Abstract:BackgroundCommunity-dwelling consumers of healthcare are increasing, many aging with life-limiting conditions and deteriorating cognition. However, few have had advance care planning discussions or completed documentation to ensure future care preferences are acted upon. This study examines the awareness, attitudes, and experiences of advance care planning amongst older people and unrelated offspring/caregivers of older people residing in the community.MethodsQualitative descriptive research, which included fo… Show more
“…Recommendations about, and an approach to, reviewing and updating ACP documentation is also likely to improve the relevance and utility of these documents. These results, along with others, [11,21,22] also demonstrate the important contribution of qualitative research in understanding how ACP can be optimised.…”
Section: Discussionsupporting
confidence: 71%
“…A qualitative study consisting of focus groups with older people and caregivers found that some caregivers who had acted in a substitute decision maker role previously experienced distress related to their decisions. [21] Similarly, another recent qualitative study with patients and their substitute decision-makers, found substitute decision-makers can have different views to patients, and efforts to promote ACP may be most successful if patient and substitute decision-maker beliefs are addressed. [22] Past research also found that some caregivers could make subsidiary plans and not necessarily follow patient advance care plans.…”
This study highlighted advance care planning was not a completely accurate representation of patient wishes. There is opportunity to improve how patients comprehend their own advance care planning documentation.
“…Recommendations about, and an approach to, reviewing and updating ACP documentation is also likely to improve the relevance and utility of these documents. These results, along with others, [11,21,22] also demonstrate the important contribution of qualitative research in understanding how ACP can be optimised.…”
Section: Discussionsupporting
confidence: 71%
“…A qualitative study consisting of focus groups with older people and caregivers found that some caregivers who had acted in a substitute decision maker role previously experienced distress related to their decisions. [21] Similarly, another recent qualitative study with patients and their substitute decision-makers, found substitute decision-makers can have different views to patients, and efforts to promote ACP may be most successful if patient and substitute decision-maker beliefs are addressed. [22] Past research also found that some caregivers could make subsidiary plans and not necessarily follow patient advance care plans.…”
This study highlighted advance care planning was not a completely accurate representation of patient wishes. There is opportunity to improve how patients comprehend their own advance care planning documentation.
“…It is conceivable that the demand for complex nursing care will increase, requiring additional CSU places or the expansion of the capabilities of existing NHs. prognosticating survival [24][25][26][27] , uncertainty and conflicts of opinion between patients and their caregivers 28 and the loss of patients' mental capacity. Nevertheless, it is critical for doctors to actively overcome this friction and seek out appropriate moments to initiate the ACP process with these patients to improve end of life care, patient and family satisfaction and reduce stress and anxiety in surviving relatives 29 .…”
Section: Right-siting Of Patients With Complex Care Requirementsmentioning
“…It is important that a family talks about the planning of care throughout life, so that when an elderly person becomes dependent, it has been previously agreed who will be the legal representative or caregiver, or whether the person prefers to be institutionalized. 10 When caregivers talked about their history with the elderly persons in the workshops, they often revealed a history of conflict, hurt and forgiveness. On this occasion, they were reflective, and some even cried.…”
Section: Analysis Of Meetings With Caregiversmentioning
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