Meaning in life and its relationship with family cohesion: A survey of patients with palliative care in China

Liu, Xiaocheng; Wu, Xiaoying; Cheng, Qinqin; Ying, Wenjuan; Gong, Xun; Lu, Dali; Zhang, Yan; Liu, Zhili

doi:10.1016/j.apjon.2022.100118

Cited by 3 publications

(3 citation statements)

References 35 publications

(36 reference statements)

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“…In addition, the widespread development of life and death education in the West fosters a relatively calm acceptance of death, facilitating more direct doctor–patient communication [ 45 , 46 ]. Many obstacles exist for PPC in China, including cultural barriers, which may not be openly expressed by patients or their families, leading to misinterpretation of medical information and palliative care choices [ 44 , 47 ]. Multicultural nursing requires consideration of patients’ cultural backgrounds, religious beliefs, worldviews, and values to provide effective care.…”

Section: Discussionmentioning

confidence: 99%

Differences in the knowledge, attitudes, and needs of caregivers and healthcare providers regarding palliative care: a cross-sectional investigation in pediatric settings in China

Lin,

Qulian,

Bai

et al. 2024

BMC Nurs

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Background Countries abroad have implemented pediatric palliative treatment for several years; however, complete pediatric palliative treatment guidelines and legal guidance remain lacking in China, making the implementation of palliative care difficult. Purpose This study aimed to understand the current situation, similarities, and differences in the knowledge, attitudes, and needs of caregivers and healthcare providers regarding palliative care for children. Methods This cross-correlation study collected data from pediatric and neonatal intensive care units of four hospitals in China. The participants comprised 180 caregivers and 172 healthcare providers. The measurement tools included the palliative care knowledge scale, palliative care attitude scale, and pediatric palliative care needs scale. This study adhered to the STROBE reporting guidelines. Results Significant differences in palliative care knowledge, attitudes, and needs were observed between caregivers and healthcare providers (p < 0.005). Pediatric healthcare providers demonstrated higher knowledge and positive attitudes regarding palliative care than caregivers. Needs for communication in general and relief from pain and other symptoms of caregivers were higher than those of healthcare providers (p < 0.001). Furthermore, palliative care attitude and needs of healthcare providers were positively correlated with each other (r = 0.212, p < 0.005). Conclusion Pediatric healthcare providers and caregivers demonstrated different perceptions of needs for palliative care. The results of this study can serve as a reference for the future development of guidelines related to children’s needs and related interventions.

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Section: Discussionmentioning

confidence: 99%

Differences in the knowledge, attitudes, and needs of caregivers and healthcare providers regarding palliative care: a cross-sectional investigation in pediatric settings in China

Lin,

Qulian,

Bai

et al. 2024

BMC Nurs

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“…The traditional Chinese view of life and death holds that talking about death is a symbol of misfortune and fear, which makes Chinese people afraid to talk about death [ 36 ]. This concept is deeply rooted in the hearts of the people, which not only makes family members avoid talking about death, but also brings certain psychological pressure for medical staff to talk about “death” and “palliative care” to parents, which hinders the behavior of palliative care for newborns [ 37 – 39 ]. The cause of palliative care for newborns should be raised to the level of safeguarding human dignity, reducing social burden and reflecting human civilization [ 40 ].…”

Section: Discussionmentioning

confidence: 99%

The knowledge, attitude and behavior on the palliative care among neonatal nurses: what can we do

Yan,

Hu,

et al. 2024

BMC Palliat Care

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Background Neonatal nurses should provide timely and high-quality palliative care whenever necessary. It’s necessary to investigate the knowledge, attitude and behavior of palliative care among neonatal nurses, to provide references and evidences for clinical palliative care. Methods Neonatal intensive care unit (NICU) nurses in a tertiary hospital of China were selected from December 1 to 16, 2022. The palliative care knowledge, attitude and behavior questionnaire was used to evaluate the current situation of palliative nursing knowledge, attitude and behavior of NICU nurses. Univariate analysis and multivariate logistic regression analysis were used to analyze the influencing factors. Results 122 nurses were finally included. The average score of knowledge in neonatal nurses was 7.68 ± 2.93, the average score of attitude was 26.24 ± 7.11, the score of behavior was 40.55 ± 8.98, the average total score was 74.03 ± 10.17. Spearman correlation indicated that score of knowledge, attitude and behavior of palliative care in neonatal nurses were correlated with the age(r = 0.541), year of work experience(r = 0.622) and professional ranks and titles(r = 0.576) (all P < 0.05). Age (OR = 1.515, 95%CI: 1.204 ~ 1.796), year of work experience (OR = 2.488, 95%CI: 2.003 ~ 2.865) and professional ranks and titles (OR = 2.801, 95%CI: 2.434 ~ 3.155) were the influencing factors of score of knowledge, attitude and behavior of palliative care (all P < 0.05). Public contribution NICU nurses have a positive attitude towards palliative care, but the practical behavior of palliative care is less and lack of relevant knowledge. Targeted training should be carried out combined with the current situation of knowledge, attitude and practice of NICU nurses to improve the palliative care ability and quality of NICU nurses.

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“…17 For example, in some hospitals in China, family dynamics were used as one of the criteria for assessing a patient's prognosis. 18 Most Chinese people want to spend their last days with their family or at home, 19 but there is a lack of research on home palliative care in China, with only a few studies published in domestic journals that examine the delivery and implementation of home palliative care. [20][21][22] Current research on preference and palliative care focused mainly on these two areas: preference of the location of death and the preferred palliative care plans.…”

Section: Introductionmentioning

confidence: 99%

Do People Prefer Home Palliative Care? A Survey Study and Assessment of Associated Factors in China

Tong,

Wang,

Cao

2024

J Palliat Care

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Objectives: This study examined people's preference for the location to receive palliative care services and determined the associated factors. Methods: A questionnaire with reference to the Chinese version of the Hospice Attitude Scale and the Death Correspondence Scale was designed, piloted, revised, and distributed online and in person to collect data (N = 762). Binary logistic regression was used to analyze the effects of relevant factors. Results: The average age of the participants was 38.1, with a relatively even gender distribution. Over 90% of the participants were either single/never married (44.9%) or married with children (46.0%). 58.1% of the respondents (N = 428) indicated that they would like to receive palliative care at home, compared to 41.9% who preferred receiving such care in institutions or other places (N = 309). Each time people's attitudes toward death became one point more positive, they were 10.2% more likely to choose to receive palliative care services at home. People with a neutral attitude toward palliative care, single/never married or divorced with children, and having/had an occupation in health and social work had higher odds of preferring receiving palliative care at home. Those who had poor self-rated health or with an educational background of primary school or lower or some college had lower odds of preferring receiving palliative care at home. Conclusions: The research showed that attitudes toward death and other factors were associated with people's preferences for palliative care locations. More accessible and affordable community-based and home-based palliative care services should be further explored and provided.

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Meaning in life and its relationship with family cohesion: A survey of patients with palliative care in China

Cited by 3 publications

References 35 publications

Differences in the knowledge, attitudes, and needs of caregivers and healthcare providers regarding palliative care: a cross-sectional investigation in pediatric settings in China

Differences in the knowledge, attitudes, and needs of caregivers and healthcare providers regarding palliative care: a cross-sectional investigation in pediatric settings in China

The knowledge, attitude and behavior on the palliative care among neonatal nurses: what can we do

Do People Prefer Home Palliative Care? A Survey Study and Assessment of Associated Factors in China

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