Maternal Time and the Care of Disabled Children

Brust, Janny Dwyer; Leonard, Barbara J.; Sielaff, Bruce H.

doi:10.1111/j.1525-1446.1992.tb00097.x

Cited by 30 publications

(29 citation statements)

References 12 publications

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“…The presence of any chronic illness in the mentally disabled child is found to be one of the predictors for psychiatric morbidity in the mother. [1921] Adequate measures to address these issues might relieve the mothers of some stress they have to deal with. Providing adequate information on child disability and the availability of services along with caring skills training of dealing with a disabled child has a great impact on reducing the psychological distress among mothers of disabled children.…”

Section: Conclusion and Discussionmentioning

confidence: 99%

The clinical profile of mentally retarded children in India and prevalence of depression in mothers of the mentally retarded

Nagarkar

Sharma

Tandon

et al. 2014

Indian J Psychiatry

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Background:Mental retardation (MR) has a varied phenomenology in different parts of the world. While studying MR, psychological issues of caretakers are equally relevant. A study to investigate the phenomenology of MR in Indian children and the prevalence of depression in their mothers was planned in a teaching institute in Madhya Pradesh with an attached tertiary care hospital.Objectives:The objective of the following study is to study the clinical profile of mentally retarded children in the study sample, prevalence of depression in the mothers and investigate various factors affecting it.Study Design:A cross-sectional study.Materials and Methods:A total of 60 patients diagnosed as MR were included in the study. Objective data was collected in a special proforma and mothers of these individuals were subjected to evaluation with Beck's Anxiety Inventory and the 17 item Hamilton Rating Scale for Depression.Results:The mean age of patients in the sample was 11.6 years, had received an average of 2.42 years of schooling, mean age at diagnosis of MR was 6.5 years and their mean IQ was 53. Out of the total 60 patients, 88% of the patients had significant co-morbidities. The prevalence of depression in mothers was 85% and it was more in mothers of, the ones with significant co-morbidities (OR = 2.67), severer forms of retardation and with higher levels of anxiety in the mother.Conclusions:Prevalence of depression in mothers of mentally retarded children in India seems to be much greater than those reported from studies around the world. Medical services offered to the mentally retarded should move from an individual level to the family level, especially toward the mothers, who are the main caretakers. Counseling services, treatment if required and regular screening of mothers of the mentally retarded should be included in the protocol for management of mental retardation.

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Section: Conclusion and Discussionmentioning

confidence: 99%

The clinical profile of mentally retarded children in India and prevalence of depression in mothers of the mentally retarded

Nagarkar

Sharma

Tandon

et al. 2014

Indian J Psychiatry

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“…Parents of ill children work less (Noonan et al, 2005; Powers, 2003), miss more work when employed (Lukemeyer et al, 2000; Smith et al, 2002), have little available time for cleaning and organizing family life (Brust et al, 1992), and often need assistance finding childcare (Garwick et al, 1998). Poor child health is also associated with an increased risk of residential crowding and poor housing quality (Curtis et al, 2010).…”

Section: Child Health Effects On Chaosmentioning

confidence: 99%

Chaos as a social determinant of child health: Reciprocal associations?

Dush

Schmeer

Taylor

2013

Social Science & Medicine

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This study informs the social determinants of child health by exploring an understudied aspect of children’s social contexts: chaos. Chaos has been conceptualized as crowded, noisy, disorganized, unpredictable settings for child development (Evans et al., 2010). We measure chaos at two levels of children’s ecological environment - the microsystem (household) and the mesosystem (work-family-child care nexus) – and at two points in early childhood (ages 3 and 5). Using data from the Fragile Families and Child Wellbeing Study (N=3288), a study of predominantly low-income women and their partners in large US cities, we develop structural equation models that assess how maternal-rated child health (also assessed at ages 3 and 5) is associated with latent constructs of chaos, and whether there are important reciprocal effects. Autoregressive crosslagged path analysis suggest that increasing chaos (at both the household and maternal work levels) is associated with worse child health, controlling for key confounders like household economic status, family structure, and maternal health status. Child health has little effect on chaos, providing further support for the hypothesis that chaos is an important social determinant of child health in this sample of relatively disadvantaged children. This suggests child health may be improved by supporting families in ways that reduce chaos in their home and work/family environments, and that as researchers move beyond SES, race, and family structure to explore other sources of health inequalities, chaos and its proximate determinants may be a promising avenue for future research.

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“…Caring for a child with an activity limitation often requires much parental time and effort 27. A child’s limitation can have a profound impact on a parent’s ability to work and on the financial resources available to the family, particularly for those receiving welfare 28.…”

Section: Commentmentioning

confidence: 99%

The Impact of Childhood Activity Limitations on Parental Health, Mental Health, and Workdays Lost in the United States

Witt

Gottlieb

Hampton

et al. 2009

Academic Pediatrics

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Objective-To determine if and to what extent the onset and persistence of childhood activity limitations (on-going, resolved, or newly reported) resulted in subsequent adverse health, mental health, and work attendance outcomes among parents of children in the US.Methods-A study using ten panels (1996)(1997)(1998)(1999)(2000)(2001)(2002)(2003)(2004)(2005) of the Medical Expenditure Panel Survey (MEPS), a household survey of a nationally representative sample of the civilian non-institutionalized population in the United States. Participants in this study were 18,827 parents and their children aged 0-17 years.Results-15.6% of parents reported caring for a child ages 0-17 years with a limitation during the two-year study period. Parents of children with any activity limitation were significantly more likely to experience subsequent poor health and mental health. Parents of children with ongoing or newly reported limitations had an increased number of lost workdays as compared with parents of children without limitations. Moreover, caring for multiple children with activity limitations was predictive of adverse parental mental health outcomes. Parents of children with ongoing activity limitations had significantly increased odds of poor mental health compared with parents of children with resolved limitations.Conclusions-Caring for a child with activity limitations affects the health, mental health, and work attendance of parents. These findings indicate that child health can importantly influence the health and work behavior of the family and that healthcare providers should consider a familycentered approach to care.

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Maternal Time and the Care of Disabled Children

Cited by 30 publications

References 12 publications

The clinical profile of mentally retarded children in India and prevalence of depression in mothers of the mentally retarded

The clinical profile of mentally retarded children in India and prevalence of depression in mothers of the mentally retarded

Chaos as a social determinant of child health: Reciprocal associations?

The Impact of Childhood Activity Limitations on Parental Health, Mental Health, and Workdays Lost in the United States

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