Measurement equivalence of the newly developed Quality of Life in Childhood Epilepsy Questionnaire (<scp>QOLCE</scp>‐55)

Ferro, Mark A.; Goodwin, Shane W.; Sabaz, Mark; Speechley, Kathy N.

doi:10.1111/epi.13296

Cited by 31 publications

(36 citation statements)

References 36 publications

(72 reference statements)

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“…Psychometrically sound and free epilepsy‐specific HRQOL tools include the Quality of Life in Epilepsy (QOLIE) adult (QOLIE‐10, QOLIE‐31, QOLIE‐89) and adolescent (QOLIE‐48) measures and the newer PedsQL Epilepsy Modules . Parent‐proxy report of their child's HRQOL can also be obtained via the Quality of Life in Childhood Epilepsy Questionnaire (4‐18 years old) . Additionally, the assessment of psychiatric/psychological symptoms at baseline can inform the choice of an AED, given that a history of psychological symptoms increases the vulnerability to subsequent behavioral/emotional side effects .…”

Section: Available Evidence For Psychological Treatment Across the Epmentioning

confidence: 99%

Psychological treatments for adults and children with epilepsy: Evidence‐based recommendations by the International League Against Epilepsy Psychology Task Force

et al. 2018

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Given the significant impact that psychosocial factors and epilepsy treatments can have on the health-related quality of life (HRQOL) of individuals with epilepsy and their families, there is great clinical interest in the role of psychological evaluation and treatments to improve HRQOL and comorbidities. Therefore, the International League Against Epilepsy (ILAE) charged the Psychology Task Force with the development of recommendations for clinical care based on evaluation of the evidence from their recent Cochrane review of psychological treatments in individuals with epilepsy. The literature search for a recent Cochrane review of randomized controlled trials investigating psychological treatments for individuals with epilepsy constitutes the key source of evidence for this article. To provide practical guidance to service providers, we provide ratings on study research designs based on (1) the American Academy of Neurology's Level of Evidence system and (2) the Grading of Recommendations, Assessment, Development, and Evaluation system. This paper is the culmination of an international collaboration process involving pediatric and adult psychologists, neurologists, psychiatrists, and neuropsychiatrists. The process and conclusions were reviewed and approved by the ILAE Executive Committee. The strongest evidence for psychological interventions was identified for the most common mental health problems, including depression, neurocognitive disturbances, and medication adherence. Psychological interventions targeting the enhancement of HRQOL and adherence and a decrease in comorbidity symptoms (anxiety, depression) should be incorporated into comprehensive epilepsy care. There is a range of psychological strategies (ie, cognitive behavioral therapy and mindfulness-based therapies) that show promise for improving the lives of persons with epilepsy, and clinical recommendations are provided to assist epilepsy health care providers in treating the comorbidities and challenges associated with epilepsy and its treatments.

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Section: Available Evidence For Psychological Treatment Across the Epmentioning

confidence: 99%

Psychological treatments for adults and children with epilepsy: Evidence‐based recommendations by the International League Against Epilepsy Psychology Task Force

et al. 2018

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“…5,6 HRQoL has been measured among children with epilepsy in several different ways, with a common measure being the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE). Although the QOLCE-55 has demonstrated good measurement properties, [7][8][9] opportunities exist to improve the measure. Although the QOLCE-55 has demonstrated good measurement properties, [7][8][9] opportunities exist to improve the measure.…”

mentioning

confidence: 99%

Development and assessment of the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE‐16)

2018

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The QOLCE-16 is a multidimensional measure of health-related quality of life (HRQoL) with good psychometric properties and a short-estimated completion time. It is notable that the items were calibrated using multidimensional IRT methods to create a measure that conforms to conventional definitions of HRQoL. The QOLCE-16 is an appropriate measure for both clinicians and researchers wanting to record HRQoL information in children with epilepsy.

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“…Quality of Life in Childhood Epilepsy (QoLCE) is a parent‐reported PROM. It has four questionnaire versions with different numbers of items: QoLCE‐76, QoLCE‐55, QoLCE‐16, and a single item G‐QoLCE (Table and ) . The original QoLCE‐76 was developed by a literature review and by adapting items from established instruments.…”

Section: Resultsmentioning

confidence: 99%

“…QoLCE‐55 is a shortened version of the QoLCE‐76 (Table ) . Structural validity was assessed in three studies using factor analysis.…”

Section: Resultsmentioning

confidence: 99%

Epilepsy‐specific patient‐reported outcome measures of children's health‐related quality of life: A systematic review of measurement properties

et al. 2020

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Objective To identify and appraise published evidence of the measurement properties for epilepsy‐specific patient‐reported outcome measures (PROMs) of children's health‐related quality of life (HRQoL). Methods We searched multiple databases for studies evaluating the measurement properties of English‐language epilepsy‐specific PROMs of children's HRQoL. We assessed the methodological quality using the COnsensus‐based Standards for the selection of health Measurement INstruments (COSMIN) guidance. We extracted data about the content validity, construct validity, internal consistency, test‐retest reliability, proxy reliability, responsiveness, and precision, and assessed the measurement properties with reference to standardized criteria. Results We identified 27 papers that evaluated 11 PROMs. Methodological quality was variable. Construct validity, test‐retest reliability, and internal consistency were more commonly assessed. Quality of Life in Childhood Epilepsy (QoLCE) questionnaires are parent‐reported and evaluated more than other PROMs; QoLCE‐55 has good and replicated evidence for structural and construct validity and internal consistency. Health‐Related Quality of Life Measure for Children with Epilepsy (CHEQoL) has both child and parent‐reported versions and good evidence of content, structural, and construct validity. Significance This review identified two leading candidate epilepsy‐specific PROMs for measuring health‐related quality of life in children. Establishing evidence of the responsiveness of PROMs is a priority to help the interpretation of meaningful change scores.

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Measurement equivalence of the newly developed Quality of Life in Childhood Epilepsy Questionnaire (QOLCE‐55)

Cited by 31 publications

References 36 publications

Psychological treatments for adults and children with epilepsy: Evidence‐based recommendations by the International League Against Epilepsy Psychology Task Force

Psychological treatments for adults and children with epilepsy: Evidence‐based recommendations by the International League Against Epilepsy Psychology Task Force

Development and assessment of the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE‐16)

Epilepsy‐specific patient‐reported outcome measures of children's health‐related quality of life: A systematic review of measurement properties

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