Managing the Adult Congenital Heart Disease Patient in the COVID-19 Pandemic—A New York Perspective

Feinberg, Jodi L.; Cecchin, Frank; González, Arianna Rodríguez; Johnson, Emily; Halpern, Dan

doi:10.32604/chd.2020.012039

Cited by 2 publications

(3 citation statements)

References 28 publications

(34 reference statements)

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“…To date, empirical data on the potential risk of COVID-19 for adults with congenital heart disease is very limited and, thus, clear risk stratification criteria are lacking. Counselling of individual patients is largely based on extrapolation from patient series with acquired heart disease and from expert opinion [8][9][10][11]. Likely, this lack of solid data increases the uncertainty among patients and treating physicians regarding their risk for a severe disease course.…”

Section: Discussionmentioning

confidence: 99%

“…While advanced age is the most important determinant of a severe disease course in case of COVID-19, preexisting cardiovascular disease has been identified as an important additional risk factor [8]. Due to the lack of data, it remains, however, largely unknown to what extent young adults with congenital heart disease are at increased risk for a severe disease course in case of infection with SARS-CoV-2 [9][10][11]. This uncertainty may lead to higher levels of concerns among these patients.…”

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confidence: 99%

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Impact of the COVID-19 Pandemic on Health-Related Concerns, Quality of Life and Psychological Adjustment in Young Adults with Congenital Heart Disease

Wehrle¹,

Landolt²,

Latal³

et al. 2020

Congenital Heart Disease

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Background: The risk for a severe disease course in case of infection with SARS-CoV-2 in young adults with congenital heart disease is largely unknown, potentially leading to uncertainty and anxiety among affected patients. This study aims to investigate health-related concerns, health-related quality of life and psychological adjustment in patients with congenital heart disease compared to healthy peers during the COVID-19 pandemic. Methods: One-hundred patients with congenital heart disease and 50 controls (M = 29.7, SD = 3.8 years) were recruited. They completed an online survey including the assessment of health-related concerns regarding COVID-19, the 12-item Short Form Health Survey and the Brief Symptom Inventory. Results: Patients considered COVID-19 to be a more serious issue (Generalized odds ratio [GenOR] = 1.67, p = 0.04), were more concerned about becoming infected (GenOR = 2.93, p < 0.001) and expressed more fear about leaving their homes (GenOR = 1.81, p = 0.004) while general anxiety symptoms were not different between groups (p = 0.23). Patients relied more on family and friends for support (30% vs. 2% in controls, p < 0.001) and reported better compliance with protective measures (p = 0.03). Mental health-related quality of life and psychological adjustment were not different between groups (p = 0.17 and p = 0.68, respectively). Physical health-related quality of life was lower in patients compared to controls (p = 0.03). Conclusions: Young adults with congenital heart disease in Switzerland are more concerned about their health during the COVID-19 pandemic compared to healthy peers. These concerns, however, do not translate into generally impaired mental wellbeing. The impact of the easing of lockdown measures on long-term anxiety levels and quality of life requires further study

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Section: Discussionmentioning

confidence: 99%

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confidence: 99%

Impact of the COVID-19 Pandemic on Health-Related Concerns, Quality of Life and Psychological Adjustment in Young Adults with Congenital Heart Disease

Wehrle¹,

Landolt²,

Latal³

et al. 2020

Congenital Heart Disease

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“…Our study investigates perceptions, emotions and health behaviors during the COVID-19 pandemic in a diverse population of ACHD patients, of whom the majority were moderate anatomic complexity and classes B or C physiologic stage. The majority of patients were neither happy nor calm, reinforcing the need for increased mental health resources and collaboration with social work to support ACHD patients during the pandemic [14].…”

Section: Discussionmentioning

confidence: 99%

Emotions, Perceptions and Health Behaviors of Adult Congenital Heart Disease Patients during COVID-19 in New York City

Feinberg¹,

Sheng²,

Pena³

et al. 2022

Congenital Heart Disease

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Background: Adults with congenital heart disease (ACHD) have increased prevalence of mood and anxiety disorders. There are limited data regarding the influence of the COVID-19 pandemic on the mental health and health behaviors of these patients. Objective: The purpose is to evaluate the perceptions, emotions, and health behaviors of ACHD patients during the COVID-19 pandemic. Methods: In this cross-sectional study of ACHD patients, we administered surveys evaluating self-reported emotions, perceptions and health behaviors. Logistic regressions were performed to determine the adjusted odds of displaying each perception, emotion and health behavior based on predictor variables. Results: Ninety-seven patients (mean age 38.3 years, 46.4% female, 85.6% moderate or complex lesion) completed the survey. The majority of patients reported feeling moderately or very sad (63.1%), and 48.4% of patients identified themselves as feeling moderately or very anxious. The majority of patients perceived their risk of COVID-19 as moderate or high. Females were more likely to report feeling sad and anxious (95% CI 1.06-10.96, p-value 0.039, and 95% CI 1.44-15.30, p-value = 0.012, respectively), and were associated with higher odds of having a perceived increased risk of COVID-19 (95% CI 1.33-10.59, p-value 0.012). There was no association between ACHD anatomic or physiologic classification and perceptions, emotions and health behaviors. Conclusions: Females were more likely to report feeling sad, anxious and an increased risk of COVID-19 in comparison to males. These findings indicate the need for mental health support and promotion of health behaviors during the pandemic amongst all ACHD patients, regardless of underlying condition.

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Managing the Adult Congenital Heart Disease Patient in the COVID-19 Pandemic—A New York Perspective

Cited by 2 publications

References 28 publications

Impact of the COVID-19 Pandemic on Health-Related Concerns, Quality of Life and Psychological Adjustment in Young Adults with Congenital Heart Disease

Impact of the COVID-19 Pandemic on Health-Related Concerns, Quality of Life and Psychological Adjustment in Young Adults with Congenital Heart Disease

Emotions, Perceptions and Health Behaviors of Adult Congenital Heart Disease Patients during COVID-19 in New York City

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