Measuring changes in functional ability in older children and young people with acquired brain injury using the UK FIM + FAM

Austin, Dalya; Frater, Tai; Wales, Lorna; Dunford, Carolyn

doi:10.1177/0308022617735036

Cited by 4 publications

(5 citation statements)

References 23 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…13 By convention full independence in the ADLs captured by the UKFIM+FAM is expected by age 8 in typically developing children. Its use for children above this age with ABI has been validated 14 : TCT use other measures 15 in younger children but they were excluded from this analysis. • The Neurological Impairment Score (NIS) provides a summary of a patient's intrinsic impairments due to ABI across 13 domains 16 in a summed score between zero (no impairment) and 50.…”

Section: Methodsmentioning

confidence: 99%

Demonstration of functional rehabilitation treatment effects in children and young people after severe acquired brain injury

Forsyth

Hamilton

Ingram

et al. 2021

Developmental Neurorehabilitation

Self Cite

View full text Add to dashboard Cite

Purpose: To examine relationships between functional outcomes after pediatric acquired brain injury (ABI) and measures of rehabilitation dose. Methods: An observational study of children receiving residential neurorehabilitation after severe ABI. Results: Basic total rehabilitation dose shows a paradoxical inverse relationship to global outcome. This is due to confounding by both initial injury severity and length of stay, and variation in treatment content for a given total rehabilitation dose. Content-aware rehabilitation dose measures show robust positive correlations between fractions of rehabilitation treatment received and plausibly related aspects of outcome: specifically, between rates of recovery of gross motor function and the fraction of rehabilitation effort directed to active practice and motor learning. This relationship was robust to adjustment for therapists' expectations of recovery. Conclusion: Content-aware measures of rehabilitation dose are robustly causally related to pertinent aspects of outcome. These findings are step toward a goal of comparative effectiveness research in pediatric neurorehabilitation.

show abstract

Section: Methodsmentioning

confidence: 99%

Demonstration of functional rehabilitation treatment effects in children and young people after severe acquired brain injury

Forsyth

Hamilton

Ingram

et al. 2021

Developmental Neurorehabilitation

Self Cite

View full text Add to dashboard Cite

show abstract

“…While showing promise, it does not delve in depth into the impacts of trauma in great detail. 27 While the United Kingdom Functional Assessment Measure is routinely used in adult units as part of UKROC 28 and there is growing evidence of its applicability in paediatrics population, 29 there is currently limited uptake in children's units which limits comparisons and a full understanding of the impacts of major trauma on adolescents.…”

Section: Discussionmentioning

confidence: 99%

Pattern of injuries and management of adolescent trauma in a combined adult and paediatric major trauma centre in United Kingdom

Anwar

Mee

Allanson

et al. 2020

Trauma

View full text Add to dashboard Cite

Background Major trauma is a leading cause of death and disability in 16–18-year olds in the UK. Since the launch of major trauma centres (MTCs) in 2012 in UK, survival rates have improved on the whole. The aim of this study was to look at the pathways of 16–18-year olds through one MTC and patterns of rehabilitation provision. Material and methods A retrospective case notes review of all trauma patients aged between 16 and 18 years admitted to one MTC between October 2012 and May 2018. Results One hundred forty-seven young people were identified. 67.3% were male with a mean age of 17.1 years. Motor vehicle accidents were the most common cause of injury (59.2%). Thirty-nine percent had a Glasgow Coma Scale at scene >13. Sixty-three percent were admitted to an adult intensive care unit (ICU), 5.4% to paediatric ICU and 31.3% directly to a ward. Admissions to rehabilitation ward came through adult services with no commissioned equivalent in those admitted to paediatrics. Mean length of stay was 18.1 days. 75.5% of patients were discharged home from the MTC. Discussion The majority of young people were admitted on to adult wards and were able to access commissioned services. However, such services do not provide for the specialist needs of young people, with no access to schooling or parent’s accommodation. Those who were admitted to children’s services missed out on commissioned rehabilitation pathways. Conclusion Young people of transition age often fall between services. For the first time, we illustrate injury patterns and the fragmented services seen in this vulnerable patient group.

show abstract

“…Each item is scored from 1 (complete dependence) to 7 (full independence) and derives total motor, total cognitive and total overall scores. The UKFIM+FAM has concurrent validity (Callen et al., 2017) and has been shown to detect clinically meaningful change in functional ability in children and young people with ABI over 8 years with a range of aetiologies, including childhood stroke (Austin et al., 2018). The Rehabilitation Complexity Scale – E (RCS-E) is a 22-point summed measure designed to evaluate the complexity of rehabilitation needs/intervention (Turner-Stokes et al., 2012).…”

Section: Methodsmentioning

confidence: 99%

Following severe childhood stroke, specialised residential rehabilitation improves self-care independence but there are ongoing needs at discharge

Wales¹,

Dunford

Davis³

2020

British Journal of Occupational Therapy

Self Cite

View full text Add to dashboard Cite

Introduction Stroke is a major cause of mortality and disability in childhood. There is a false belief that children will recover better than adults and recent research confirms that younger age at injury can have a negative impact on rehabilitation outcomes, resulting in lifelong disability. Self-care is a key rehabilitation outcome for children and young people. Methods This service evaluation reviews routinely collected clinical self-care data from one specialised residential rehabilitation centre in the United Kingdom. Admission and discharge scores from the United Kingdom Functional Independence Measure +Functional Assessment Measure, Rehabilitation Complexity Scale – E and Northwick Park Nursing Dependency Scale were analysed. Results Twenty-six children and young people age 8 years and over with severe stroke were included. Mean scores of independence increased and mean scores of complexity and dependency decreased. A proportion of the sample had ongoing self-care needs in relation to support needed in washing, dressing and bathing. A small number remained highly dependent, requiring assistance from two carers. Conclusion Children and young people make significant gains in self-care independence during specialised rehabilitation. However, a proportion return to the community with high self-care needs. Occupational therapists and the wider care team should address ongoing self-care needs in this population.

show abstract

Measuring changes in functional ability in older children and young people with acquired brain injury using the UK FIM + FAM

Cited by 4 publications

References 23 publications

Demonstration of functional rehabilitation treatment effects in children and young people after severe acquired brain injury

Demonstration of functional rehabilitation treatment effects in children and young people after severe acquired brain injury

Pattern of injuries and management of adolescent trauma in a combined adult and paediatric major trauma centre in United Kingdom

Following severe childhood stroke, specialised residential rehabilitation improves self-care independence but there are ongoing needs at discharge

Contact Info

Product

Resources

About