Measures of systemic sclerosis (scleroderma): Health Assessment Questionnaire (HAQ) and Scleroderma HAQ (SHAQ), Physician‐ and Patient‐Rated Global Assessments, Symptom Burden Index (SBI), University of California, Los Angeles, Scleroderma Clinical Trials Consortium Gastrointestinal Scale (UCLA SCTC GIT) 2.0, Baseline Dyspnea Index (BDI) and Transition Dyspnea Index (TDI) (Mahler's Index), Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR), and Raynaud's Condition Score (RCS)

Pope, Janet

doi:10.1002/acr.20598

Cited by 103 publications

(24 citation statements)

References 79 publications

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“…This scale has already been used in SSc [22], [26]–[32]. It has demonstrated reliability [35] and construct, concurrent, and predictive validities in SSc [36].…”

Section: Methodsmentioning

confidence: 99%

Clinical, Functional and Health-Related Quality of Life Correlates of Clinically Significant Symptoms of Anxiety and Depression in Patients with Systemic Sclerosis: A Cross-Sectional Survey

et al. 2014

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ObjectivesTo identify clinical, functional and health-related quality of life (HRQoL) correlates of clinically significant symptoms of anxiety and depression in patients with systemic sclerosis (SSc).MethodsThree-hundred-and-eighty-one patients fulfilling the American College of Rheumatology and/or the Leroy and Medsger criteria for SSc were assessed for visceral involvement, disability and HRQoL (assessed by SF-36). Clinically significant symptoms of anxiety and depression were evaluated with the Hospital Anxiety Depression Scale (HAD) (defined cut-off≥8).Results9.2% the patients had limited SSc, 50.5% limited cutaneous SSc (lcSSc), and 40.3% diffuse cutaneous SSc (dcSSc). Overall, 40.4% and 58.8% of the patients had clinically significant symptoms of depression and anxiety, respectively. Compared to patients without clinically significant symptoms of depression, patients with clinically significant symptoms of depression had poorer health status, HRQoL mental and physical component, and greater global disability, hand disability and aesthetic impairment. Compared to patients without clinically significant symptoms of anxiety, patients with clinically significant symptoms of anxiety had poorer SF-36 mental and physical component scores. On multivariable analysis, excluding mental component score of SF-36, variables independently associated with clinically significant symptoms of depression and anxiety were global disability and physical component of SF-36, plus female gender for clinically significant symptoms of anxiety only. Remarkably, patients with and without clinically significant psychiatric symptoms were comparable for all disease-related clinical features assessed.ConclusionHigh levels of clinically significant symptoms of anxiety and depression are observed among SSc patients. Clinically significant psychiatric symptoms are rather associated with increased disability and altered HRQoL, than with disease-specific organ manifestations.

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“…This scale has already been used in SSc [22], [26]–[32]. It has demonstrated reliability [35] and construct, concurrent, and predictive validities in SSc [36].…”

Section: Methodsmentioning

confidence: 99%

Clinical, Functional and Health-Related Quality of Life Correlates of Clinically Significant Symptoms of Anxiety and Depression in Patients with Systemic Sclerosis: A Cross-Sectional Survey

et al. 2014

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“…Global disease activity and severity were measured using physician-rated scales ranging from 0 to 10, with 0 being no activity or severity and 10 being very severe activity or severity. [ 18 ]…”

Section: Methodsmentioning

confidence: 99%

Quantifying the direct public health care cost of systemic sclerosis

et al. 2017

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“…Pain is a complex experience involving attention to, and interpretation of, sensory, emotional and cognitive experiences (Lee-Chiong, Gebhart, & Mattay, 2010). The 'pain perspective in scleroderma' has been addressed in several papers including those by Williams-Judge (2011) from a nursing perspective in The Rheumatologist and by Pope (2011) in Arthritis Care and Research on assessment of pain levels in scleroderma. Pain is an unpleasant physiological and emotional sensation that acts to protect the body from tissue damage (International Association for the Study of Pain -ISAP, 2012).…”

Section: Pain Scleroderma and The Biopsychosocial Modelmentioning

confidence: 99%

“…Analysis in the current study revealed Cronbach's α coefficients for the total SHAQ to be above .90, indi-cating close relationships between all items on the scale (from the pain item through the physical items). The SHAQ has generally been found to have good psychometric properties (Johnson, Hawker, & Davis, 2005) and to be highly useful in practice (e.g., Pope, 2011;Williams-Judge, 2011).…”

Section: Scleroderma Pain: Questionnairementioning

confidence: 99%

Pain in relation to emotion regulatory resources and self-compassion: a non-randomized correlational study involving recollected early childhood experiences and insecure attachment

Hicks¹,

Kearney²

2019

Health Psychology Report

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health psychology report • volume 7(1), 9 original article background Pain is common in most diseases and is usually treated by medical and physical approaches (medications, exercise). Limited attention has been given to whether non-medical approaches (such as emotion regulation abilities including self-compassion) can help further reduce the pain experienced. Scleroderma (systemic sclerosis), a painful and complex autoimmune connective tissue and vascular disease, was examined in this study in relation to psychological aspects of pain and the links of pain to (1) early life experiences, (2) current insecure attachment style, (3) physiological arousal (negative, hyper-arousal), and (4) personal emotion regulation (self-compassion). Knowledge about these relationships may help in the treatment of pain. participants and procedure Participants (120) from Australia (39) and the United Kingdom (81) completed an online or a hard copy survey; 78 participants remained for analysis after screening. results We found that poor or limited positive early life experiences and a current insecure (dismissive) attachment style contributed significantly to experiencing elevated levels of pain. We also found that negative early life experiences and limited emotion regulation (low self-compassion) predicted hyper-arousal, which in turn was associated with experienced pain. Insecure dismissive attachment style and hyper-arousal were significantly correlated. conclusions These findings suggest that negative childhood experiences and an insecure dismissive attachment style may determine how emotional experiences are regulated or managed by individuals in disease-related pain. Implications include that interventions addressing attachment style and selfcompassion may help reduce pain in the individuals concerned, thus helping supplement the effectiveness of current medication and physical approaches.

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Cited by 103 publications

References 79 publications

Clinical, Functional and Health-Related Quality of Life Correlates of Clinically Significant Symptoms of Anxiety and Depression in Patients with Systemic Sclerosis: A Cross-Sectional Survey

Clinical, Functional and Health-Related Quality of Life Correlates of Clinically Significant Symptoms of Anxiety and Depression in Patients with Systemic Sclerosis: A Cross-Sectional Survey

Quantifying the direct public health care cost of systemic sclerosis

Pain in relation to emotion regulatory resources and self-compassion: a non-randomized correlational study involving recollected early childhood experiences and insecure attachment

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