Measures for rating social participation in people with aphasia: a systematic                 review

Dalemans, Ruth; Witte, Luc de; Lemmens, Jessie; Heuvel, W.J. van den; Wade, Derick T

doi:10.1177/0269215507087462

Cited by 51 publications

(30 citation statements)

References 42 publications

(47 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…It provides a means of capturing individual perceptions of life with aphasia across a variety of domains including real life participation, a construct that is rarely measured for people with aphasia (Dalemans et al, 2008).…”

Section: Discussionmentioning

confidence: 99%

“…For example, Speech Pathology Australia (SPA) and the American Speech-Language-Hearing Association (ASHA) have included quality-of-life in the scope of speech-language pathology practice (ASHA, 2001;SPA, 2003). Research has recognized areas associated with quality-of-life after the onset Assessment tools are needed to identify and quantify life quality issues and help establish relevant and meaningful goals (Cruice et al, 2003;Dalemans, de Witte, Lemmens, van den Heuvel, & Wade, 2008;Doyle, 2005;Doyle, Mikolic, Prieto, Hula, Lustig, Ross, et al, 2004;Engell, H ü tter, Wilmes, & Huber 2003;Hilari, Byng, Lamping, & Smith, 2003;Ross & Wertz, 2003).…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

The assessment for living with aphasia: Reliability and construct validity

Simmons‐Mackie

Kagan²,

Victor

et al. 2013

International Journal of Speech-Language Pathology

View full text Add to dashboard Cite

(2003) and Cruice, Hill, Worrall, and Hickson (2010) identifi ed factors such as engaging in meaningful activities, socializing with others, and having a positive outlook as aspects of QoL in aphasia. Additionally, there is increased awareness that improvements in a clinical setting do not necessarily result in improvements in daily life situations or life satisfaction; thus, there has been a call for interventions that positively and directly affect life quality (Cruice et al., 2003(Cruice et al., , 2005Holland & Thompson, 1998;Kagan & LeBlanc, 2002;LaPointe, 1999; LPAA Project Group, 2000;Ross, 2005;Ross & Wertz, 2003;Sarno, 2004;Simmons-Mackie, 2000, 2008Worrall & Holland, 2003). In order to devise interventions that address QoL, clinicians must understand the impact of communication diffi culties on the daily lives of clients with aphasia.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The assessment for living with aphasia: Reliability and construct validity

Simmons‐Mackie

Kagan²,

Victor

et al. 2013

International Journal of Speech-Language Pathology

View full text Add to dashboard Cite

show abstract

“…Diğer yandan afazi şiddetinden bağımsız olarak iş, iletişim ve boş vakit aktivitelerine katılma gibi kompleks aktiviteleri etkileyerek sosyal katılımları önemli derecede olumsuz şekilde etkiler (10).…”

Section: Afazi̇ Ve Yaşam Kali̇tesi̇unclassified

Post stroke aphasia and quality of life

Armağan¹

2011

Türk Beyin Damar Hast Derg

View full text Add to dashboard Cite

İnme sonrası hastalarının ortalama % 30' unda afazi görülür. Afazi, genellikle beyinin sol hemisferindeki kortikal veya subkortikal hastalıklarına sekonder oluşan dilin hem ifade etme hem de algılama yetenekleri ile ilgili olarak ortaya çıkan edinsel bir fokal nörolojik bozukluktur. Afazik hastaların iletişim problemleri, arkadaşlık ilişkileri, emosyonel durumları ve sosyal katılımlarını olumsuz yönde etkiler. Yani tatmin edici bir yaşam kalitesi sağlamak ve sürdürmek açısından problemlere yol açar. Yaşam kalitesi çok yönlü bir kavramdır. Sakatlığın veya hastalığın birey üzerindeki etkisini basitçe etkilenen özel bir fonksiyon veya sistem kaybı olarak değil, bir bütün olarak gözlenmesine olanak sağlar. Bu nedenle bu alanların yeterli ve güvenilir biçimde ölçülmesi çok önemlidir. Bu derlemede inme sonrası afazili hastaların yaşam kalitesini değerlendirmede kullanılan ölçekler ve yaşam kalitesine etki eden faktörler incelenmiştir. Anahtar Sözcükler: İnme, afazi, yaşam kalitesi. POST STROKE APHASIA and QUALITY of LIFE ABSTRACTAphasia occurs approximately 30% of poststroke patients. Aphasia is an acquired focal neurological disorder secondarily occurs with cortical and subcortical left hemispheric brain disorders and affects the expression and perception capability of the speech. It has some negative impacts on communication, friendships, emotional status and social relationships. Thus, it causes problems in ensuring and maintaining a satisfactory quality of life. Quality of life is a multi-dimensional concept. It enables to assess the impact of a disability or disorder on an individual as a whole rather than simply an affected specific function or loss of a system. Therefore, it is important to measure these scopes adequately and reliable. Present review evaluates the instruments used for assessing the quality of life of aphasic person, as well as investigates the factors that influence the quality of life. Key Words: Stroke, aphasia, quality of life Afazi en çok orta serebral arter ile beslenen kortikal yerleşimli perisilvian aparatı etkileyen patolojilerde ortaya çıkmaktadır. Bazı subkortikal afaziler vertebrobaziller sistemin, transkortikal afaziler ise ön, orta ve arka serebral arterin suladığı kavşak bölgelerdeki problemler sonucu ortaya çıkabilir. İntraserebral ve subaraknoid kanama yapan diğer nedenler, beyin tümörleri, kafa travması, enfeksiyon, apse, ateş ya da nöbet gibi durumlar da afaziye yol açabilir (6,7).Afazi sendromlarında en çok kullanılan Boston afazi sınıflandırılmasına göre afaziler başlıca akıcı ve akıcı olmayanlar şeklinde ayrılır. Boston sistemindeki sekiz major afazi türü Broca afazisi, Wernice afazisi, anomik afazi, iletim afazisi, global afazi ve daha az sıklıkla görülen transkortikal afazi türleridir (5). Afazi tipleri ve klinik özellikleri Tablo 1' de gösterilmiştir (2). GİRİŞİnme, serebral damarların oklüzyonu veya rüptüründen kaynaklanan kalıcı fokal nörolojik kayıpla karakterize bir klinik sendromdur (1) . İnme sonrası hastaların % 40' ında iletişim bozuklukları görülür. En sık görül...

show abstract

“…Instruments were identified from five sources; 1) a systematic review of general participation instruments (Eyssen et al, 2011), 2) a clinically focused review of participation instruments for people with aphasia (Dalemans et al, 2008), 3) a review of communicative participation instruments (Eadie et al, 2006), 4) outcome measures of functional communication in the Cochrane review on therapy studies in aphasia (Brady, Kelly, Godwin & Enderby, 2012), and 5) a search of the literature. The abstracts of PsycInfo, Medline and CINAHL were searched for the terms participation and measure/scale/instrument/assessment /questionnaire/tool and stroke/communication by the primary author of this paper.…”

Section: Instrumentsmentioning

confidence: 99%

“…Others have suggested that proxy instruments are a valid alternative to self-report for people with severe cognitive and communicative difficulties, as long as they involve the person with the health condition as much as possible (Dalemans, de Witte, Lemmens, van den Heuvel & Wade, 2008). …”

Section: Introductionmentioning

confidence: 99%

Performance-based measurement of participation for people with aphasia: using an iPhone application to measure talking time in everyday life

Brandenburg

View full text Add to dashboard Cite

People with aphasia often experience reduced participation in life roles as a result of their communication disorder. The aims of this thesis were to 1) develop an iPhone application (CommFit™) which measures talk time and was easily used by people with aphasia, and 2) to use the app to explore talk time as a possible performance based indicator of participation, as a supplement to currently used self-report measures. This thesis used the International Classification of Functioning, Disability and Health (ICF) as a framework for defining participation and structuring the research.The first (preparatory) phase of this thesis involved reviewing the current state of research in the areas of participation assessment and mobile technology use, in order to inform development of the CommFit™ app. In the first stage of preparation, the concept of participation was reviewed and current self-report measures of participation restriction were crosswalked to ICF categories. Ninety instruments (2,426 items) were coded and of these, 29 instruments contained over 50% participation items. The crosswalk showed that many of the current measures for this population are not participation focused, according to the operational definition of participation developed in this thesis. The Subjective Index of Physical and Social Outcome (SIPSO) emerged from this study as a measure which contained mostly participation content, had been validated with a stroke population, and was appropriate in both format and time required to be used by people with language difficulties. Thus, the SIPSO chosen as the measure of participation for use in the second phase of this research.The second stage of the preparatory phase consisted of a review of the use of mobile technology by people with aphasia, stroke survivors and elderly people. The review focused on synthesising the literature into a list of technology design features that facilitate technology use for this population.These features were; use of multimodal communication, utilisation of aphasia-friendly text features, large buttons, stable interface, simple navigation and lack of visual clutter. These features were integrated into the design and development of an iPhone app which measured talk time-the CommFit™ app.The last stage of the preparatory phase involved a small but in depth study investigating the development and accuracy of CommFit™. The iterative process of developing the CommFit™ app to be aphasia-friendly was described in detail. In the accuracy study, the talk time logged by the app was compared to talk time obtained from a continuous recording. Three non-neurologically ii impaired participants who recorded their daily talk for a total of 10 hours in different environments.Accuracy of the app was found to be satisfactory at ±4% of the true talking time in ideal or silent environments and ±13% in everyday environments. The end result of the preparatory phase was a valid, usable app for counting talk time.The second phase of this research explored the use of CommFit™ to count ...

show abstract

Measures for rating social participation in people with aphasia: a systematic review

Abstract: The Community Integration Questionnaire is possibly suitable for use in people with aphasia when measuring participation, but data on its psychometric properties in people with aphasia are absent.

Cited by 51 publications

References 42 publications

The assessment for living with aphasia: Reliability and construct validity

The assessment for living with aphasia: Reliability and construct validity

Post stroke aphasia and quality of life

Performance-based measurement of participation for people with aphasia: using an iPhone application to measure talking time in everyday life

Contact Info

Product

Resources

About