“…The proposed definition of NP was "a maladaptive painful state that is generated or amplified by the somatosensory system." 14 This definition was developed by the research team, adapted from the IASP definition of NP. 1 The survey then asked respondents to rate the relevance of 8 items on a 5-point Likert scale (very relevant to very irrelevant).…”
Section: Methodsmentioning
confidence: 99%
“…Participants were also asked to rate the degree to which they agreed with the proposed definition of NP applied to the pediatric populations on a 5-point Likert scale (from strongly disagree to strongly agree). The proposed definition of NP was “a maladaptive painful state that is generated or amplified by the somatosensory system.”14 This definition was developed by the research team, adapted from the IASP definition of NP 1. The survey then asked respondents to rate the relevance of 8 items on a 5-point Likert scale (very relevant to very irrelevant).…”
Section: Methodsmentioning
confidence: 99%
“…7,12,13 Reviews in 2012 and 2016 revealed 2 tools for use in children specific to NP following chemotherapy. 6,14 With respect to CRPS, a systematic review in 2020 revealed no existing screening tools for CRPS in pediatric or adult populations. 15 NP and CRPS are closely related and have overlapping symptoms.…”
mentioning
confidence: 99%
“…In children, causes of NP are highly diverse including trauma, cancer, infectious, genetic, and neurological disorders 7,12,13. Reviews in 2012 and 2016 revealed 2 tools for use in children specific to NP following chemotherapy 6,14. With respect to CRPS, a systematic review in 2020 revealed no existing screening tools for CRPS in pediatric or adult populations 15…”
Objective: Neuropathic pain (NP) and complex regional pain syndrome (CRPS) in children can result in significant disability and emotional distress. Early assessment and treatment could potentially improve pain, function, quality of life, and reduce costs to the health care system. Currently, there are no screening tools for pediatric NP and CRPS. This research aimed to develop and establish the content validity of a screening tool for pediatric NP and CRPS using a phased approach.Materials and Methods: Phase I surveyed clinical experts using a modified Delphi procedure to elicit disease concepts for inclusion. In phase II, a consensus conference including clinicians, researchers, and people with lived experience, informed the initial item pool. Consensus for item inclusion was achieved using a nominal group technique for voting. Phase III used iterative rounds of cognitive interviews with children aged 8 to 18 years with CRPS or NP to evaluate the tool's comprehensiveness and individual item relevance and comprehensibility. Descriptive statistics were used to describe participant characteristics. Content analysis was used to analyze patient interviews.Results: Phase I (n = 50) generated an initial item pool (22 items). Phase II generated a comprehensive item pool (50 items), after which an initial version of the screening tool was drafted. Following phase III (n = 26) after item revision and elimination, 37 items remained.Discussion: The Pediatric PainSCAN is a novel screening tool that has undergone rigorous development and content validity testing. Further research is needed to conduct item reduction, determine scoring, and test additional measurement properties.
“…The proposed definition of NP was "a maladaptive painful state that is generated or amplified by the somatosensory system." 14 This definition was developed by the research team, adapted from the IASP definition of NP. 1 The survey then asked respondents to rate the relevance of 8 items on a 5-point Likert scale (very relevant to very irrelevant).…”
Section: Methodsmentioning
confidence: 99%
“…Participants were also asked to rate the degree to which they agreed with the proposed definition of NP applied to the pediatric populations on a 5-point Likert scale (from strongly disagree to strongly agree). The proposed definition of NP was “a maladaptive painful state that is generated or amplified by the somatosensory system.”14 This definition was developed by the research team, adapted from the IASP definition of NP 1. The survey then asked respondents to rate the relevance of 8 items on a 5-point Likert scale (very relevant to very irrelevant).…”
Section: Methodsmentioning
confidence: 99%
“…7,12,13 Reviews in 2012 and 2016 revealed 2 tools for use in children specific to NP following chemotherapy. 6,14 With respect to CRPS, a systematic review in 2020 revealed no existing screening tools for CRPS in pediatric or adult populations. 15 NP and CRPS are closely related and have overlapping symptoms.…”
mentioning
confidence: 99%
“…In children, causes of NP are highly diverse including trauma, cancer, infectious, genetic, and neurological disorders 7,12,13. Reviews in 2012 and 2016 revealed 2 tools for use in children specific to NP following chemotherapy 6,14. With respect to CRPS, a systematic review in 2020 revealed no existing screening tools for CRPS in pediatric or adult populations 15…”
Objective: Neuropathic pain (NP) and complex regional pain syndrome (CRPS) in children can result in significant disability and emotional distress. Early assessment and treatment could potentially improve pain, function, quality of life, and reduce costs to the health care system. Currently, there are no screening tools for pediatric NP and CRPS. This research aimed to develop and establish the content validity of a screening tool for pediatric NP and CRPS using a phased approach.Materials and Methods: Phase I surveyed clinical experts using a modified Delphi procedure to elicit disease concepts for inclusion. In phase II, a consensus conference including clinicians, researchers, and people with lived experience, informed the initial item pool. Consensus for item inclusion was achieved using a nominal group technique for voting. Phase III used iterative rounds of cognitive interviews with children aged 8 to 18 years with CRPS or NP to evaluate the tool's comprehensiveness and individual item relevance and comprehensibility. Descriptive statistics were used to describe participant characteristics. Content analysis was used to analyze patient interviews.Results: Phase I (n = 50) generated an initial item pool (22 items). Phase II generated a comprehensive item pool (50 items), after which an initial version of the screening tool was drafted. Following phase III (n = 26) after item revision and elimination, 37 items remained.Discussion: The Pediatric PainSCAN is a novel screening tool that has undergone rigorous development and content validity testing. Further research is needed to conduct item reduction, determine scoring, and test additional measurement properties.
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