Mapping Community Palliative Care: Results of a Three-Year National Project (GP743)

Heitner, Rachael; Rogers, Maggie; Meier, Diane E.

doi:10.1016/j.jpainsymman.2020.04.170

Cited by 1 publication

(2 citation statements)

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“…Of the 1430 program leaders, 55.7% (797/1430) belonged to CAPC member organizations, and the remaining were participants from two of CAPC's national projects: National Palliative Care RegistryÔ and Mapping Community Palliative Care. 18,19 The first survey was distributed in May 2020, and the second was distributed in January 2021. For each distribution, two reminder emails were sent to non-responders, and the survey remained open for six weeks.…”

Section: Data Collectionmentioning

confidence: 99%

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Perceptions of Palliative Care Program Viability During the Pandemic: Qualitative Results From a National Survey

Rogers

Heitner

Frydman

et al. 2023

Am J Hosp Palliat Care

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Background: Palliative care programs have played a significant role during the COVID-19 pandemic. However, the financial impact of the pandemic and operational challenges for palliative care programs have raised concerns for their future viability. Objectives: To explore palliative care program leaders’ perceptions of the future viability of their programs in the context of the pandemic and inform future educational and program development. Methods: Surveys were sent to 1430 specialist palliative care program leaders, identified through the Center to Advance Palliative Care’s contact lists, via email in May 2020 and January 2021. Leaders were asked why they were or were not concerned about the viability of their palliative care programs. Qualitative content analysis was applied to determine themes. Results: We received 440 responses. Most programs served hospital settings and were geographically located across all US regions. We identified four themes: 1) The importance of being valued by organizational leadership and peers, 2) The importance of adequate and supported palliative care staff, 3) The pandemic validated and accelerated the need for palliative care, and 4) The pandemic perpetuated organizational financial concerns. Conclusion: Findings provide insights about palliative care program viability from the perspective of program leaders during a global pandemic. Technical assistance to support palliative care teams and their relationships with stakeholders, methods to measure the impact of peer support, efforts to educate administrators about the value of palliative care, and efforts to reduce burnout are needed to sustain palliative care programs into the future.

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Section: Data Collectionmentioning

confidence: 99%

“…However, this analysis focuses specifically on one of the required questions in the Field Surveys related to program viability. The question, "Please explain why you are or why you are not concerned about the viability of your palliative care program post-COVID- 19," was open-ended. The responses ranged from a few words to a paragraph.…”

Section: Data Collectionmentioning

confidence: 99%