Managing Ethics in the HBP: A Reflective and Dialogical Approach

Stahl, Bernd Carsten; Rainey, Stephen; Shaw, Mark

doi:10.1080/21507740.2016.1138155

Cited by 5 publications

(6 citation statements)

References 4 publications

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“…In practice, the RRI programme of the HBP is implemented by four work packages that focus on technology foresight (Aicardi et al 2018 ), philosophical and neuroethical reflection (Salles et al 2019 ), public engagement, and ethics support (Stahl et al 2016 ). Ethics Support uses an approach of ethics dialogues to implement RRI (Stahl et al 2019 ).…”

Section: Social and Ethical Concerns Of Neuroroboticsmentioning

confidence: 99%

Ethical and Social Aspects of Neurorobotics

et al. 2020

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The interdisciplinary field of neurorobotics looks to neuroscience to overcome the limitations of modern robotics technology, to robotics to advance our understanding of the neural system’s inner workings, and to information technology to develop tools that support those complementary endeavours. The development of these technologies is still at an early stage, which makes them an ideal candidate for proactive and anticipatory ethical reflection. This article explains the current state of neurorobotics development within the Human Brain Project, originating from a close collaboration between the scientific and technical experts who drive neurorobotics innovation, and the humanities and social sciences scholars who provide contextualising and reflective capabilities. This article discusses some of the ethical issues which can reasonably be expected. On this basis, the article explores possible gaps identified within this collaborative, ethical reflection that calls for attention to ensure that the development of neurorobotics is ethically sound and socially acceptable and desirable.

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Section: Social and Ethical Concerns Of Neuroroboticsmentioning

confidence: 99%

Ethical and Social Aspects of Neurorobotics

et al. 2020

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“…It is in this context that we can understand both how ethical and societal considerations and neuroscience are integrated, in general, into the project, and in particular how neuroethics is conceived and operationalized in the HBP. Ethical and societal considerations are expected to be built in at the development stage, not only ensuring that all the HBP research complies with the relevant legal and ethical regulations (ensuring that research has obtained appropriate ethical approval and is conducted according to approved ethical guidelines, which is done by working closely with researchers within the project) but importantly by preparing for the future by examining potential scenarios (so as to minimize risks and guide the direction of research) and engaging with the relevant stakeholders in an open and interactive way (Stahl et al 2016). Ethical action is, thus, guided by anticipation and engagement, but also by careful reflection.…”

Section: Rri As An Ethical Frameworkmentioning

confidence: 99%

Of Ethical Frameworks and Neuroethics in Big Neuroscience Projects: A View from the HBP

Salles

Farisco

2020

AJOB Neuroscience

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The recently published BRAIN 2.0 Neuroethics Report offers a very helpful overview of the possible ethical, social, philosophical, and legal issues raised by neuroscience in the context of BRAIN's research priorities thus contributing to the attempt to develop ethically sound neuroscience. In this article, we turn to a running theme of the document: the need for an ethical framework for the BRAIN Initiative and for further integration of neuroethics and neuroscience. We assess some of the issues raised and provide an explanation of how we have addressed them in the Human Brain Project. We offer our experience in the HBP as a potential contribution to the international debate about neuroethics in the big brain initiatives. Our hope is that among other things, the type of exchange proposed by this AJOB special issue will prove productive in further identifying and discussing the issues and in inspiring appropriate solutions.

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“…It, therefore, possesses attributes requiring special consideration when incorporating ethical frameworks, including a need for a non-imperialist, dialogical approach; cross-disciplinary utility; and sensitivity to social and cultural issues at multiple levels (Aicardi et al, 2018b; Stahl et al, 2018, 2019). In applying RRI within the HBP, the approach to ethical issues has been characterised by dialogues, flexible, and responsive to project needs (Stahl et al, 2016; Aicardi et al, 2018a). We view the creation and continuing development of “responsible data governance” to be part of these efforts.…”

Section: Ethics and Big Datamentioning

confidence: 99%

Responsible Data Governance of Neuroscience Big Data

Fothergill

Stahl

Ulnicane

2019

Front. Neuroinform.

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Current discussions of the ethical aspects of big data are shaped by concerns regarding the social consequences of both the widespread adoption of machine learning and the ways in which biases in data can be replicated and perpetuated. We instead focus here on the ethical issues arising from the use of big data in international neuroscience collaborations. Neuroscience innovation relies upon neuroinformatics, large-scale data collection and analysis enabled by novel and emergent technologies. Each step of this work involves aspects of ethics, ranging from concerns for adherence to informed consent or animal protection principles and issues of data re-use at the stage of data collection, to data protection and privacy during data processing and analysis, and issues of attribution and intellectual property at the data-sharing and publication stages. Significant dilemmas and challenges with far-reaching implications are also inherent, including reconciling the ethical imperative for openness and validation with data protection compliance and considering future innovation trajectories or the potential for misuse of research results. Furthermore, these issues are subject to local interpretations within different ethical cultures applying diverse legal systems emphasising different aspects. Neuroscience big data require a concerted approach to research across boundaries, wherein ethical aspects are integrated within a transparent, dialogical data governance process. We address this by developing the concept of “responsible data governance,” applying the principles of Responsible Research and Innovation (RRI) to the challenges presented by the governance of neuroscience big data in the Human Brain Project (HBP).

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Managing Ethics in the HBP: A Reflective and Dialogical Approach

Cited by 5 publications

References 4 publications

Ethical and Social Aspects of Neurorobotics

Ethical and Social Aspects of Neurorobotics

Of Ethical Frameworks and Neuroethics in Big Neuroscience Projects: A View from the HBP

Responsible Data Governance of Neuroscience Big Data

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