Mapping family integrated care practices in the neonatal units across the UK

Dharmarajah, Katie; Seager, Emilie; Deierl, Aniko; Banerjee, Jayanta

doi:10.1136/archdischild-2019-317671

Cited by 5 publications

(3 citation statements)

References 3 publications

(6 reference statements)

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“…Despite the substantial evidence for its effectiveness in improving infant and family outcomes,3,4 there is a lack of consensus on the operationalization of the principles and tremendous variability in the implementation of family-centered care. Scrutiny of the specific policies, practices, and routines often reveals a predominance of provider-centered rather than family-centered care in many NICUs 5–7…”

Section: Background and Significancementioning

confidence: 99%

Improving Family-Centered Care for Infants in Neonatal Intensive Care Units

Franck¹,

Bisgaard²,

Cormier³

et al. 2022

Advances in Neonatal Care

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BACKGROUND AND SIGNIFICANCEFamily-centered care in neonatal intensive care units (NICU) is a philosophy and a model of care that recognizes the infant's family as a partner in caregiving. Family-centered care includes family members in infant caregiving and decision making and provides psychosocial, educational, and physical supports to families so that they can be present and active in their infant's care. 1,2 The NICUs with advanced familycentered care practices include families of former NICU infants in unit-and hospital-level organizational activities including staff education, safety and quality committees, and facilities design. Despite the substantial evidence for its effectiveness in improving infant and family outcomes, 3,4 there is a lack of consensus on the operationalization of the principles and tremendous variability in the implementation of family-centered care. Scrutiny of the specific policies, practices, and routines often reveals a predominance of provider-centered rather than family-centered care in many NICUs.

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Section: Background and Significancementioning

confidence: 99%

Improving Family-Centered Care for Infants in Neonatal Intensive Care Units

Franck¹,

Bisgaard²,

Cormier³

et al. 2022

Advances in Neonatal Care

View full text Add to dashboard Cite

show abstract

“…The term has been used in reference to several initiatives involving parent empowerment and integration into the care team. 3,[13][14][15][16][17] Furthermore, FICare has been described as a model, 3,5,6,14,18,19 program, 20,21 ethos, 22 and philosophy of care. 23,24 An ethos or philosophy of care represent values and guiding principles and may be broadly interpreted, as has been reported with Patient and Family Centered Care (PFCC).…”

Section: To the Editormentioning

confidence: 99%

Application of Kern’s framework to development of a family integrated care curriculum for neonatal intensive care units

Zanoni,

Benzies,

McNeil

2023

Int J Med Educ

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“…[9][10][11] Research on NICU experiences, particularly from high-income countries (HICs), has driven a paradigm shift in neonatal care design, giving rise to concepts such as 'family integrated care', 'family-centred care' (FCC) and 'neonatal intensive parenting unit'. [12][13][14][15] These studies have informed innovative policy guidelines for incorporating mental health professionals, peer support and communication changes in neonatal care. [16][17][18] However, research in India exploring families' psychosocial needs during NICU hospitalisation is largely quantitative [19][20][21][22] ; qualitative research is scarce, 23 with none focusing on sepsis.…”

Section: Introductionmentioning

confidence: 99%

Stressors and support system among parents of neonates hospitalised with systemic infections: qualitative study in South India

et al. 2020

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ObjectiveTo explore stressors and support system for families with a neonate admitted with a systemic infection.DesignQualitative study using in-depth interviews (IDIs), based on principles of grounded theory.SettingA busy level III neonatal unit of a tertiary care teaching hospital in coastal Karnataka, India, between May 2018 and January 2019.ParticipantsParents and accompanying attendants of neonates admitted to the neonatal unit with one or more systemic infections.MethodsUsing purposive sampling, semi-structured IDIs were audio recorded, transcribed verbatim and a thematic analysis was performed.ResultsThirty-eight participants were interviewed, lasting between 30 and 59 min. Babies’ hospitalisation with sepsis was an unprecedented, sudden and overwhelming event. Stressors related to uncertainties due to the information gap inherent to the nature of illness, cultural rituals, financial constraints, barriers to bonding and others. Parents reported experiencing insomnia, gastric disturbances and fatigue. Support (emotional and/or financial) was sought from families and friends, peers, staff and religion. Availability and preference of emotional support system differed for mothers and fathers. In our context, families, peers and religion were of particular importance for reinforcing the available support system. Participant responses were shaped by clinical, cultural, financial, religious and health service contexts.ConclusionDesigning a family-centred care in our context needs consideration of stressors that extend beyond the immediate neonatal intensive care unit environment and interactions. Understanding the influence of the nature of illness, financial, familial and cultural contexts helps identify the families who are particularly vulnerable to stress.

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Mapping family integrated care practices in the neonatal units across the UK

Cited by 5 publications

References 3 publications

Improving Family-Centered Care for Infants in Neonatal Intensive Care Units

Improving Family-Centered Care for Infants in Neonatal Intensive Care Units

Application of Kern’s framework to development of a family integrated care curriculum for neonatal intensive care units

Stressors and support system among parents of neonates hospitalised with systemic infections: qualitative study in South India

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