Marcas em si: vivenciando a dor do (auto) preconceito

Abstract

Qualitative research whose objective was to understand the social representations of the body by women with alterations caused by leprosy, for nursing care can meet more broadly to your needs. The theoretical framework was the social representations. Forty-three women participated, all of them from a reference unit specialized in sanitary dermatology. Interviews were conducted, which contents were processed by the software ALCESTE, generating a class whose words were associated with preconception anchored in the negative perception of leprosy. The explanatory framework of social representations showed a strong brand of the social memory of leprosy, whose symbolic construction sustains itself on fear of the disease. It was concluded on the need to invest in the deconstruction of archaic beliefs about leprosy so that to have new ways of acting towards the disease.

Manifestations of Stigma and Prejudice Informed by Treated Lepers

“…The magnitude of this impact is intrinsically related to prior knowledge about the disease [2,20]. So the fear of contagion due to lack of information about it can justify the exclusionary and discriminatory behavior of any civil, religious and family community against leprosy patients in past centuries.…”

“…Metaphorically, a death to the patient was imposed, this death, if not physically, socially, with the breaking of ties between the outside world to lepers [20]. At this point, many patients forced to abandon their homes, their work, their lifestyle and their friends, metamorphosed a new social identity, that is, that of lepers confined to leper colonies.…”

Significado da doença para mulheres com hanseníase

“…Desta maneira, diferentes sentimentos podem se manifestar, após o diagnóstico de uma doença como a Hanseníase, mas o modo como cada mulher reagirá é influenciada por sua história de vida, pelo apoio recebido em sua rede de interações, pelos estigmas e pelas informações veiculadas nos meios de comunicação e no senso comum. 18…”

Validação de instrumento para avaliação do conhecimento de adolescentes sobre hanseníase

“…(4) Th e negative social representations of the body with leprosy come from the symbolic construction based on beliefs, fears and terror that originated social taboos around Hansen's disease. (5) Th is is a historical disease permeated by myths and taboos that are diffi cult to demystify hence, many patients experience stigma and social segregation, and their quality of life is impaired. (6) Although in Brazil there was a decreasing trend in the detection rate of Hansen's disease in children between 2001 and 2016, the average rate in the country was classifi ed as very high endemicity.…”

“…Stigmatization refl ects the knowledge of the population's social belongings on the disease. (5) In an integrative review study (8) about educational practices on Hansen's disease with adolescents, were identifi ed nine studies that developed this type of intervention. Th e studies analyzed indicated that most adolescents had already heard of the disease in a superfi cial way, especially those who live in hyperendemic areas, but in general, when evaluated, they demonstrated a lack of knowledge about Hansen's disease.…”