‘Me at the Centre’: perspectives of children with disabilities on community-based services in Serbia

Avramović, Maša; Žegarac, Nevenka

doi:10.1080/14733285.2015.1136735

Cited by 5 publications

(6 citation statements)

References 15 publications

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“…Those studies adopt discrete disciplinary perspectives and often focus on specific issues. For example, several recent articles discussed the situation of children with disabilities [28,29]. In the context of broader analysis, scholars highlight that people with disabilities remain at the margins of Serbian society and experience structural discrimination through segregation and institutionalisation [30].…”

Section: Situating the Studymentioning

confidence: 99%

Participation, Legal Capacity, and Gender: Reflections from the United Nations Partnership on the Rights of Persons with Disabilities Project in Serbia

2023

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The United Nations Convention on the Rights of Persons with Disabilities (CRPD) establishes that people with disabilities shall enjoy their human rights on an equal basis with others. Those rights include the right to legal capacity and to protection against discrimination, including intersectional and multiple forms of discrimination on the basis of disability and gender. In an effort to support the realisation of the CRPD, the United Nations team in Serbia undertook a project to address the implementation of these rights under the UN Partnership on the Rights of Persons with Disabilities (UNPRPD) programme. Namely, by bringing together stakeholders from the UN, government and civil society, the UNPRPD project in Serbia sought to create structural changes to uphold the rights of people with disabilities. With a view of understanding the process of change within, rather than the outcomes of, this UPRPD project, twenty-eight semi-structured interviews were conducted using the Most Significant Change Technique (MSCT) with key stakeholders involved in such a project. The interviews were analysed using Interpretive Phenomenological Analysis (IPA) to preserve the unique and diverse perspectives of participants who had differing roles across the project. The analysis allowed us to identify a number of facets of the process that facilitate structural change: coalition-building events; strengthening stakeholder capacity and relationships; the participation of persons with disabilities; and innovation in terms of what made the project significant, novel and in itself a change. All these facets are discussed in this article, with the purpose of supporting global efforts in alignment with the CRPD. On the whole, this article aims to support a better understanding of disability-inclusive development projects in line with the CRPD and to give evidence on how countries may begin to tackle the structural exclusion of persons with disabilities in society.

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Section: Situating the Studymentioning

confidence: 99%

Participation, Legal Capacity, and Gender: Reflections from the United Nations Partnership on the Rights of Persons with Disabilities Project in Serbia

2023

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“…Service providers provided practical support during therapies (Daniels et al, 2017;Krsmanović et al, 2017;Pejovic Milovancevic et al, 2018), education (Lisak et al, 2017;Pejovic Milovancevic et al, 2018;Stančić et al, 2015), and different social services (Avramović & Žegarac, 2016;Jelić & Mihajlović-Babić, 2018;Karačić, 2012;Leutar & Marković, 2011;Milic Babic & Dowling, 2015;Žganec et al, 2012). The most common therapies provided to children with ASD were standard developmental non-pharmacological treatments (Daniels et al, 2017;Krsmanović et al, 2017;Pejovic Milovancevic et al, 2018).…”

Section: Types Of Support Reported By Pwdmentioning

confidence: 99%

“…Children with DD attended special schools most frequently, followed by inclusive classrooms and special classrooms in mainstream schools (Krsmanović et al, 2017;Pejovic Milovancevic et al, 2018). Through community-based services, children with DD acquired skills needed for leisure activities and activities of daily living, as well as for socialisation and community inclusion (Avramović & Žegarac, 2016). PWD reported day habilitation services and personal assistance (Jelić & Mihajlović-Babić, 2018;Žganec et al, 2012), while home assistance was less frequent (Leutar et al, 2007;Žganec et al, 2012).…”

Section: Types Of Support Reported By Pwdmentioning

confidence: 99%

“…Their well-being was improved as their children received community-based support (Ignjatovic-Dzamonja et al, 2017). Children with DD became more skilled, educated, and independent by learning different self-help skills, basic literacy, and social skills (Avramović & Žegarac, 2016;McConkey et al, 2013). PWD became more independent, developed new skills, improved self-esteem and community inclusion (Jelić & Mihajlović-Babić, 2018;Petrović et al, 2016).…”

Section: Effects Of Supportmentioning

confidence: 99%

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Formal and informal support for Croatian and Serbian people with disabilities and their families: A scoping review

Čolić,

Buljevac

2023

Spec eduk i rehabilitacija

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Introduction. Formal and informal support are important for quality of life of people with disabilities and their families. Objective. The aim of this paper was to (a) identify types of and satisfaction with support for Croatian and Serbian people with disabilities (PWD) and their caregivers and (b) summarise the effects of support reported by PWD and/or their caregivers in Croatia and Serbia. Methods. A systematic search was conducted, followed by eligibility screening of the peer-reviewed articles published from 2000 to June 2020. EBSCOhost, Hrčak, and the Serbian Citation Index [Srpski Citatni Indeks] databases were searched. We also searched the grey literature using Google Scholar and employed backward reference searching. The authors scanned articles and extracted the data related to the country, study's aim, study's design, sample, methodology, and findings. Twenty seven studies were included in this review. Results. Croatian and Serbian PWD and their caregivers received informational, emotional, practical, and financial support at different degrees. They were most satisfied with informal support, while the degree of satisfaction with formal support varied. They highly valued support programs. Conclusion. Croatia and Serbia, in general, lack a formal support system, and informal support is the most prevalent for PWD and their caregivers. There is a need for more support programs for families of PWD.

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“…Important is the inclusion and empowerment of different children and how they feel about the spaces that are created in projects, services and everyday life. This may include, for example, the way in which children with disability are informing service development as was assessed with children in Serbia (Avramović and Žegarac 2016); or the Warren project in the United Kingdom that set up a space for young people who were homeless, unemployed and viewed by many as displaying anti-social behaviour (see Box 13). We didn't call it participation then.…”

Section: Empowermentmentioning

confidence: 99%

Learning from a Living Archive: Rejuvenating Child and Youth Rights and Participation

Johnson¹,

Lewin²,

Cannon³

2020

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This paper reflects the findings of the first phase of the REJUVENATE project, which set out to understand and map approaches to integrating children, youth, and community participation in child rights initiatives. We did this through a scoping of existing practitioner and academic literature (developing a project-based literature review matrix), a mapping of key actors, and the development of a typology of existing approaches. All three of these elements were brought together into a ‘living archive’, which is an evolving database that currently comprises 100 matrices, and a ‘collection’ of key field practitioners (many of whom we have interviewed for this project). In this paper we: (1) present a user-friendly summary of the existing tradition of substantive children’s participation in social change work; (2) share case studies across various sectors and regions of the world; (3) highlight ongoing challenges and evidence gaps; and (4) showcase expert opinions on the inclusion of child rights and, in particular, child/youth-led approaches in project-based work.

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‘Me at the Centre’: perspectives of children with disabilities on community-based services in Serbia

Cited by 5 publications

References 15 publications

Participation, Legal Capacity, and Gender: Reflections from the United Nations Partnership on the Rights of Persons with Disabilities Project in Serbia

Participation, Legal Capacity, and Gender: Reflections from the United Nations Partnership on the Rights of Persons with Disabilities Project in Serbia

Formal and informal support for Croatian and Serbian people with disabilities and their families: A scoping review

Learning from a Living Archive: Rejuvenating Child and Youth Rights and Participation

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