Abstract:Scientific advances in healthcare have been disproportionately distributed across social strata. Disease burden is also disproportionately distributed, with marginalized groups having the highest risk of poor health outcomes. Social determinants are thought to influence healthcare delivery and the management of chronic diseases among marginalized groups, but the current conceptualization of social determinants lacks a critical focus on the experiences of people within their environment. The purpose of this art… Show more
“…Furthermore, each discipline has its own conceptual map and scholarly genealogy of this notion. For example, in the nursing science literature, marginalisation was proposed as a nursing theory by Hall et al in 1994 [8,9,10]. It then underwent a progressive transformation which led to the inclusion of additional elements, such as Eurocentrism [11] and then went through a series of expansions integrating scholarship on globalisation, privilege and intersectionality [12].…”
Section: Introduction Materials and Methodsmentioning
The Ebola epidemic in West Africa between 2014 and 2015 was the deadliest since the discovery of the virus four decades ago. With the second-largest outbreak of Ebola virus disease currently raging in the Democratic Republic of the Congo, (DRC) it is clear that lessons from the past can be quickly forgotten—or be incomplete in the first instance. In this article, we seek to understand the health challenges facing marginalised people by elaborating on the multiple dimensions of marginalisation in the case of the West Africa Ebola epidemic. We trace and unpack modes of marginalisation, beginning with the “outbreak narrative” and its main components and go on to examine other framings, including the prioritisation of the present over the past, the positioning of ‘Us versus Them’; and the marginalisation—in responses to the outbreak—of traditional medicine, cultural practices and other practices around farming and hunting. Finally, we reflect on the ‘lessons learned’ framing, highlighting what is included and what is left out. In conclusion, we stress the need to acknowledge—and be responsive to—the ethical, normative framings of such marginalisation.
“…Furthermore, each discipline has its own conceptual map and scholarly genealogy of this notion. For example, in the nursing science literature, marginalisation was proposed as a nursing theory by Hall et al in 1994 [8,9,10]. It then underwent a progressive transformation which led to the inclusion of additional elements, such as Eurocentrism [11] and then went through a series of expansions integrating scholarship on globalisation, privilege and intersectionality [12].…”
Section: Introduction Materials and Methodsmentioning
The Ebola epidemic in West Africa between 2014 and 2015 was the deadliest since the discovery of the virus four decades ago. With the second-largest outbreak of Ebola virus disease currently raging in the Democratic Republic of the Congo, (DRC) it is clear that lessons from the past can be quickly forgotten—or be incomplete in the first instance. In this article, we seek to understand the health challenges facing marginalised people by elaborating on the multiple dimensions of marginalisation in the case of the West Africa Ebola epidemic. We trace and unpack modes of marginalisation, beginning with the “outbreak narrative” and its main components and go on to examine other framings, including the prioritisation of the present over the past, the positioning of ‘Us versus Them’; and the marginalisation—in responses to the outbreak—of traditional medicine, cultural practices and other practices around farming and hunting. Finally, we reflect on the ‘lessons learned’ framing, highlighting what is included and what is left out. In conclusion, we stress the need to acknowledge—and be responsive to—the ethical, normative framings of such marginalisation.
“…Last, research has indicated that limited access to affordable housing is the most acute problem for women, because it forces them to return to living environments in which they are at risk of violence (Bunn, 2018 ; Owen et al, 2017 ). This demonstrates the role of structural factors in partial reentry services, in which women are exposed to an unprotected environment where the interaction of sociopolitical, economic, structural, cultural, and interpersonal circumstances put them at physiological and psychological risk (Baah et al, 2019 ). In an exploratory study of the effects of such health-damaging environments conducted among 204 women in Kansas City jails, Ramaswamy, Kelly, Koblitz, Kimminau, and Engelman ( 2011 ) revealed an association between experiences of violence and incarcerated women’s self-reports of cervical cancer screening and cancer history and treatment.…”
Section: An Intersectional Perspective On the Health Issues Of Justicmentioning
confidence: 98%
“…For example, a newly diagnosed low income cancer patient may spend his/her few life savings on treatments. This process can limit his ability to benefit from treatments and will push the individual further to a marginalized geographical location with limited access to health care services and basic needs (e.g., affordable housing) (Baah, Teitelman, & Riegel, 2019). Crenshaw (1991) charted three foci of intersection as analytical guides for assessment of this interplay.…”
Section: Intersectionality and Intersectional Criminologymentioning
confidence: 99%
“…These occur not only through deliberate political and structural oppression, but in a subtle, representational discriminatory fashion, as well (Hankivsky & Christoffersen, 2008 ). For example, guided by intersectionality theory, Baah et al ( 2019 ) invoked the concept of marginalization as a process through which certain population groups experience multiple social determinants that concurrently limit their access to health-promoting resources and increase their risk for poor health. The authors first discussed health disparities and inequity in access to resources, due to an uneven distribution of political and socioeconomic resources across gender, race, sexual orientation, culture, and geographic regions that resulted in limited employment and educational opportunities, as well as affordable health care services.…”
Section: Intersectionality and Intersectional Criminologymentioning
The perspective of intersectionality has gained widespread scholarly interest and been employed across many different disciplines, including criminology. This perspective focuses on interlocking systems of oppression and the need to work toward structural changes to promote social justice and equity. The present article aimed to explore the potential of intersectionality for advancing health research and policy regarding justice-involved women, in different phases of the judicial process, based on the extant literature. First, employing an intersectional approach to analyze the issue of health during the pre-incarceration period may facilitate identification of the structural and representational factors underlying the barriers that women face in obtaining health services, which elevates the risk to their health. Furthermore, adopting an intersectionality perspective to explore women's health during incarceration may shed light on vulnerable, invisible subpopulations of women such as incarcerated older women and their health problems, and help identify the structural barriers to carceral health services and the role of stigma in inflicting and normalizing harmful practices within prison walls. In addition, an intersectionality lens highlights the risk of unintended use of scholarly knowledge regarding the health of justice-involved women. Last, an intersectionality perspective is particularly relevant for research of the reentry of justice-involved women. In particular, it can be used to examine gender-sensitive reentry services that ignore other axes of marginalization, such as class and race, generating a powerful dynamic that results in partial service, denial of access to therapeutic resources, and possible exposure to health-damaging environments. Through an exploration of the extant literature on justice-involved women, I endeavored to demonstrate that an intersectional framework offers powerful tools to both challenge and strengthen gender frameworks within criminology. This will make it possible to move beyond consideration of gender alone, to understand how systems of oppression based on race, age and other social locations intersect and combine to construct health disadvantages among justice-involved women. This highlights the needs for a new research agenda and policy that integrate the intersectional framework with health theories to provide a more developed understanding of health among justice-involved women.
“…Tailoring a programme to local cultural, health, and belief systems remains a challenge for nongovernmental organisations (NGOs) [8,18,19]. Most broadly, peoples' diverse socioeconomic contexts influence their behaviours, and this diversity needs to be accounted for if public health programmes are to provide agency for patients and improve the impact of interventions [20][21][22]. These challenges are compounded in the low-resource settings of rural areas in developing countries where there is sometimes divergent knowledge about health between participants, and where populations are dispersed and use several different indigenous languages [23,24].…”
Background: Training of primary care practitioners is one of the most implemented interventions in medical international development programmes targeting non-communicable diseases (NCD). Yet in many cases their effectiveness is below expectations. One potential cause of this is that they struggle to account for local context, especially when working with ethnic minorities. Here we begin to address this gap through a qualitative case-study of how local contextual factors have impacted the success of a World Health Organization (WHO) healthcare training programme on Type 2 diabetes with an ethnic minority group in rural central Vietnam.
Design: A qualitative case-study collected data during 2018. We conducted 25 semi-structured interviews, two focus groups, and participant observation with patients, healthcare professionals, and members of a local non-governmental organisation involved in the programme. We used thematic coding to identify important contextual factors and how they helped or hindered programme delivery. Next, we synthesised each of these themes in a narrative style, drawing on the rich detail provided by respondents.
Results: We found that, despite using a notionally decentralised approach, the effectiveness of the training was hindered by social, political, and economic determinants of health which influenced the inhabitants’ relations to healthcare and diabetes. Particular barriers were the political perceptions of minorities, their economic access to services, the healthcare prejudices toward ethnic rural populations and the rigidity of medical training.
Conclusions: Given the similarity of our case with other WHO NCD programmes, we view that our findings are of wider relevance to global public health policy and practice. We suggest that better recognising and addressing local contextual factors would make such programmes more polyvocal, grounded, and resilient, as well as enabling them to better support long-term transformative change in public health systems. We conclude by discussing methods for implementing this in practice.
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