Measure Yourself Concerns and Wellbeing (MYCaW): An individualised questionnaire for evaluating outcome in cancer support care that includes complementary therapies

Paterson, Charlotte; Thomas, Kate; Manasse, A; Cooke, Helen; Peace, G

doi:10.1016/j.ctim.2006.03.006

Cited by 117 publications

(91 citation statements)

References 10 publications

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“…In addition, using MYCaW could be an invaluable component in the internal service evaluation for any cancer support service. Types of Concerns and Problems: 782 patients reported 1729 concerns, which were analysed using a published framework [17]. The three most reported categories for each supercategory are detailed above …”

Section: Resultsmentioning

confidence: 99%

“…This paper reports on the use of an outcome tool, the Measure Yourself Concerns and Wellbeing (MYCaW) questionnaire, which has been developed by a team of researchers, service providers and service users, specifically as a combined qualitative and quantitative data approach in this population. MYCaW is an individualized questionnaire which allows the respondent to specify their concerns, score the severity of these concerns and their level of wellbeing, and also write about important aspects of their lives and their treatment experiences in their own words [17].Repeated completion provides quantitative and qualitative data that can be compared at different stages of treatment. MYCaW is now being used in at least 10 UK cancer support centres and a few centres in North America and is reported to be popular because of its brevity, acceptability, appropriateness, and responsiveness to change [17;18] Details of the development of MYCaW, as an adaptation of Measure Yourself Medical Outcomes Profile, MYMOP, and the psychometric properties of these measures are reported elsewhere [17,20 21] Summarising and analyzing the written qualitative data collected with MYCaW can prove challenging, but recent work by Polley et al (2007), using the same qualitative data reported in this paper, has provided a structure for such analysis, thus promoting more detailed and comparative reporting of the qualitative data alongside the quantitative scores [19].…”

Section: Introductionmentioning

confidence: 99%

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Individualised and complex experiences of integrative cancer support care: combining qualitative and quantitative data

Seers

Gale

Paterson

et al. 2009

Support Care Cancer

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ObjectivesThe widespread use of complementary therapies alongside biomedical treatment by people with cancer is not supported by evidence from clinical trials. We aimed to use combined qualitative and quantitative data to describe and measure individualized experiences and outcomes. Methods In three integrative Cancer Support Centres (two breast cancer only) in the UK, consecutive patients completed the individualised outcome questionnaire Measure Yourself Concerns and Wellbeing (MYCaW) before and after treatment. MYCaW collects quantitative data (7-point scales) and written qualitative data and the qualitative data were analysed using published categories. Results 782 participants, 92% female, mean age 51yrs, nominated a wide range of concerns. Psychological and emotional concerns predominated. At follow-up, the mean change (improvement) in scores (n=588) were: concern 1, 2.06 (95% CI 1.92-2.20); concern 2, 1.74 (95% CI 1.60-1.90); and wellbeing, 0.64 (95% CI 0.52-0.75. The most common responses to 'what has been the most important aspect for you?' were 'receiving complementary therapies on an individual or group basis' (26.2%); 'support and understanding received from therapists' (17.1%) and 'time spent with other patients at the centres' (16.1%). Positive (61.5%) and negative (38.5%) descriptions of 'other things affecting your health' correlated with larger and smaller improvement in concerns and wellbeing respectively Conclusions In a multi-centre evaluation the MYCaW questionnaire provides rich data about patient experience, changes over time and perceptions of what was important to each individual with cancer within that experience. It is unlikely that meaningful evaluations of this complex intervention could be carried out by quantitative methods alone.

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Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Individualised and complex experiences of integrative cancer support care: combining qualitative and quantitative data

Seers

Gale

Paterson

et al. 2009

Support Care Cancer

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“…Most notably Peace and Manasse [13] used MYMOP to measure the outcome of cancer patients using the Cavendish Cancer Centre, and, Paterson et al [12] went on to report the use of MYCaW in the 2 cancer support centres in England. Both studies reported similar 'concerns and problems' data which were categorised into 'Physical, Emotional, Stress Management, Support, Hospital related and Need for a Positive Outlook'.…”

Section: Discussionmentioning

confidence: 99%

How to summarise and report written qualitative data from patients: a method for use in cancer support care

Polley

Seers²,

Cooke³

et al. 2007

Support Care Cancer

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Goals of work:MYCaW questionnaires from people at these cancer support centres was carried out. The "concerns", "other things going on in their life" and "important aspects of centre" were thematically categorised, externally validated by a focus group and the inter-rater reliability calculated. Main results: Clinical information from a cancer patient's perspective was collected that is not measured on standard quality of life questionnaires; furthermore some themes acknowledge the multifaceted aspects of CAM provision, rather than information only relating to the therapeutic intervention. Categories for qualitative MYCaW analysis have been established providing a tool for future research and/or service delivery improvement within cancer support centres such as these. Conclusions: The established themes provide a framework to aid analysis of qualitative aspects of complementary therapy care for people with cancer, improving our understanding of how the patient's cancer experience can be aided by complementary therapies in specialized cancer centres.

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“…This measurement element has mainly been explored within the previous paper (Gethin-Jones, 2012) by the use of the MYCAW questionnaire (Paterson et al, 2007). However, this measurement did not explain why the change had occurred for the outcome-focussed group.…”

Section: Model Of Carementioning

confidence: 99%

Outcomes and well‐being part 2: a comparative longitudinal study of two models of homecare delivery and their impact upon the older person self‐reported subjective well‐being. A qualitative follow up study paper

Gethin‐Jones

2012

Working With Older People

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Outcomes and well-being part 2: a comparative longitudinal study of two models of homecare delivery and their impact upon the older person self-reported subjective well-being. A qualitative follow up study paperStephen Gethin-Jones AbstractPurpose -This paper aims to follow up on a previous quantitative research project which established that outcome-focussed care appeared to be associated with an increase in the individuals' subjective well-being. The purpose of this paper is to establish why the intervention enabled this.Design/methodology/approach -The study utilised a qualitative approach to gather the subjective experience of the individual service users. The sample consisted of 20 service users, who were subject of two semi-structured interviews; one interview at the start of the intervention and one at the six month stage. The data were then analysed under core themes raised by the service user in these interviews. The sample was divided into two, with one group receiving the outcome-focussed model of care and the other group receiving the traditional time focussed care.Findings -The research established that service users' subjective well-being improved due to the ability of outcome-focussed care to provide consistency, flexibility and most importantly the ability of the service user to form a relationship with the homecare workers providing their care.Practical implications -This paper will assist professionals to understand why outcome-focus care has a profound impact upon service users' subjective well-being as opposed to the existing task focussed care.Originality/value -This and the previous paper provide an insight into how different processes and models of intervention impact upon the subjective well-being of socially isolated older people.

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Measure Yourself Concerns and Wellbeing (MYCaW): An individualised questionnaire for evaluating outcome in cancer support care that includes complementary therapies

Cited by 117 publications

References 10 publications

Individualised and complex experiences of integrative cancer support care: combining qualitative and quantitative data

Individualised and complex experiences of integrative cancer support care: combining qualitative and quantitative data

How to summarise and report written qualitative data from patients: a method for use in cancer support care

Outcomes and well‐being part 2: a comparative longitudinal study of two models of homecare delivery and their impact upon the older person self‐reported subjective well‐being. A qualitative follow up study paper

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