Managing the unmanageable through interdependence in adolescents living with type 1 diabetes and their parents: A constructivist grounded theory

Farthing, Pamela; Bally, Jill; Leurer, Marie Dietrich; Holtslander, Lorraine; Nour, Munier; Rennie, Donna

doi:10.1016/j.pedn.2022.07.016

Cited by 5 publications

(4 citation statements)

References 87 publications

(111 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…76-79 Findings from this review suggest that interdependence may be more beneficial in facilitating the transition to self-management of T1DM. Consistent with the current finding, Farthing et al 66 showed that although adolescents age and mature, an interdependent approach rather than an independent endeavor is necessary from early diagnosis of T1DM to prepare for transition. Interdependence in self-management of T1DM occurs in the context of everyday social relations where “individuals influence each other’s outcomes in the course of their interaction.” 80 (p3) This concept differs from the fully independent approach employed by the health care system in the transition to self-management.…”

Section: Discussionsupporting

confidence: 89%

Section: Resultsmentioning

confidence: 99%

“…Despite contradictions regarding when interdependence occurs in the 2 included studies mentioned here, age is not addressed in previous literature regarding networks of support as a significant factor in the improvement of A1C levels during the transition to self-management. 65,66 The transition to self-management of T1DM has proven to be a negotiated process between adolescents and parents based on parents' perceptions of adolescents' agency in all aspects of their lives. Gender also appears to be a dimension that has an impact 41,44,45 and is an important factor in adolescents' agency during life transitions.…”

Section: Relational Autonomymentioning

confidence: 99%

See 2 more Smart Citations

Adolescents’ Experiences of Transition to Self-Management of Type 1 Diabetes: Systematic Review and Future Directions

Leocadio,

Kelleher,

Fernández

et al. 2023

The Science of Diabetes Self-Management and Care

View full text Add to dashboard Cite

Purpose: The purpose of this systematic literature review was to explore studies that report the experiences of adolescents, their families, and health care professionals of adolescents’ transition to self-management of type 1 diabetes (T1DM). Methods: SocINDEX, PsycInfo, APA PsycArticles, and MEDLINE electronic databases were searched. Studies reporting on experiences of transition to self-management of T1DM for adolescents, their parents, siblings, and health care professionals published between January 2010 amd December 2021 were included. The Mixed Methods Appraisal Tool guided trustworthiness and relevance of selected studies. Results: A total of 29 studies met the inclusion criteria. Findings indicate that adolescents’ experiences of transitioning to self-management of T1DM are interconnected with the supports provided by others (eg, family, teachers, friends). Considering interdependence and collective lived experiences is essential to developing effective and personalized family, peer, and social interventions to facilitate transition and to avoid negative outcomes in later life. The renegotiation of roles within the network of supports that impact adolescents’ transition and adolescents’ self-negotiation have been neglected. Conclusion: Transition to self-management of T1DM is a dynamic and iterative process comprising of continuous shifts between interdependence and independence, making it challenging for all involved. A number of research gaps and avenues for future research are outlined.

show abstract

Section: Discussionsupporting

confidence: 89%

Section: Resultsmentioning

confidence: 99%

Section: Relational Autonomymentioning

confidence: 99%

See 1 more Smart Citation

Adolescents’ Experiences of Transition to Self-Management of Type 1 Diabetes: Systematic Review and Future Directions

Leocadio,

Kelleher,

Fernández

et al. 2023

The Science of Diabetes Self-Management and Care

View full text Add to dashboard Cite

show abstract

“…Better metabolic rate and quality of life outcomes are achieved when parents maintain a state of shared responsibility for diabetes management with their adolescent [12,13]. Shared responsibility has been conceptualised as an interdependence that functions to provide fexible, ongoing support for adolescents who must work to constantly meld a burdensome diabetes routine with rapidly changing daily activity patterns [14]. Clinical guidelines recommend that broad support for developing selfmanagement should occur in the context of a collaborative team in which responsibility is shared between healthcare professionals (HCPs), teachers, parents, community groups, and adolescents [15].…”

Section: Introductionmentioning

confidence: 99%

Developing Self-Management of Type 1 Diabetes in the Australian School Setting: Perspectives of Adolescent Involvement in Sharing Responsibility for Diabetes Management

Gardener,

Desha,

Bourke-Taylor

2023

Health & Social Care in the Community

View full text Add to dashboard Cite

The International Society for Pediatric and Adolescent Diabetes has identified school as a critical context for adolescents with type 1 diabetes (T1D) who typically hold a fluctuating, though growing, amount of responsibility for diabetes self-management across this time. When parents use frequent autonomy-supportive communication to maintain a mutually agreeable sharing of responsibility for diabetes management with their adolescent, better outcomes are achieved. There is, however, a dearth of research examining the way adolescent responsibility is managed at school. This cross-sectional study investigated adolescents’ perspectives of sharing responsibility for T1D management at school and the extent to which these were concordant with parent perceptions. Sixty adolescents (10–19 years) and fifty-five parents completed questionnaires measuring the perceived impact of diabetes on adolescents’ school activities and respective involvement in the management of responsibility for school-based diabetes care. Adolescent questionnaires also measured perceptions of autonomy supportiveness (Health Care Climate Questionnaire) and communication quality (frequency, mode, autonomy), in relation to diabetes management. Differences by age and inter-rater agreement between parent and adolescent dyads were examined. Results showed that parents and adolescents did not agree about their relative involvement in setting up diabetes management strategies or the impact of diabetes on school activities. There was no difference in the involvement of older adolescents relative to younger students. Adolescents predominantly communicated about school diabetes care in person, though some reported no communication with school staff (25%) or healthcare workers (36%). Only thirty nine (65%) reported having a diabetes school plan. Nineteen (32%) perceived little or no involvement in setting up diabetes care strategies for the year and most had not attended a school-related meeting. These results suggest more explicit inclusion of adolescents in formal school support strategies may better represent their unique perceptions of responsibility, enabling the consensual sharing of responsibility that is associated with better outcomes.

show abstract

Conceptualization and survey instrument development for mobile application usability

Kazdaloglu,

Cetin Yildiz,

Pekpazar

et al. 2024

Univ Access Inf Soc

View full text Add to dashboard Cite

Managing the unmanageable through interdependence in adolescents living with type 1 diabetes and their parents: A constructivist grounded theory

Cited by 5 publications

References 87 publications

Adolescents’ Experiences of Transition to Self-Management of Type 1 Diabetes: Systematic Review and Future Directions

Adolescents’ Experiences of Transition to Self-Management of Type 1 Diabetes: Systematic Review and Future Directions

Developing Self-Management of Type 1 Diabetes in the Australian School Setting: Perspectives of Adolescent Involvement in Sharing Responsibility for Diabetes Management

Conceptualization and survey instrument development for mobile application usability

Contact Info

Product

Resources

About