Meaningful Moments

Kobler, Kathie; Limbo, Rana; Kavanaugh, Karen

doi:10.1097/01.nmc.0000287998.80005.79

Cited by 49 publications

(16 citation statements)

References 30 publications

(43 reference statements)

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“…This study also showed that, the religious practice improved mothers’ perception of perinatal loss. A strong religious background made them feel better and this was also observed in other earlier studies [22,23]. …”

Section: Discussionsupporting

confidence: 87%

Psychosocial impact of perinatal loss among Muslim women

Sutan

Miskam

2012

BMC Women's Health

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BackgroundWomen of reproductive age are vulnerable to psychosocial problems, but these have remained largely unexplored in Muslim women in developing countries. The aim of this study was to explore and describe psychosocial impact and social support following perinatal loss among Muslim women.MethodsA qualitative study was conducted in a specialist centre among Muslim mothers who had experienced perinatal loss. Purposive sampling to achieve maximum variation among Muslims in relation to age, parity and previous perinatal death was used. Data was collected by focus group discussion and in-depth unstructured interview until the saturation point met. Sixteen mothers who had recent perinatal loss of wanted pregnancy, had received antenatal follow up from public or private health clinics, and had delivery in our centre participated for the study. All of them had experienced psychological difficulties including feelings of confusion, emptiness and anxiety over facing another pregnancy.ResultsTwo out of sixteen showed anger and one felt guilt. They reported experiencing a lack of communication and privacy in the hospital during the period of grief. Family members and friends play an important role in providing support. The majority agreed that the decision makers were husbands and families instead of themselves. The respondents felt that repetitive reminder of whatever happened was a test from God improved their sense of self-worth. They appreciated this reminder especially when it came from husband, family or friends closed to them.ConclusionMuslim mothers who had experienced perinatal loss showed some level of adverse psychosocial impact which affected their feelings. Husbands and family members were the main decision makers for Muslim women. Health care providers should provide psychosocial support during antenatal, delivery and postnatal care. On-going support involving husband should be available where needed.

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Section: Discussionsupporting

confidence: 87%

Psychosocial impact of perinatal loss among Muslim women

Sutan

Miskam

2012

BMC Women's Health

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“…Out of 93 articles identified through the literature searches, 37 met inclusion criteria: Crom, 1995; De Trill & Kovalcik, 1997; Flores et al, 1998, 2000; Levetown, 1998; Cantro et al, 2002; Crawley et al, 2002; Koenig & Davies, 2002; Solomon et al, 2002; Field & Behrman, 2003; Mazanec & Tyler, 2003; Himelstein et al, 2004; Kato et al, 2004; Munet-Vilaro, 2004; Owens & Randhawa, 2004; Kemp, 2005; Abbe et al, 2006; Anghelescu et al, 2006; Campbell, 2006; Lobar et al, 2006; Mack et al, 2006; Meyer et al, 2006; Tomlinson et al, 2006; Kobler et al, 2007; Thibodeaux et al, 2007; Benini et al, 2008; Davies et al, 2008; Jacob et al, 2008; Kongnetiman et al, 2008; Surbone, 2008; Dell, 2009; Cantro et al, 2010; Gupta et al, 2010; Hatano et al, 2011; Moody et al, 2011). From these, seven distinct themes emerged that have implications for pediatric palliative care.…”

Section: Resultsmentioning

confidence: 99%

“…Families may have strong feelings about issues such as autopsy and organ donation. It is critically important that each family be asked about their own traditions and beliefs so that whenever possible, arrangements can be made to respectfully accommodate families (Kobler et al, 2007). …”

Section: Resultsmentioning

confidence: 99%

Cultural and religious considerations in pediatric palliative care

et al. 2012

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Objective A growing multicultural society presents healthcare providers with a difficult task of providing appropriate care for individuals who have different life experiences, beliefs, value systems, religions, languages, and notions of healthcare. This is especially vital when end-of-life care is needed during childhood. There is a dearth of literature addressing cultural considerations in the pediatric palliative care field. As members of a specific culture often do not ascribe to the same religious traditions, the purpose of this article was to explore and review how culture and religion informs and shapes pediatric palliative care. Method Comprehensive literature searches were completed through an online search of nine databases for articles published between 1980 and 2011: PsychINFO, MEDLINE®, Journal of Citation Reports-Science Edition, Embase, Scopus, CINAHL®, Social Sciences Citation Index (SSCI), EBSCO, and Ovid. Key terms included: culture, transcultural, spiritual, international, ethnic, customs or religion AND end-of-life, palliative care, death, dying, cancer, or hospice, and children, pediatrics, or pediatric oncology. Reference lists in the retrieved articles were examined for additional studies that fit the inclusion criteria, and relevant articles were included for review. In addition, web-based searches of specific journals were conducted. These included, but were not limited to: Qualitative Health Research, Psycho-Oncology, Journal of Psychosocial Oncology, Journal of Pediatric Psychology, Journal of Pediatric Health Care, Journal of Pediatric Oncology Nursing, Omega, Social Work in Health Care, and Journal of Palliative Medicine. Results Thirty-seven articles met eligibility criteria. From these, seven distinct themes emerged that have implications for pediatric palliative care. These include the role of culture in decision-making, faith and the involvement of clergy, communication (spoken and unspoken language), communicating to children about death (truth telling), the meaning of pain and suffering, the meaning of death and dying, and location of end-of-life care. Significance of results The review of the literature provides insight into the influence of religion and how culture informs lifestyle and shapes the experiences of illness, pain, and end-of-life care. Recommendations for providing culturally sensitive end-of-life care are offered through the framework outlined in the Initiative for Pediatric Palliative Care Quality Improvement Project of 2002. Cultural traditions are dynamic, never static, and cannot be generalized to all families. Guidelines to aid in approaches to palliative care are provided, and providers are encouraged to define these important differences for each family under their care.

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“…Regardless, in practice, nurses should talk to parents to determine which rituals would comfort them at the time of the loss (Kobler, Limbo, & Kavanaugh, 2007). Open and caring communication could include describing the practices that are currently used in the institution, and asking the parents if there are different, or other practices they would prefer.…”

Section: Implications For Practicementioning

confidence: 99%

Perinatal Grief in Latino Parents

Whitaker

Kavanaugh

Klima

2010

McN: The American Journal of Maternal/Child Nursing

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Extensive research exists that describes the meaning of perinatal loss to some parents, but the experience of loss from the perspective of Latino parents is not clearly understood. Additionally, current perinatal bereavement practices used often to facilitate memory-making for parents (such as viewing or holding the baby, taking photographs, or collecting mementos) are based upon research done primarily with non-Latino families. Are these common practices appropriate for this population? Because there is a paucity of research on this topic, this article describes what has been written over the past 30 years on the topic of grief and perinatal loss in Latino culture.

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Meaningful Moments

Cited by 49 publications

References 30 publications

Psychosocial impact of perinatal loss among Muslim women

Psychosocial impact of perinatal loss among Muslim women

Cultural and religious considerations in pediatric palliative care

Perinatal Grief in Latino Parents

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