Measurement properties of the ICECAP-A capability well-being instrument among dermatological patients

Abstract

Background Capability well-being captures well-being based on people’s ability to do the things they value in life. So far, no capability well-being measures have been validated in dermatological patients. Objectives To validate the adult version of the ICEpop CAPability measure (ICECAP-A) in patients with dermatological conditions. We aimed to test floor and ceiling effects, structural, convergent and known-group validity, and measurement invariance. Methods In 2020, an online, cross-sectional survey was carried out in Hungary. Respondents with self-reported physician-diagnosed dermatological conditions completed the ICECAP-A, Satisfaction with Life Scale (SWLS), WHO-5 Well-Being Index and two dermatology-specific measures, Dermatology Life Quality Index (DLQI) and Skindex-16. Results 618 respondents (mean age 51 years) self-reported a physician-diagnosed dermatological condition, with warts, eczema, onychomycosis, acne and psoriasis being the most common. ICECAP-A performed well with no floor and mild ceiling effects. The violation of local independence assumption was found between the attributes of ‘attachment’ and ‘enjoyment’. ICECAP-A index scores correlated strongly with SWLS and WHO-5 (rs = 0.597–0.644) and weakly with DLQI and Skindex-16 (rs = − 0.233 to − 0.292). ICECAP-A was able to distinguish between subsets of patients defined by education and income level, marital, employment and health status. Multigroup confirmatory factor analysis indicated measurement invariance across most of these subgroups. Conclusions This is the first study to validate a capability well-being measure in patients with dermatological conditions. The ICECAP-A was found to be a valid tool to assess capability well-being in dermatological patients. Future work is recommended to test measurement properties of ICECAP-A in chronic inflammatory skin conditions.

A comparative study on the measurement properties of Dermatology Life Quality Index (DLQI), DLQI‐Relevant and Skindex‐16*

“…Nonprobabilistic quota sampling was used, aiming for representativeness in terms of sex, age, level of education, type of settlement and region. Further details of data collection are available elsewhere 31 . Of the 2001 respondents who successfully completed the questionnaire, 618 individuals self‐reported a dermatological condition diagnosed by a physician, and thus, formed the analytical sample for this study.…”

“…Further details of data collection are available elsewhere. 31 Of the 2001 respondents who successfully completed the questionnaire, 618 individuals selfreported a dermatological condition diagnosed by a physician, and thus, formed the analytical sample for this study.…”

Validation of the DLQI questionnaire in assessing the disease burden and principal aspects related to life quality of vitiligo patients

“…One study (Bali et al, 2018 ) used the DLQI questionnaire to study the association between quality of life and clinical characteristics in patients with morphea. Another study (Rencz et al, 2022 ) used it to measure the properties of the ICECAP, a capability wellbeing instrument among dermatological patients.…”