

confidence: 99%

Informed Assent Recall Among Adolescents in Substance Use Disorder Treatment Research

Davis

Lux

Smith

et al. 2016

Journal of Child & Adolescent Substance Abuse

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Evidence suggests that vulnerable populations such as substance users, those involved in the criminal justice system, and those with cognitive deficits often fail to recall information regarding the informed assent process. This study investigated correlates of assent quiz errors (AQE) among adolescents enrolling in a substance use disorder treatment study. Method Adolescents (age 13-19) entering substance use treatment completed a standard informed consent procedure to participate in a longitudinal research study, followed by a brief 6-item assent quiz. Results Informed assent quiz errors were lower in this study relative to those observed in the adult literature. Being male and having lower treatment resistance was associated with making an AQE. Both days of marijuana use and days spent in the criminal justice system were associated with AQE. Hyperactivity-impulsivity approached significance (p = .057) but was not a correlate of AQE. Conclusion Those collecting assent should be aware that heavily-using males involved in the criminal justice system are prone to make more errors, and should use procedures such as assent quizzes to enhance their understanding of study procedures. Future research should investigate the impact of motivation and consider using experimental designs to test adolescent recall of study procedures under various assenting conditions.

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Section: Discussionmentioning

confidence: 99%

Informed Assent Recall Among Adolescents in Substance Use Disorder Treatment Research

Davis

Lux

Smith

et al. 2016

Journal of Child & Adolescent Substance Abuse

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“…Based on a modified version (Festinger et al, 2005) of a perceived coercion scale of the MacArthur Admission Experience Survey (Gardner, Hoge, Bennett, et al, 1993), supplemented with the Coercion Assessment Scale (CAS; Dugosh, Festinger, Croft, & Marlowe, 2010) and the Iowa Coercion Questionnaire (ICQ; Moser, Arndt, Kanz, et al, 2004), and informed by Raven, Schwarzwald, and Koslowsky’s (1998) model of interpersonal influence, we designed a short questionnaire to assess coercion in relation to peer recruitment strategies. We believed that this questionnaire would allow us to better identify the sources of coercion (e.g., types of strategies perceived as coercive), which would be important for developing specific procedures or actions to enhance protections for participants.…”

Section: Methodsmentioning

confidence: 99%

A qualitative analysis of peer recruitment pressures in respondent driven sampling: Are risks above the ethical limit?

Mosher¹,

Moorthi²,

Li³

et al. 2015

International Journal of Drug Policy

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Background This paper examines peer recruitment dynamics through respondent driven sampling (RDS) with a sample of injection drug users in Hartford, CT to understand the strategies participants use to recruit peers into a study and the extent to which these strategies may introduce risks above the ethical limit despite safeguards in RDS. Methods Out of 526 injection drug users who participated in a mixed-method RDS methodology evaluation study, a nested sample of 61 participants completed an in-depth semi-structured interview at a 2-month follow-up to explore their experiences with the recruitment process. Results Findings revealed that participants used a variety of strategies to recruit peers, ranging from one-time interactions to more persistent strategies to encourage participation (e.g., selecting peers that can easily be found and contacted later, following up with peers to remind them of their appointment, accompanying peers to the study site, etc). Some participants described the more persistent strategies as helpful, while some others experienced these strategies as minor peer pressure, creating a feeling of obligation to participate. Narratives revealed that overall, the probability of experiencing study-related risks remains relatively low for most participants; however, a disconcerting finding was that higher study-related risks (e.g., relationship conflict, loss of relationship, physical fights, violence) were seen for recruits who participated but switched coupons or for recruits who decided not to participate in the study and did not return the coupon to the recruiter. Conclusions Findings indicate that peer recruitment practices in RDS generally pose minimal risk, but that peer recruitment may occasionally exceed the ethical limit, and that enhanced safeguards for studies using peer recruitment methods are recommended. Suggestions for possible enhancements are described.

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“…Another study examined three types of perceived coercion among 84 misdemeanor offenders participating in research on a drug court program: (1) concerns about the repercussions of refusing to participate; (2) pressures related to financial compensation; and (3) other pressures to participate (Dugosh et al 2010). Subjects rated their level of agreement with eight survey items.…”

Section: An Empirical Ethics Agenda For Prisoner Researchmentioning

confidence: 99%

An Empirical Ethics Agenda for Psychiatric Research Involving Prisoners

Christopher

Candilis

Rich

et al. 2011

AJOB Primary Research

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In the past 30 years, the incarcerated population in the United States has more than quadrupled to 2.3 million adults. With an alarmingly high prevalence of mental illness, substance use, and other serious health conditions compounding their curtailed autonomy, prisoners constitute perhaps the nation’s most disadvantaged group. Scientifically rigorous research involving prisoners holds the potential to inform and enlighten correctional policy and to improve their treatment. At the same time, prisoner research presents significant ethical challenges to investigators and institutional review boards (IRBs) alike, by subjecting participants to conditions that potentially undermine the validity of their informed consent. In 2006, the Institute of Medicine Committee on Ethical Considerations for Revisions to the Department of Health and Human Services (DHHS) Regulations for Protection of Prisoners Involved in Research recommended both further protections and a more permissive approach to research review that would allow inmates greater access to potentially beneficial research. These recommendations have sparked renewed debate about the ethical trade-offs inherent to prisoner research. In this article, the authors review the major justifications for research with prisoner subjects and the associated ethical concerns, and argue that the field of empirical ethics has much to offer to the debate. They then propose a framework for prioritizing future empirical ethics inquiry on this understudied topic.

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Measuring Coercion to Participate in Research within a Doubly Vulnerable Population: Initial Development of the Coercion Assessment Scale

Cited by 33 publications

References 25 publications

Informed Assent Recall Among Adolescents in Substance Use Disorder Treatment Research

Informed Assent Recall Among Adolescents in Substance Use Disorder Treatment Research

A qualitative analysis of peer recruitment pressures in respondent driven sampling: Are risks above the ethical limit?

An Empirical Ethics Agenda for Psychiatric Research Involving Prisoners

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