Managing Epilepsy Well: Emerging e-Tools for epilepsy self-management

Comparison of common data elements from the Managing Epilepsy Well (MEW) Network integrated database and a well-characterized sample with nonepileptic seizures

“…The aim of the network is to conduct epilepsy self-management research and to improve the quality of life for people with epilepsy. Many different research strategies were used to develop, test, and promulgate evidence-based, communitybased, and e-Health interventions for epilepsy self-management for patients, their caregivers, and health-care providers [20]. …”

Internet use and looking up information online in adults with epilepsy varies by epilepsy status — 2013 National Health Interview Survey

“…Differences by age also follow patterns of technology adoption, in general [2]. Because the Internet is a major source of health information, online education and interventions can overcome barriers to care (e.g., no transportation, cost, and stigma) and promote social support and patient-centered healthcare [1,2,4,5]. Ensuring access to the Internet and encouraging use of quality, secure, and easy-to-access resources and e-tools among adults with epilepsy, especially those who live in low-income families and have less education, might help them optimize self-management and improve their quality Internet use is measured by responses to a survey question "Do you use the Internet?"…”

“…The Centers for Disease Control and Prevention Managing Epilepsy Well (MEW) Network supports e-Health programs and provides resources and training for people with epilepsy and health professionals [4]. Epilepsy.com also serves as a key resource for epilepsy information, services, and patient care.…”

An economic evaluation of a multicomponent self‐management intervention for adults with epilepsy (ZMILE study)

“…9,10 However, the Managing Epilepsy Well (MEW) Network has revealed a lack of evidence-based programs for epilepsy self-management education. 11 One of the mechanisms responsible for the improvements in health status, demonstrated by those attending self-management programs, is self-efficacy. 9 Furthermore, the effectiveness of an antiepileptic drug (AED) treatment not only depends on the type of AED; the patients' attitude to it is also of great importance.…”